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This forum is for posting your personal experiences with BFS: symptoms, doctor visits, fears, etc.

Please use this forum to post give and recieve encoragement and reassurance from sharing the trials and triumphs you have faced.

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Postby John_JR on January 19th, 2004, 3:58 pm

Paul,

Sounds like you have the same symptoms as me and many more who are on this forum. Although, I believe there are actually multiple “groups of underlying causes” as I don’t believe we are all twitching for one single reason. Anyway, I broke my symptoms down to three “types” in another thread. Have a look - http://nextination.com/aboutbfs/forums/viewtopic.php?t=1307&highlight=type1

In regards to my case, I strongly feel it is linked to a pathogen. Lyme is still an avenue I am addressing, but I’m not ruling our other forms of infections. See this other thread I started - http://nextination.com/aboutbfs/forums/viewtopic.php?t=1314 - where I've posted a link to Mycoplasma infections that respond to the same treatment protocol as Lyme. As a GWV, you'll find that read very interesting.

Please keep us posted as your situation develops.
John R.
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Postby eric on January 19th, 2004, 8:16 pm

John_JR wrote:Paul,

Sounds like you have the same symptoms as me and many more who are on this forum. Although, I believe there are actually multiple “groups of underlying causes” as I don’t believe we are all twitching for one single reason. Anyway, I broke my symptoms down to three “types” in another thread. Have a look - http://nextination.com/aboutbfs/forums/viewtopic.php?t=1307&highlight=type1

In regards to my case, I strongly feel it is linked to a pathogen. Lyme is still an avenue I am addressing, but I’m not ruling our other forms of infections. See this other thread I started - http://nextination.com/aboutbfs/forums/viewtopic.php?t=1314 - where I've posted a link to Mycoplasma infections that respond to the same treatment protocol as Lyme. As a GWV, you'll find that read very interesting.

Please keep us posted as your situation develops.

I have inflammation of the peripheral nerves on the side of the neck.
and I have to stretch or massage it and it helps temporarily.
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Postby Debbs on January 21st, 2004, 2:27 am

Hello Paul,

Its been soo long since I have been in this forum. But I read your post and my heart goes out to you, you have had an awful lot to deal with in a short period of time. I only have my own experience to gauge things by, I dont have all the answers actually no one does, but I do firmly believe that our bodies manifest on the outside whats going on...on the inside, sounds like you could use a nice holiday!!! Long and short of it is that SSRI's have basically stopped all my symptoms and a change of lifestyle and thought patterns have set me back on track. I have been on Aropax now for over a year and have cut down my dose to half a tab a day, I rarely ever twitch anymore after twitching for around 6 years, my neuro suggested anxiety after many tests and found nothing concrete. Anxiety is one of those things that kinda sneaks up on ya and before you know it all these symptoms appear without warning. I just want to encourage you to keep your chin up, dont let things get to you, try the medication till you find something that suits you perfectly ( not longterm tho), and relax more than you are now. Your body is obviously tellin you something and you need to listen to it.

Take care,
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Postby PDR on January 21st, 2004, 10:17 am

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Postby PDR on January 21st, 2004, 10:30 am

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Postby PDR on January 23rd, 2004, 9:48 am

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Postby PDR on February 4th, 2004, 10:57 am

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Postby thetwitchkid on February 4th, 2004, 12:00 pm

Paul:

Thanks for sharing the information on your tests !!!
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Postby PDR on February 9th, 2004, 2:30 pm

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Postby PDR on February 10th, 2004, 3:44 pm

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Postby thetwitchkid on February 10th, 2004, 4:27 pm

Paul:

Sounds like you do major workouts. This will raise CPK a lot. Stay cool :)
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Postby PDR on February 11th, 2004, 12:09 pm

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Postby thetwitchkid on February 11th, 2004, 1:52 pm

Paul,

Stay close to the Mens' room!! :D
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Postby garym on February 11th, 2004, 7:05 pm

Paul,

I would only say be careful about drinking too much water. I know that sounds crazy, but you can actually deplete electrolytes with too much water, especially if you are training hard. You may want to try magnesium/calcium/potassium supplements. I'm sure you already know about electrolytes, but according to recently posted study of magnesium on this bb, the first signs of mag deficiency are usually neuromuscular, including fasciculations.

Just something to think about. Good luck,

Gary
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Postby PDR on February 12th, 2004, 11:33 am

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