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Need some reassurance (countains ALS talk)

PostPosted: December 7th, 2004, 11:57 pm
by Saundra Hearn
I had a Dr. appt today, just some yearly stuff.. however while I was there I ran into a previous school teacher of my daughter of several years ago, and she was in a wheelchair and..... you can probably guess whats coming next she has ALS she's probably my age or so I'm 44, I am taking this harder and it is causing some doubts in me, and I had been doing so well, I don't know any details other then she has ALS... just feeling real down. It just seems since I started this stupid twitching I'm hearing of more people with it.
Thanks for listiening.


PostPosted: December 8th, 2004, 12:10 am
by Stephanie
I know how you feel. My friend had it in her late 20's right after having a baby. Hard to get out of your mind when it's someone you know. It's so unfair that they got it so young, but very unusual too. I knew 2 other people who were diagnosed w/als but after a few yrs it was discovered that they had Lyme and got better w/treatment. I never heard much about this disease till I started twitching, now It seems like I hear or read about it often. It's depressing to see it first hand. Try not to dwell on it too much.

PostPosted: December 8th, 2004, 12:36 am
by Barb916
I know what you mean. I had never even heard of A** before I started twitching. Then it was like,'s everywhere. I get mail about it, the Jennifer Estees movie came on TV, I heard about it on the radio etc. I think that the info was probably always out there but now that we are experience the twitching, we are much more aware of it.

It's like when I bought my mini-van a few years ago. My husband and I chose "harvest gold" for the color thinking it was a unique color. Do you know once I set foot in that thing I must have seen 20 gold vans a day from that point on!!!

I'm very sorry to hear about your friend.


PostPosted: December 8th, 2004, 3:00 pm
by Saundra Hearn
Barb and Stephanie,

Thanks, this is such a hard lesson in life to deal with! After seeing this friend, it also makes me appreciate what health I do have, I was looking for a parking space after seeing her, and as usual I was looking for the one nearest to the front and then I thought of her, and how she would probably love to be able to walk from the back of the parking lot! I don't know, it just kinda changes your way of thinking I guess. I just don't want to go back to the fear I was having in the begnining :cry: This probably dosen't make alot of sense but it helps to put your feelings into words.

PostPosted: December 8th, 2004, 4:23 pm
by Ava

I am so very sorry to hear about your friend. I think it is important to reach out when something like this upsets you and I'm glad you did. It's funny, but your post really touched me because I too am nearly as old as your friend and having dealt with the ALS fear makes me so sympathetic to what she must be going through. We are all so lucky to have our health and (for those of us with kids) to be actively raising our children with a nice future on the horizon. I will pray for your friend.