My orthopedic doctor has BFS

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My orthopedic doctor has BFS

Postby Ava on March 22nd, 2005, 11:36 am

Hi fellow BFS'rs,

I just went to my orthopedic doctor who is a great doc. at Stanford. I was experiencing hip pain (it's a pulled muscle), but in the course of the medical interview I told him about my BFS. He kind of laughed at the idea that this was now a "syndrome" because of how common this is. He said he gets fasciculations all the time and has since he was in high school (he is now around late 50's). When he was young, he thought everyone got fasciculations but in med school he freaked out about anterior horn cells, ALS and the like.

Anyway, he is one of 3 people I have met with BFS in addition to myself so indeed this is fairly common.

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Postby Stephanie on March 22nd, 2005, 1:30 pm

Thanks for sharing that.
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Postby jcavan4125 on March 22nd, 2005, 7:20 pm

A minor point, but benign fasciculations and BFS are not exactly the same thing. A syndrome, by definition, has a group of symptoms attached to it. That's why BFS was designated as its own entity. because of the other symptoms that accompany it (fatigue, stiffness, pain etc...); whereas benign fasciculations is simply that. Now it may be that benign fascicualtions may be a very mild form of BFS with no other presenting features, but then it wouldn't be a syndrome would it.
It may seem like I'm splitting hairs, but the reason I bring it up is because people often wonder why some physicians have never heard of BFS, while nearly all are familar with benign fascicualtions. It is because BFS is fairly new as its own entity. It wasn't until enough people complained of this constellation of symptoms that the medical community realized there was something going on that was distinct from simple benign fasciculations. Hence the term BFS was born.
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Postby Ava on March 23rd, 2005, 9:16 pm

This man, I think, has benign fasciculation syndrome - he gets rippling fasciculations arms and legs that are ongoing and frequently more pronounced after excercise. He was clear that what he had is significantly different then simple benign fasciculations that present occasionally. His condition is ongoing and has been for something like 40 years.

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Postby Ginlyn on April 17th, 2005, 1:58 am

Ava,

Thanks for posting that story.

As much as I wouldn't wish muscle twitching on my worst enemy, for some reason, it is a little comforting to know that a doctor has experienced them for this long of a time frame, is still around, and doesn't worry about them.

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