throat fatigue?

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

Moderators: JohnV, Arron, garym

throat fatigue?

Postby Eve on January 27th, 2005, 4:37 am

I try to stay positive, but today I have a bad day.. Since 4 month I have problems with swallowing (but eating and drinking is normal) and sometimes I feel my tongue is lazy. The first three month I had a fatigue in my left hand but is much better now. Then I had a lot of twitches in my hand so I thought the worst. Now I have a "fatigue" in my throat (I think) and it seems that I have the most twitches there and in my face. I also have them in my feet and legs and shoulders but not so often as in my face and neck. My GP thinks it is all because of stress. I want to believe this but when I feel these twitches again...
Eve
Eve
Senior Member
Senior Member
 
Posts: 69
Joined: December 20th, 2004, 3:55 pm
Location: Luxembourg/The Netherlands

Postby Roger G. on January 27th, 2005, 5:34 pm

If you can eat and drink you are O.K.. when you start to focus on just the swallowing there lies the problem :!: classic anxiety situation :shock: If you think theres a problem try a glass of water, or if it is not a problem how about a glass of wine :lol: ( I hear that goes down much easier but just ONE :wink: )
User avatar
Roger G.
Hero
Hero
 
Posts: 477
Joined: January 10th, 2005, 6:37 pm
Location: Greenwood Lake, New York

Postby LeeNC on January 27th, 2005, 8:38 pm

Or TWO. Roger, don't be so timid. :lol:
LeeNC
Hero
Hero
 
Posts: 350
Joined: September 16th, 2004, 10:33 am
Location: North Carolina, US

Postby Eve on January 28th, 2005, 2:41 am

Roger, I know the swallowing problem is a classic anxiety symtom but how about the lazy tongue? I hope it is all anxiety.
By the way, everyday before sleeping I take one glass of wine and I sleep well on it!
Eve
Eve
Senior Member
Senior Member
 
Posts: 69
Joined: December 20th, 2004, 3:55 pm
Location: Luxembourg/The Netherlands

Postby Roger G. on January 28th, 2005, 10:20 am

Why is your tounge so lazy :?: try to find something to keep it buzy :shock: ( just kidding, I think you are going to be fine :wink: )
User avatar
Roger G.
Hero
Hero
 
Posts: 477
Joined: January 10th, 2005, 6:37 pm
Location: Greenwood Lake, New York

Postby Stephanie on January 29th, 2005, 11:59 pm

My throat/neck twitches a lot.
Stephanie
Saint
Saint
 
Posts: 945
Joined: June 28th, 2004, 8:36 pm

Postby Eve on January 30th, 2005, 3:27 am

Do you have any fatigue or the feeling that your muscles in your neck are stiff? For how many months/years you are twitching?
Eve
Senior Member
Senior Member
 
Posts: 69
Joined: December 20th, 2004, 3:55 pm
Location: Luxembourg/The Netherlands

Postby Stephanie on January 30th, 2005, 2:36 pm

My neck muscles have been stiff and painful X 3 weeks. I have been twitching for 2 1/2 years 24/7.
Stephanie
Saint
Saint
 
Posts: 945
Joined: June 28th, 2004, 8:36 pm

Postby Eve on January 31st, 2005, 3:21 am

Stepanie,
Did you have any massage or so for your neckmuscles?
Probably it is tensed because of the stress. Do you have a lot of stress? I do, bacause I still worry about this stupid ***.
Eve
Senior Member
Senior Member
 
Posts: 69
Joined: December 20th, 2004, 3:55 pm
Location: Luxembourg/The Netherlands

Postby Stephanie on January 31st, 2005, 11:35 am

I realized today that the pain in my neck originates from an enlarged lymph node (it's been enlarged for years). Since I'm on heavy duty AB's I don't know why it would be so painful.
Stephanie
Saint
Saint
 
Posts: 945
Joined: June 28th, 2004, 8:36 pm

Throat problems

Postby Davey on February 16th, 2005, 1:12 pm

There are documented instances of swallowing difficulties with BFS. There is this article:

Braune, S., M. Hentschel, F. X. Glocker, and C. H. Lucking. Involvement of the esophagus in the cramp-fasciculation syndrome, Muscle and Nerve, June 1998, pp. 802-804.

You can download it here.

Also, if you read Hart et al. (2002), you will see that they mention pharyngeal involvement and bulbar symptoms (facial twitching, etc.).

The involvement of cranial nerves in BFS/PNH is not unusual.
Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
User avatar
Davey
Selfless giver of time
Selfless giver of time
 
Posts: 246
Joined: August 29th, 2002, 5:14 pm
Location: West Lafayette, IN

Postby Eve on February 16th, 2005, 2:24 pm

Thanks Dave!
Eve
Eve
Senior Member
Senior Member
 
Posts: 69
Joined: December 20th, 2004, 3:55 pm
Location: Luxembourg/The Netherlands

Sponsor

Sponsor
 


Return to Experiences with BFS

Who is online

Users browsing this forum: No registered users and 3 guests

cron