6 Months Update!!!!

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6 Months Update!!!!

Postby House on February 5th, 2012, 4:03 am

Hi all!!! First of all I would like to thank mommylondon for sending me a pm and asking me how am i doing since that I've been absent from this board for quite some time.. It's just so sweet! :) by the way, how are you doing mommylondon?

Now for my update. Fist of all, I never did take those blood tastes because I kinda felt that it was unnecessary because at that time, I kinda started to get used to all that twitching. I still twitch every single day but I think that I am starting to accept it as a "normal" part of life and stop thinking about it. However, my twitching has constant flare ups and downs which seems do be unrelated to stress or anxiety. Of course it does flare up when I'm really stress out or scared but most of the time it goes up and down without any particular reason. Also, I would like to point out that getting sick does not change how much I twitch. So, it might not be immune or virus related.

Now, my urinary problems are much better now but like many of the accompanying symptoms of bfs, they will usually come and stay for a while and go away and come again weeks or months later... so I won't be surprised if it comes back. It's the same for my hypnic jerks and my myoclonic jerks.. they come and go... it's the off season for those two now..hehe

What I would like to point out here is that starting form early November last year, I started getting skipped heart beats like all the time. probably some kind or arrhythmia.. It's like I experience 2 harder beats all of a sudden and if I feel my pulse when that happens.. there seems to be a pulse in my pulse. I went to a specialist gp about this and he did some tests on me like an ekg but he said that my heart was fine. I would definitely go to a cardiologist if this continues... Now i'm worried that whatever is causing me to twitch is spreading to my automatic muscles like my heart.

A few days ago I had some difficulty swallowing... it's like it takes more energy to swallow and my throat felt tight when I'm swallowing. and... all that strained my throat muscles which caused them to hurt a little... but I think that my throat is better now..haha...

Well... that's it for this update.. seeyea!!!!
Posts: 11
Joined: September 28th, 2011, 2:24 pm

Re: 6 Months Update!!!!

Postby Silverbullet on February 9th, 2012, 12:05 pm

Thank you for your message it's good to hear your are doing better.


Re: 6 Months Update!!!!



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