A Visit with a Rheumatologist after Weirdness

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A Visit with a Rheumatologist after Weirdness

Postby ImOK on November 13th, 2008, 9:26 pm

Well, it has truly been a weird few days for me.
After having initial success with Amrix (time-released muscle relaxant) I became tolerant, so after 2 1/2 weeks, increased the dosage - then it happened again at about 4 weeks and I decided ENOUGH and quit on Tuesday. Wednesday morning - Ha! I had a freakin withdrawal! :shock: Hands shook, leg tremors, super anxiety attack. At least that is what I think it was since it was my first (rapid heartbeat, mental confusion, anxiety, fear, etc.). I was totally worthless-had to go home and go to sleep. There's a reason the Rx insert says it is for only 2-3 weeks but since my neuro didn't think it was a problem...... I really should call him about this. Maybe after I get the phrase 'drug-pusher' out of my head. :evil: He is only trying to help so I don't want to be mad at him, but drugs is all that he has had to offer lately.

Today I went to the Rheumatologist (I'm collecting specialist's business cards). :wink: At first he was bored - said I should go to this muscle expert he knows - then he does enough x-rays to make me glow for days and comes up with all this bad information about my tortured spine. Said it could very well be causing some of my 'problems'. Write me Rx's which I look at suspiciously - especially the Zanaflex. I may fill the Mobic 7.5 since I do get swelling and pain and try taking it at night so awakening isn't so brutal. I thought this might be helpful to some here - if they haven't had their spine totally investigated and have had injuries (auto collisions, falling accidents, sports accidents). He said if the cramps, fascics, etc. flare up again I should go see this NM specialist who may do a muscle biopsy. Don't know if and when I'll work up to that one.

Another thing, while I was waiting (3 hours! - I should send him an invoice!) I read the NY Times and wondered if anyone here feets this quote applies to the ALS/NMD fixation on this forum:
“The views of these belief systems are like a shark that has to be constantly fed,” Dr. Hoffman said. “If you don’t feed the delusion, sooner or later it will die out or diminish on its own accord. The key thing is that it needs to be repetitively reinforced.”
They were talking about something entirely different but the title is what caught my eye "Sharing Demons on the Web".
Don't be mad but I saw a connection.
Another article I read was about people re-learning how to walk and that got me thinking about re-learning good habits......
SO the end result is that I'm going to really go back to my old method which works pretty good - natural stuff, gentle physical therapy, and get back into my taiji and yoga practice. I got out of it when I was healing from the disc ruptures and haven't been the same since - just dabbling in it occasionally just doesn't work as well. I've been on the doctor specialist merry-go-round and it didn't go anywhere. I don't like the meds and none of them work well for me. I'm just going to have to try to retrain these spasming muscles and not let them hurt me. If they do, I'll threaten them with a muscle biopsy.

The real conclusion for me is that some of this is in our heads, if we believe ourselves sick then we are. If we go to doctors we must be sick. If we believe a twitch or cramp or spasm is sickness then it is. Bad cycle. I'll be less visible here but will definitely visit. I've been sporadic in my activity on the forum I know but you can't get rid of me that easily. :P Wishing all good health and recovery.
ImOK
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A Visit with a Rheumatologist after Weirdness

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