Newbie - is this BFS or MS - Please help

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Newbie - is this BFS or MS - Please help

Postby lilyjames on April 29th, 2012, 8:39 am

Hi All

Been diagnosed with BFS approx 6 weeks ago after starting with an eye twitch beginning of the year which eventually stopped but the mad calf twitching and 'thumper' twitched started, went to Neuro who told me straight away that it was BF and to not worry about them, he said he would carry out an EMG for my peace of mind and that was clean..
However, since then I have been getting more and more sensory issues, tingling in my left arm is what is worrying me the most, sometimes it seems to come on it the arm is rubbed/or bedclothes rub on it, very weird, also I have pain in my elbow and wrist and sometimes the arm just tingles. This is freaking me out and I now think I have MS.

I have a lot of health anxiety but I am really trying to understand what is happening to me right now

can anyone help, are these tingling symtpoms part of BFS

Thank you all for your help it would be good to hear from anyone who suffer with similiar things
lilyjames
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Re: Newbie - is this BFS or MS - Please help

Postby Yuliasir on April 29th, 2012, 10:16 am

Dear lilyjames,
i think I was replying to you already somwhere else in this board but I believe it still would be good to say once again that
1. usually BFS develops exactly like it goes with you - it starts with innocent but annoying twitches, and then usually sensory disturbances become evident - like pins and needles, hot or cold spots, sudden pains, persostent or temporary soreness or stiffness, crampies, overall skin hyersensivitity, electrical shots, some people develop urticaria or rush etc. Then we usually start to complain for fatigue, perceived weakness (which is a feeling of being weak and out of resources), excersise intolerance etc. Then we realise that despite on unpleasant symptomes (some of prople here have constant nontop twithces for years, I think it is a very hard experience) we are not dying (at least not immedately) and come back to more or less active life.

2. tingling, internal buzzzing, twitches migrating from one body part to another are exactly what happens to typical BFS sufferer. The range is very weird and complete -from tiny soft buzzzing like there is a vibro under your sking to jerks and jolts moving the whole finger (I have read here that even the whole limb was moving!)

3. Pains in wrists and elbows are very common for those who are typing a lot. I personally do have that. Sometines my left forearm feels like connected to a battery - bzzzzz! bzzzzzz! from the wrist down to the elbow, quite boring. have you ever noticed if that pain is assosiated with any hand work? For me it is enough to take 3-4 kilo (6-8 lbs) from the grocery shop - and ooops... pains, shoots, stiffness all that stuff. Usually it became really bad on cold weather. really really bad, stiff etc.

Because I am quite sure now that at least part of BFS involves constant or temporary hyperexitability of neuro systems, all those pains and strange sensations become just evident for us (before we might not give any attention to it). As for my body, I believe it just complains in that way for far much overload than it can deal with ;( Anyway for many of us BFS had started after significant physical or mental stress or combination of it.


For tingling, cramps and stiffness I ususally use self-massage and warm clothes. As for extra skin sensiticity I do not know what exactly to share... but i know some people here use warm (not hot) bath and I know that the herb called Bidentis trpartita
http://en.wikipedia.org/wiki/Bidens_tripartita is widely used here in our country in order to smooth skin inflammation in children when they have their infant rush. Probably you have something similar in your country to add to the bath and get your skin less sore.


Anyway for BFS the picture you describe looks very very common.
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Re: Newbie - is this BFS or MS - Please help

Postby johnnythejet on April 29th, 2012, 5:24 pm

What you describe is BFS, and not MS. I, and many others, have loads of sensory symptoms...what you described and much more. No worries. :)
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Re: Newbie - is this BFS or MS - Please help

Postby Shanny63 on April 29th, 2012, 5:51 pm

hi lily, youve seen a neuro, had a clean emg, diagnosed with bfs and u have health anxiety, everything u describe is classic bfs nothing like MS..most people with bfs have sensory issues me included...try to work on your anxiety and stop worrying about other diseases....hugs shanny :D
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