by monr905 on November 22nd, 2009, 8:52 pm
Where to begin?
Well Since I posted last, things calmed down a bit. I want on a diet and exersise regimen and lost that 35 pounds. (I'm hovering at about 175 to 180) yay! Anyway. After a HORRIBLE allergic reaction to PPD, the chemical in dark hairdye, and a week of the hystimenic reaction to that, The fasiculations are out of freaking control! Calves, feet, right eyelid are consistant, while other places, abdomen, thigs,etc are sporatic. I can pull my pantleg up at any time, day or night, and show people the "bugs crawling under my skin"
I scheduled a appt with the neruo again who put me though a bunch of physical tests and told me once again, BFS and said see you in three months. He prescribed Gabopentin (sp?) which I am now ramping up on and adding to my 72mg of Concerta, 10mg of diazepam and self-prescriped magneisum suppliments. WTF!?!
My mother-in-law noticed that I have a butterfly rash across my nose and upper cheeks and told me to go to get checked for Lupus. I went and got the bloodwork done. I was actually DISAPPOINTED that the results were negative...and just Rosaceia.
Currently I am waiting to get on the schedule of another neuro for a second opinion and I want to be tested for Lyme Disease. I figure, if a seperate and distinct neruo classifies this as BFS and my Western Blot comes back negative. I can finally relax. Maybe exen ween off then damned benzos!
I know what you guys are thinking and I know inthe back of my head I just need to get the BFS club membership and relax, but it is really hard. I twitch ALL the freakin time! It consumes my life. I feel bad for my wife and kids. I am constantly on edge and miserable.
I feel like a nut job. Eight months since my first twitch and I am still testing for foot drop by hoping up stairs and testing hand strength when no one is looking. I assume that if I had <that which shall not be named>, I would see wasting and definet muscle weakness, by now? ( This is where you guys reply with incredible reassurance! ) lolol
Anyway thanks for listening to me ramble.
-AC