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BFS Survey

PostPosted: September 23rd, 2002, 3:54 pm
by Guest
Hi fellow BFSers,
I was thinking it might be interesting to start a survey about our individual experiences with BFS. It's totally unscientific, but maybe we can create a valuable pool of information for new BFS sufferers.
Please answer any of the following questions you feel are important.

1. Age
2. Gender
3. Race
4. Length of time you have been twitching?
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
6. Do you have any Anxiety or OCD disorders?
7. Any other medical conditions that may be connected to BFS?
8. Did you go through the typical ALS scare so common on this forum?
9. Body region most affected?
10. Most unusual area affected?
Feel free to add more

1. 31
2. Male
3. White
4. 11 months
5. It started right after I had the flu.
6. Anxiety Disorder
7. Mitral valve prolapse has been linked to anxiety. Maybe it is an aggrivating factor.
8. Most definitely
9. Calves
10. Eardrum

PostPosted: September 23rd, 2002, 4:14 pm
by dwl
1. 40
2. M
3. caucasian
4. 2 months
5. No
6. No
7. No
8. Big time
9. Calves
10. eardrum

I've also noticed that strong coffee makes me twitch more - anyone else have this?

PostPosted: September 23rd, 2002, 4:15 pm
by Paranoid
1. 37

2. female

3. white

4. 3 1/2 months

5. Had pains in lower chest/ upper abdomen (?esophageal spasms) that kept me awake which is when I first noticed the beginning of the twitches

6. Believe I have both anxiety and most definitely OCD though not formerly diagnosed. ( more obsessions than compulsions)

7. No. however I am a Lab Tech> I think a medical background gives you too much knowledge sometimes and to someone with obsessions too much knowledge can be a dangerous thing!

8. Havnt got to see a neuro let so YES! Definitely going through the A.L.S. scare & hope it turns out only to be a scare.

9. calves, particularly the right one.

10. front teeth/ chin

PostPosted: September 23rd, 2002, 4:35 pm
by Jake_the_twitch
1. 39
2. Male
3. White
4. 1 year, 24 days
5. Stress???
6. Maybe, definitely after the twitching started.
7. Erosive Gastritis, MVP
8. Did and somedays still do
9. Calves, thighs
10. Nothing is unusal as everything as twitched at sometime.

PostPosted: September 23rd, 2002, 6:36 pm
by JimK
1) 41

2) Male

3) Caucasion

4) Almost 3 years.

5) I was taking lots of Vicodins (ADDICTED) due to a back problem I had/have. No longer take any pain or anxiety meds. Had a back operation about 7 years ago (L5-S1). It all started with a loss of strength in my thumb, which I eventually regained, when I was taking alot of Vicodins that day & probably even had a few beers (I quit drinking since then, I'm an Alchoholic).

6) Was diagnosed 7 years ago with anxiety (shortness of breath, light-headedness). Doctors put me on Paxil, which I stopped right away because I could not tolerate it. Didn't want to try anymore drugs after that.

7) Was diagnosed with colitis (inflammation of the colon) about same time. I have to take medication for the rest of my life to prevent flare-ups. Also had a long term sinus infection, something I never would get, & was taking antibiotics.

8) Big time scare. 1st was sared it was MS, then found out about ALS. MS doesn't even scare me now.

9) Arches of the feet wither, twitch & pop 24/7. Calves 24/7.

10) Arches of feet. They never stop.

I don't know how to get rid of that smiley face on #8. Doesn't show up when I edit my post.

PostPosted: September 23rd, 2002, 6:49 pm
by Twitcher
Wow, glad to see this is getting a descent response. (I'm the author - helps if I would have logged in before posting :oops: ) I'm going to store this info in a database (not the usernames, just data!!!) and I'll keep updating somewhat regularly with the compiled results. I hope this helps some of the new people who stumble upon this great site.


PostPosted: September 23rd, 2002, 7:31 pm
by david..
1. 28
2. Male
3. White
4. 6 weeks
5. Not sure
6. No
7. No
8. No
9. Calves
10. Just all over!!

PostPosted: September 23rd, 2002, 8:11 pm
by ppoo
1. 35
2. Female
3. White
4. 4 months
5. At that time I was taking Zoloft for approx. 1 yr. when I started
twitching, so I went off the Zoloft & have been twitching ever since.
One month prior to the twitching I had a super sinus infection.
6. Anxiety for sure now.
7. No
8. Yes!!
9. All over fascilations
10. Buttocks


PostPosted: September 23rd, 2002, 8:11 pm
6 months
stress/streep throat
big time

PostPosted: September 23rd, 2002, 9:08 pm
by michelle
1. 24
2. Female
3. White
4. Widespread twitching since June 2002 (4 months)- had occasional twitches here and there for years when stressed or lack of sleep etc.
5. I was very stressed out as we were purchasing and getting ready to close on our first home. Don't know if this had anything to do with it. I also had Rocky Mountain Spotted Fever 2 years ago which is known to cause neurological side effects, but very doubtful it's caused mine.
6. Possibly. I am a very anxious/worrisome person. At times my fear consumes me.
7. Not to my knowledge
8. YES!
9. Arches of feet twitch 24/7. Legs are almost always constant as well.
10. Can't really say as I sware I've twitched every single place that is possible & some I didn't even think could twitch ;).

Feel free to add more:

I also have parathesia of all sorts such as crawling, prickling, vibrating etc. Also have muscle pain, joint pain & muscle cramps.


PostPosted: September 23rd, 2002, 9:12 pm
by Debbs
1. 42
2. Female
3. White Australian
4. 6 years
5. Twitches started after a Neuro visit with a clean MRI :shock:
6. Stress and Anxiety definately
7. Post Nasal Drip 10 years
8. Yes
9. Calves
10. My jaw is the weirdest twitch I have had

Great idea to take a survey and get a visual picture..


PostPosted: September 23rd, 2002, 9:30 pm
by concrete
looks like 10 for 10 in calvas...
also looks *beep* lots of stress, ocd.
drs could be right about all of us.
long term stress could be root of the twitchers problems.


PostPosted: September 23rd, 2002, 11:41 pm
by Snowblind
almost 5 months
intense stress
anxiety/ few panic attacks/ restless legs that went away
you bet, even got an appt. at mayo scheduled
calves/ feet
hate the throat twitches/ ear drum

PostPosted: September 24th, 2002, 1:31 am
by Arron
1. Age

2. Gender

3. Race
sometimes on the weekends in one of our cars.. oh!! You mean THAT race... white, caucasion, American, Heinz 57....

4. Length of time you have been twitching?
About 18 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
Hell... I'm always sick with something, so who knows? I did have a bad sinus infection about 3 months before all of this started. It wa sso bad, I had an MRI to make sure my noodle was OK. They found bone swelling in my sinus area. I was put on some really heavy antibiotics with BIG doses for about a month... so who knows? Maybe it was a "trigger" event and maybe it wasn't...

6. Do you have any Anxiety or OCD disorders?
Are you kidding? Anxiety attacks since I was a kid and Generalized Anxiety Disorder for ever. Compulsions? I pick my nose a lot.. is that considered a compulsion? :-) ha-ha!! It's a guy thing...

7. Any other medical conditions that may be connected to BFS?
who knows? I'm always battling something at one time or another...

8. Did you go through the typical ALS scare so common on this forum?
My twitches came first, then after looking-up "twitches" in a PDR, the s*#t pretty much hit the fan! I pretty much lost it and was a total mess and couldn't function.

9. Body region most affected?
All over, EXCEPT my calves! I rarely get any twitches in my feet or calves, so there goes that theory....

10. Most unusual area affected?
Let's just say this site will delete all of the cool areas I have had twitches if I write them down... Let me put it this way. There isn't a place on my body that hasn't twitched...

Feel free to add more
The cause? It ain't age, stress, anxiety, lack of, or too much of any one thing (chemicals, blood chemistry, vitamins, minerals, metals, etc.) or anything like that, although stress and anxiety ARE big factors of symptoms. Possibly a virus that invades the brain or CNS or maybe just as what most neuro's claim, "irritated muscle linings" or "irritated nerve endings". All I know is that it's benign and that's good enough for me... it could have been worse.

PostPosted: September 24th, 2002, 6:24 am
by Nigel555
1) 40

2) male

3)white. UK

4) 1 year

5) it started after my arms, hands and wrist started to ache and they are all still aching now

6) Stress and Anxiety all the time

7) I think may be to do with my aching muscles cos I also have started to jerk as times when I'm relaxing

8) Most definitely in a big way

9)hard to say as I gets them all over and all the time

10) eye lid for me

Nigel (Cardiff, UK)