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AboutBFS.com • View topic - mark one year

mark one year

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

Moderators: JohnV, Arron, garym

Re: respect

Postby dave y on March 11th, 2005, 4:59 am

dave y
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it is possible

Postby eric on March 11th, 2005, 7:14 am

eric
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ive had it fifteen years balen

Postby eric on March 11th, 2005, 7:42 am

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Advice concerning Lyme, etc.

Postby Davey on March 14th, 2005, 3:32 pm

Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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lyme

Postby eric on March 14th, 2005, 7:02 pm

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benign?

Postby Davey on March 17th, 2005, 7:46 pm

Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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Postby eric on March 17th, 2005, 10:14 pm

davey id like for some of the lyme people to come over to this chat room and explain to you that there is a couple of things that you dont under stand about lyme disease,
1)you dont allways get as rash
2)the tick is not the only vector
3)neuro dont understand lyme disease
4)testing is very light and not accurate with many false negatives
5)insurence companys dont want to treat lyme disease
6)most doctors gp dont know the signs or symptoms of lyme disease
7)lyme disease is allover the world in almost every country
all of the above is true
im not making this up
talk to some of the lyme patients on other forums and you will see,
if you dont think you fit many others on this bfs forum will fit
Im glad to say that many people on this forum have there health back and dont post and when they look at how im fighting for lyme they say no one under stands but keep fighting.. so there I am trying to help people see something that they dont...
eric
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Postby Slavin Balen on March 18th, 2005, 3:39 am

Eric and Davey,
I read your posts. In my opinion you're both right. Maybe some kind of mental help might be helpful for me.
GP in my country don't know nothing about tick born deseases. Insurance companies never heard about it. Some Neuros know, of course, but they don't know treatment. Actaully Croatia, capital town Zagreb and specially my area is most infected place in Europe. The first case was diagnosed in 1987. The fact is that I've been bitten 3 times in 2002 (spring and summer). After first bite (embedded tick, normal size, no rush, no erythema migrans) I took azytromicin (Sumamed by PLIVA; our Croatian drug available in States).
After second bite (embedded tick, normal size, no e.m., no fever or flu like signs) I've done nothing. The third one was VERY UNUSUAL tick I've ever seen in my life (I'm living with pets all my life and I know how ticks look like in my county). It was very little one (probably "nymph" kind), I got erythema migrans (1" in circle) and flu like symptoms during next couple days. Then I done nothing. I didn't take any antibiotics or any other drugs.
My mistake. Mea culpa!
I've been verynervous and upset those days, my parents died, I left my home etc. I've forgotten about ticks. But after 2 months my calvary starting with epididymis infection (treatment with large penicilin doses), vertigo, dizziness, tinnitus. Menniere syndrom ruled out. Nothing happened during 2003. Fasciculations started last March with eyelid twitching. In my previous posts I have described tests and exams which I done last 12 months.
Last few weeks I have a lot of little twitches on my eyelids, around my lips, in and on my . Pain in my back, arm, right heel.
must
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Slavin's plight

Postby Davey on March 18th, 2005, 5:05 pm

Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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Postby eric on March 18th, 2005, 10:46 pm

eric
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Postby eric on March 18th, 2005, 10:47 pm

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slaven balen

Postby eric on March 22nd, 2005, 7:31 pm

let me know if you need the test kits from igenex sent to you in croatia,
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Look in the mirror

Postby John_JR on March 23rd, 2005, 1:26 am

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jhon

Postby eric on March 23rd, 2005, 8:01 am

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Postby Slavin Balen on March 23rd, 2005, 4:13 pm

Yesterday I visited one of my Neuros and it was quite well. Despite of all my recent problems; fasciculations wide spread, light weakness in right arm, strange sensation and numbness with light cramps in right leg, aching right heel, desperate mind; she told me I'm pretty O.K. with good neurological status and fine muscles. She recomended a lot of exercising, Omega - 3, positive thinking and avoiding Internet (meaning our Forum). I asked her do I have ALS or something else and she told me NO!
She said something very interesting. Too much vitamin E (in mega doses) are not good (in my case). Excessive bruises on skin may be caused by large doses of vit. E because it works like anticoagulant. In fact, it happened to me 2 years ago but I didn't know that was the reason. It's better to take vit. E from natural sources. Tomorrow I'm going to Slovenia. I have an appointment with LD specialist. We shall see..
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