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AboutBFS.com • View topic - Survey

Survey

Site Comments / Problems / Suggestions

Moderator: JohnV

Survey

Postby kit on May 14th, 2007, 3:33 pm

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Postby WitchyTwitchy on May 14th, 2007, 3:38 pm

Smiles,

Vanessa
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Postby Capital H on May 14th, 2007, 3:58 pm

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Postby Cardu on May 14th, 2007, 7:37 pm

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Postby shannonem on May 14th, 2007, 8:20 pm

*--Shannon--*
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Postby Mark S on May 14th, 2007, 10:37 pm

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Postby wjjw on May 15th, 2007, 6:31 am

1. Did you notice "muscular" pain or fatigue prior to the twitching? No.
2. Did you have an illness prior to the first event? Major ear infection.
3. Had you had any recent surgery? No.
4. Had you over used the muscles in the affected area prior to the twitching? No.
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Abnormally high tTG but no celiac.
6. If so, do you take any medication for the above? No.
7. N/A
8. N/A
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Yes.
10. Do you suffer from allergies or any other minor autoimmune disorder? Yes.
A knowledge of the existence of something we cannot penetrate, of the manifestations of the profoundest reason and the most radiant beauty, which are only accessible to our reason in their most elementary forms--Albert Einstein
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Postby stevepaul on May 15th, 2007, 6:41 am

None of the above.
"The wonder of the world, the beauty and the power, the shape of things,
their colours, lights and shades; these I saw. Look ye also while life lasts."

Denys Pitchford Watkins
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Postby Christina on May 15th, 2007, 9:43 pm

Life is short. Forgive quickly. Kiss slowly.
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Postby Floater on May 15th, 2007, 11:11 pm

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Postby Phunny Phil on May 18th, 2007, 8:17 am

1. Did you notice "muscular" pain or fatigue prior to the twitching?
no

2. Did you have an illness prior to the first event?
no

3. Had you had any recent surgery?
no

4. Had you over used the muscles in the affected area prior to the twitching?
no

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease?
none diagnosed, but have occasional reflux

6. If so, do you take any medication for the above?
no

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses?

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc)
no

10. Do you suffer from allergies or any other minor autoimmune disorder?
no
"Never let the fear of striking out get in your way." - Babe Ruth

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Survey Reply #2 * Survey Links

Postby metta on May 20th, 2007, 11:26 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching? Spinal injury preceded my first major episode.

2. Did you have an illness prior to the first event? A major episode of shingles, triggered by the spinal injury, preceded the onset of chronic BFS.

3. Had you had any recent surgery? No

4. Had you over used the muscles in the affected area prior to the twitching? No

5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? NO

6. If so, do you take any medication for the above? NA

7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. Bioidentical hormones for a brief period of time, but only after the BFS began.

8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? Post-menopausal

9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) Father: Rheumatoid Arthritis -- Sister: Secondary Raynaud's

10. Do you suffer from allergies or any other minor autoimmune disorder? I have asthma and chemical sensitivies as a result of a toxic mold and chemical exposure 3 years ago.

FWIW, there are a few other surveys posted here:
` http://nextination.com/aboutbfs/forums/ ... c.php?t=79
` http://nextination.com/aboutbfs/forums/ ... php?t=8252
` http://nextination.com/aboutbfs/forums/ ... php?t=7564

...and I've informally identified several potential common factors based on my initial review of the forum posts several months ago: http://nextination.com/aboutbfs/forums/ ... ght=#58573

Hope this helps, Kit! :D
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Postby out of my mind on May 26th, 2007, 7:17 pm

cindy

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-Winston Churchill
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Postby Ginlyn on May 28th, 2007, 11:04 pm

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Postby Thumpandbabe on June 1st, 2007, 8:27 pm

1. Did you notice "muscular" pain or fatigue prior to the twitching?
Was walking up my basement steps one day and thought I pulled a muscle in my calf. What a horrible pain. A week later, the twitching began.
2. Did you have an illness prior to the first event?
No
3. Had you had any recent surgery? No
4. Had you over used the muscles in the affected area prior to the twitching? No
5. Do any of you suffer from: IBS, reflux, esophagitis, heartburn, crohns disease/celiac disease? Reflux
6. If so, do you take any medication for the above? No, control it with diet.
7. Females - are you on or have you been on any hormone replacement therapy or oral contraceptives for an extended period of time. No
8. Females - do you notice if your symptoms become worse or more pronounced prior to your period/menses? No
9. Does anyone in your immediate family suffer from an autoimmune disorder? (severe allergies/asthma, MS, Lupes, Myasthenia Gravas, Rheumatoid arthritis etc) No, thank god.
10. Do you suffer from allergies or any other minor autoimmune disorder? No
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