Rock on twitchers!

This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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Rock on twitchers!

Postby chrissi on March 11th, 2012, 4:22 am

6 months ago.....I felt almost disabled by BFS. I could not stand for a minute because my legs would kill me from pain, I could not lift up my arms to brush my hair because they were so sore and heavy, I could hardly walk because my legs were so shaky and tremorous I could not trust them. Twitching all over every second.Crackling voice, choking. If I walked 2 steps of my stairs I needed recovery time because exercise intolerance would kick in so bad. I felt like an 31-year old stuck in the body of a 90 year old. I thought I was going to die from some terrible disease; NO WAY could this be something benign!!!!!!!!!!!!!

Yesterday....I spent 3 hours at an awesome rock concert, jumping, banging, singing, my hands in the air. Not one Minute of pain, shaking or being out of breath.....I*d say I am back again, better than before lol :) And you new guys , twitching, shaking and full of pain and fear..you will be too.
Hell yeah!!

Rock on twitchers
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"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
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Re: Rock on twitchers!

Postby bobajojo on March 11th, 2012, 7:33 am

You're a Rock Star Chrissi! Good for you! -Matt
Over 10 billion twitches since May 2011.
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Re: Rock on twitchers!

Postby Jujulia on March 11th, 2012, 6:27 pm

Wow chrissi, I'm glad you're doing so much better! You rock girl. Keep it up! 8)

I wish I could say the same... I hate this bfs crap so much. :evil:
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Re: Rock on twitchers!

Postby nickston on March 11th, 2012, 6:38 pm

Chrissi, are all your symptoms gone?? If so that is awesome! What did you do, if anything?
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Re: Rock on twitchers!

Postby Pete Borota on March 11th, 2012, 6:52 pm

Fantastic news Chrissi,

What would you put it down to? Change of diet or mind set :D

Congratulations
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Re: Rock on twitchers!

Postby mike fla on March 11th, 2012, 10:40 pm

Chrissi,

That's really great. You have come so far in such a short amount of time.
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Re: Rock on twitchers!

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