Survey

[c4110djh]

I was wondering if a few of you wouldn't mind answering some possibly related questions about your health with regard to BFS. I am curious to see if there might be a common thread.

1. Did you notice "muscular" pain or fatigue prior to the twitching? Just pain that could be explained, i.e., leg pain from a former break; neck & back pain from 2 auto accidents; have always felt some fatigue. Also suffered severe migraines.
2. Did you have an illness prior to the first event? I "passed out". Doctors felt it was from stress, lack of sleep, and dehydration, (long stressful cross country trip). Never "felt the same" after that and symptoms started shortly thereafter.
3. Had you had any recent surgery? No
4. Had you over used the muscles in the affected area prior to the twitching? No
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Yes
6. If so, do you take any medication for the above? Nexium
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. Yes
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? Hard to say, but definitely the migraines are more intense---not sure if they'e a part of BFS or not.
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Yes, 3 relatives with RA, 1 with MS
10. Do you suffer from allergies or any other minor autoimmune disorder? Yes, allergies
As a physician, I am curious to see if there is any correlation. There is no pressure on answering this but I would appreciate your thoughts.
Thanks,
Best wishes,
Kit

[skunktail]

1. Did you notice "muscular" pain or fatigue prior to the twitching? YES

2. Did you have an illness prior to the first event? NO BUT VACCINES FOR ILLNESS 3 WEEKS PRIOR

3. Had you had any recent surgery? NO

4. Had you over used the muscles in the affected area prior to the twitching? NO

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
IBS YES,
REFLUX YES,
ESPOPHAGITIS NO - BUT REFLUX IN LARYNX, HEARTBURN YES
CROHNS DISEASE/CELIAC DISEASE NO

6. If so, do you take any medication for the above?
YES PRIOLSEC FOR REFLUX, DID TAKE ZOCOR FOR 20 YEARS BUT AM OFF NOW, DID TAKE CIMENITINE FOR PRILOSEC

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
NO
-

10. Do you suffer from allergies or any other minor autoimmune disorder?
- Allergies to PENNICILLIN, SULFA DRUGS, AND IODINE BASED CONTRAST, ZOCOR WHICH CAUSED NEURALGIAS AND NOW MANY VACCINES

[charlene]

1.no
2.mild viral illiness
3.no
4.no
5.IBS,reflux
6.yes,but after BFS symptoms
7.no
8.sometimes
9.daughter w/life threatening allergies and asthma.Brother w/BFS
10.mild allergic symptoms;stuffy/runny nose,sneezing.RAST panel positive for 31 of 35 items.Many drug sensitivities

[edado69]

1. Did you notice "muscular" pain or fatigue prior to the twitching? : deep aches shortly prior the onset of fasics
2. Did you have an illness prior to the first event? : gastroenteritis
3. Had you had any recent surgery? : no
4. Had you over used the muscles in the affected area prior to the twitching? : trainingbut less than my usual!
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? : no
6. If so, do you take any medication for the above? : no
7. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) : no
10. Do you suffer from allergies or any other minor autoimmune disorder? no

[dtmguy]

1. Did you notice "muscular" pain or fatigue prior to the twitching?
No. Mine started after a first dose of an SSRI

2. Did you have an illness prior to the first event?
No.

3. Had you had any recent surgery?
No

4. Had you over used the muscles in the affected area prior to the twitching?
No

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
GERD, IBS-C, and nutcracker esophagus starting about 6 years prior. My GERD attacks are in sync with my twitching--they both peak together.

6. If so, do you take any medication for the above?
Yes. Prilosec or ranitidine, depending on severity of the moment.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Hashimotos hypothyroid--mother
Alopecia areata--son

10. Do you suffer from allergies or any other minor autoimmune disorder?
Allergies to most inhalants (ragweed, grasses, dust mites)

-Dave

[TattooedMommy]

1. Did you notice "muscular" pain or fatigue prior to the twitching? Well, the first time a year ago NO, this time before hand I was pregnant and I was fatigued prior to twitching I dont know if they relate.
2. Did you have an illness prior to the first event? Ive had chronic sinus issues since pregnancy..Ughhh.
3. Had you had any recent surgery? Nope
4. Had you over used the muscles in the affected area prior to the twitching? Just the belly I think.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? MVP, IBS
6. If so, do you take any medication for the above? Klonapin
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. YES, I took DEPO PROVERA then PROGESTERONE when I First got pregnant!
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? Havent had a period. Just pregnancy.
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Severe Allergies, Yes.
10. Do you suffer from allergies or any other minor autoimmune disorder? Allergies, Yes

As a physician, I am curious to see if there is any correlation. There is no pressure on answering this but I would appreciate your thoughts.
Thanks,
Best wishes,
Kitkit
Saint
I'D LIKE TO HEAR SOME OF YOUR FEED BACK O MY POST TOO ABOUT THE SURVERY- SEE IF YOU THINK ANY OF THIS CORRELATES W/ THE TWITCHING!!! THANKZ.

Posts: 513
Joined: Thu May 3rd, 2007 3:07 pm
Location: USA
Private message

[Pygasus]

1. Did you notice "muscular" pain or fatigue prior to the twitching? NO
2. Did you have an illness prior to the first event? NO
3. Had you had any recent surgery? NO
4. Had you over used the muscles in the affected area prior to the twitching? NO 5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Reflux sometimes, depending on food types
6. If so, do you take any medication for the above? NO
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) NO10. Do you suffer from allergies or any other minor autoimmune disorder? Allergies (pet hair, pollen, grass)

[MC]

Did you notice "muscular" pain or fatigue prior to the twitching? NO
2. Did you have an illness prior to the first event? NO
3. Had you had any recent surgery? NO
4. Had you over used the muscles in the affected area prior to the twitching? NO
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Reflux sometimes, depending on food types - NO NONE
6. If so, do you take any medication for the above? NO
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. NO
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? NO
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) YES - ALLERGIES / ASTHMA
10. Do you suffer from allergies or any other minor autoimmune disorder? Allergies (pet hair, pollen, grass) NO

In my case it started when I was going through a very emotional and stressful period.

[Chiefgriz]

1. Did you notice "muscular" pain or fatigue prior to the twitching? A little, I have a lower back issue which I think or thought was the cause. It will require fusing the last 2 vertebrate and tailbone together
2. Did you have an illness prior to the first event? no
3. Had you had any recent surgery? no
4. Had you over used the muscles in the affected area prior to the twitching? no
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? reflux
6. If so, do you take any medication for the above? yes, several prescriptions for the past 15 yrs. I switched from nexium to omeprazole a couple of months before the twitching started. Interestingly enough, I saw a post by someone from a couple of years ago that said he stopped taking this med and his symptoms dropped down next to nothing. He started taking it again, and symptoms got worse. Placebo affect? Who knows. I didnt take mine yesterday to test this theory, and my symptoms were significantly milder when I woke up this morning. I'll see if there actually is any difference over the next few days.
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) no
10. Do you suffer from allergies or any other minor autoimmune disorder?
I dont know. My ana titer was 320 and sediment fate was 16. Nuero said all other antibody test were normal (I had 10 to 20 different antibody test done, along with all the other ones from the specialist)

[[email protected]]

1. Did you notice "muscular" pain or fatigue prior to the twitching?
If you mean onset of twitching, YES! My calves ached terribly for about 10 days. When that subsided, they started "bubbling"
2. Did you have an illness prior to the first event?
I had cellulitis in my upper thigh 1 month prior. It was treated as MRSA (as a precaution) and I took 2 antibiotics for treatment.
3. Had you had any recent surgery?
no
4. Had you over used the muscles in the affected area prior to the twitching?
Again, if you mean onset of twitching, then yes. I had been spinning regularly for 1 year, quit abruptly, pain in calves, then twitching.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
Diverticulitis?
6. If so, do you take any medication for the above?
No
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
No
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
no
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Mother - Psoriasis
10. Do you suffer from allergies or any other minor autoimmune disorder?
None known. Very sensitive to cleaning chemicals, fumes.

[May1009BFS]

[quote="[email protected]"]1. Did you notice "muscular" pain or fatigue prior to the twitching? Not that I remember
2. Did you have an illness prior to the first event? None
3. Had you had any recent surgery?
no
4. Had you over used the muscles in the affected area prior to the twitching? I had run a marathon three weeks prior to the twitching.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
none
6. If so, do you take any medication for the above?
No
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
none
10. Do you suffer from allergies or any other minor autoimmune disorder?
I am allergic to cats, grass and mold.

[sylvia]

1. Did you notice "muscular" pain or fatigue prior to the twitching? No
2. Did you have an illness prior to the first event? No
3. Had you had any recent surgery? No
4. Had you over used the muscles in the affected area prior to the twitching? No
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? No
6. If so, do you take any medication for the above? No
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. I was at the very beginning of my pregnancy when i started twitching
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) My mother has Sjögren Syndrome ( autoimmune disorder)
10. Do you suffer from allergies or any other minor autoimmune disorder? No

[dreadpirateroberts]

I just came across this survey. Are you going to publish a summary?

1. Did you notice "muscular" pain or fatigue prior to the twitching? No
2. Did you have an illness prior to the first event? My wife said I had a flu bug about a month before this started, but I don't remember it, but I will say yes.
3. Had you had any recent surgery? Had my upper wisdom teeth removed about two months before BFS.
4. Had you over used the muscles in the affected area prior to the twitching? No.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? No.
6. If so, do you take any medication for the above? NA
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. NA
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? NA
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) No.
10. Do you suffer from allergies or any other minor autoimmune disorder? Springtime tree pollen allergies.

[Antne9]

24 years old/male


1. Did you notice "muscular" pain or fatigue prior to the twitching?
Fatigue, but probably right as the twitching started.

2. Did you have an illness prior to the first event?
Maybe a cold, but nothing major.

3. Had you had any recent surgery?
No

4. Had you over used the muscles in the affected area prior to the twitching?
No

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
Reflux and celiac

6. If so, do you take any medication for the above?
Aciphex/20 mg/day

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
-

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
-

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
Grandmother-Asthma

10. Do you suffer from allergies or any other minor autoimmune disorder?
Yes, seasonal.

[aussie sufferer]

1. Did you notice "muscular" pain or fatigue prior to the twitching?
Fatigue, big time ( chronic anxiety related). that is about all

2. Did you have an illness prior to the first event?
no

3. Had you had any recent surgery?
No

4. Had you over used the muscles in the affected area prior to the twitching?
No

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
IBS, high BP

6. If so, do you take any medication for the above?
IBS-anti spasmodic when bad,probiotics. 'Anti ulcer' medication-when bad. BP-yes beta blockers.

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.
-

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?
-

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
father-IBS?? (gut issues)

10. Do you suffer from allergies or any other minor autoimmune disorder?
No not really