Still twitching after all these years

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Still twitching after all these years

Postby paul on September 3rd, 2003, 1:20 pm

Hi everyone,
I am new to this site I only found it a couple of weeks ago. My story starts back in 1996 nearly 8 years ago, one day I noticed my left leg just above the knee was twitching it went on for a few days off and on so being oblivious to any nasty diseases I went to my doc thinking I had a trapped nerve. when there he said it was best if he sent me to a specialist as he didn't know what it could be. As you can imagine this sent alarm bells ringing in me, so I started looking up in books to see what I might have, shock horror mnd, ms, me, it knocked me sick I was only just 30. Anyway my appointment came with whom until recently I thought was a neuro. By this time I was twitching all over my body even my ear drums were twitching, he did some tests mostly strength ones and told me I was ok and sent me on my way with no explination of what I had. I was just happy I was ok and thought they would go away in a few weeks but no they didn't.The years went by some days were better than others but they were always there, then only recently I was watching someone with MND on TV and I noticed they had twitching aswell as other problems. This started me thinking I wonder if I have it after all the doc didn't tell me what I did have. So I decided to go to the doc again and this time not get brushed off. Anyway he told me I was diagnosed with BFS and the specialist must have not told me. I went away happy but after a week it was playing on my mind BFS I had never heard of it so I went back and asked if I could have a second opinion and I would go private. So he booked me in to see the consultant neuro at Walton Hospital a doctor Humphrey but at a BUPA Hostpital and also put me on anti-depressents because he thought I could have depression ( I was not depressed I new I wasn't and through the tablets away after seeing the consultant) So a week later I went in to see him, he again did some tests, strength and reflexes and told me I was ok and had BFS and he would put his 25 year career on it and he didn't want me to have ant other tests EMG ect. He also told me he gets twitches to. But it was only after finding this site I could explain the other things I was experiencing BUZZING, PINS AND NEEDLES, NUMB FEELINGS. The neuro said it was proberly caused by stress and when I think back it was around that time I did have a lot of stress in my life a new baby and some one close dying, I also and still do have a very stressful job which I'm sure does not help and around the same time had a burst apendix. So I guess I will have it for the rest of my very long life and over the 8 years I have learned to live with it, but still think there is a way to cure it my latest thinking is that it could be liver related as a recent blood test showed I had a slightly high ALT reading and if your liver isn't working properly it can cause all sorts of problems I will let you know if I find or stumble on to anything.
bye for now
Paul.
P.S Get yourself a hobby it really does help. I play the guitar. :lol:
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Eight years

Postby KERRI on September 3rd, 2003, 1:39 pm

:roll: Eight years FOR GOD SAKE man, get on with your life, I wish it were eight years for me.

Kerri
Last edited by KERRI on September 9th, 2003, 11:00 am, edited 1 time in total.
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Postby Arron on September 3rd, 2003, 5:19 pm

:lol: I have to laugh Kerri, you sure know how to say it like it is.

Really, no disrespect to you paul. I know your fear is real, but 8 years? Get the heck outta here man! Go live life. You are SO way past the "time zone" of anything bad happening, it is comical. Again, I am not laughing AT you, OK? I just find it amusing how Kerri said her thoughts on the matter and how you could actually be worried about anything even remotely wrong with your body after 8 years have passed.

People that have just started twitching and haven't had any tests yet have need to worry TO AN EXTENT, and that is a remote extent, and an even more remote extent if they have no weakness or loss of muscle control.

You my friend, have no problems that you have described that would indicate anything other than BFS in a nutshell, and with 8 years of it under your belt, and two or three doctors clearing you of anything, I wouldn't waste my time on this forum. You've got other important things to do besides worrying about something you obviously don't have :-)

Hope you understand where Kerri was coming from, and why she made light of your sutuation. 8 years is way beyond any time limits of needing to wonder if what you have is benign or not. It's BFS for sure :-) Have a good one!
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Postby paul on September 4th, 2003, 3:51 am

Hi Arron, Kerri,
I don't mind Kerri's reply it made me laugh. I'm not really worried about BFS I'm more curious as to its cause and possible cure. I was only told I had it a few weeks ago after being in the dark for so many years. After 8 years of it I was in two minds wether or not to post on this site as you are right in saying a lot of people on here have only had it for a short while but after reading some of the articles on here I thought if helps just one sufferer come to terms with it, knowing that I'm still alive and twitching after all these years then it would be worth it. I will keep visting the site from time to time to see any latest developments.
Bye for now
Paul. :D
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for Kerri

Postby Twyla on September 4th, 2003, 2:20 pm

Kerri, Paul has given good advice, especially for you!

Get yourself a hobby.....find something to do that interests you and stop worrying about your body.

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Re: for Kerri

Postby KERRI on September 4th, 2003, 2:40 pm

Twyla wrote:Kerri, Paul has given good advice, especially for you!

Get yourself a hobby.....find something to do that interests you and stop worrying about your body.

Tywla



I just wanted Paul to know, that he does not have to worry, and I also appreciate people like Paul, he know I was kidding, I am a worry wart, but what are ya gonna do. You can either love me or hate me, but rest assured I will never lie to ya. I respect everyone on this forum and I do take every comment into consideration. I just have two sides the believe and the disbeliever.

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Postby DogBone on September 9th, 2003, 10:35 am

Funny how we block some ridiculous "swear" words, but some feel the need to take the Lords name in vain to get their point across. Unfortunate.

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SORRY

Postby KERRI on September 9th, 2003, 11:01 am

DogBone wrote:Funny how we block some ridiculous "swear" words, but some feel the need to take the Lords name in vain to get their point across. Unfortunate.

DogBone



ACTUALLY I THOUGHT IT WOULD BLOCK THAT

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Postby Josh on September 9th, 2003, 12:13 pm

ACTUALLY I THOUGHT IT WOULD BLOCK THAT

KERRI


So that makes it ok??

I agree with Dogbone. It's unfortunate.

PTL
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No

Postby KERRI on September 9th, 2003, 12:28 pm

Josh wrote:
ACTUALLY I THOUGHT IT WOULD BLOCK THAT

KERRI


So that makes it ok??

I agree with Dogbone. It's unfortunate.

PTL
Josh




No it does not, so go ahead and shoot me, I hope that makes ya feel better, I am the antichrist I admit it, the complete devil I am .


You Know Who :twisted:
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Postby DogBone on September 12th, 2003, 11:08 pm

C'mon Kerri - don't get bent out of shape. We are not suggesting you are an evil person or anything of the sort. I just hate to see His name written in that way.

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Postby Twitchman on October 15th, 2003, 3:11 am

DogBone wrote:I just hate to see His name written in that way.

DogBone


sorry to burst your bubble dog, but god doesn't have a penis. god isn't and wasn't a person.
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Postby fastpage on October 15th, 2003, 11:46 am

I think you know what Dogbone meant. You prefer to call him "it"?
No man has a right to live who has not in his soul the power to die nobly for a great cause. --Theodore Roosevelt.
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Let's not fight

Postby Sahti on November 2nd, 2003, 1:12 am

:roll: Hey all, I believe Paul came here for half of the same reasons we all did. He wants help... if we are having Fasciculations, our problem might be benign, but it's still real, and some people find it harder to deal with it than others. I am one of those people. I give Paul so much credit for being so strong through-out the years. Now we just need to start putting matches under these MD's rumps so that we can start feeling better, right? :)
I think you're all very wonderful for being so strong.

Paul, if you feel you need relief, or feel that your Fascics are being caused by something other than non-existance, you have to do some research. Fascics can be caused from Lyme. Have you been extensively checked for Lyme? (it's hard to detect, so don't give up) What about a liver problem? Or a toxic reaction from an anti-biotic?
Good luck.
"The most important things are the hardest to say, because words diminish them." - Stephen King
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