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PostPosted: October 15th, 2002, 6:25 am
by frobozz
1. 49
2. Male
3. white
4. 20+ years
5. Don't remember anything.
6. Nope
7. Don't think so.
8. Not really. Had a PN scare, but not ALS.
9. Calves and Insteps twitch constantly
10. Occasional twitches elsewhere, nothing particularly unusual.

PostPosted: October 16th, 2002, 4:29 pm
by javens
Posted: Mon Sep 23, 2002 3:54 pm Post subject: BFS Survey

1.22
2. male
3. white
4. 3 1/2 months
5. I had horrible bronchitis 3 months before and was taking flagyl for diarrhea.
6. Never been diagnised but I think that I definitely have GAD and i'm a bit of a hypochondraic.
7. Muscle pain?
8. YES! ALS, MS, Muscular dystrophy...you name it!
9. thighs
10. butt :oops:

PostPosted: October 31st, 2002, 10:43 pm
by Guest
bump

PostPosted: November 1st, 2002, 1:19 pm
by MariaE.
1. 41

2. Female

3. Cuban/American

4. 8 months

5. No, although I had been obsessing over health issues for a while before I started twitching.

6. Generalized anxiety disorder and mild OCD.

7. No. I've been suffering of IBS and reflux for about three years, but I don't think this is related to the twitches.

8. Of course!!! As soon as I went on the internet looking under twitches and found ALS - my first worried was actually MS (I have an aunt who died of the disease at age 43) and then ALS. Had the biggest anxiety attack, couldn't use my right hand the next day!!

9. Started in the calves - especially the left one. Now have it all over except the tongue - that hasn't happened.

10. Some unmentionable private part!! :oops:

It is funny that everybody here seems to suffer of some anxiety or OCD - especially health related!!!

PostPosted: November 1st, 2002, 2:37 pm
by paranoid
MariaE & others,
I've noticed you and a lot of others mention IBS & reflux. I have IBS and esophageal spasms. I also had them for about 3 years. Maybe there is a connection.
Sandy

PostPosted: November 1st, 2002, 9:07 pm
by MariaE.
Sandy:
Yeap! I noticed it too - also, most of us answering the survey seem to suffer either from anxiety or OCD, maybe everything is related. Then again, maybe not!
MariaE.

PostPosted: November 2nd, 2002, 1:27 am
by Nigel555
I also have IBS & reflux and have done for years, well it does make you wonder

Survey

PostPosted: November 4th, 2002, 8:15 am
by Souris
1. 29
2. Female
3. Caucasian
4. 5 months
5. It started after a very stressful/depressed period with lots of worrying.
6. Anxiety/Hypochondria :wink:
7. Mitral valve prolapse, but that was discovered 4 years ago.
8. A lot.
9. Calves, arms, back
10. Tongue/Abdominal muscles

PostPosted: November 8th, 2002, 2:25 pm
by Wittesea
1. Age
27

2. Gender
F

3. Race
White

4. Length of time you have been twitching?
4 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
I have had some pretty severe ear infections since I was a baby, I also had pancytopenia in Jan '02 as a reaction to a prescription medicine, the twitches started mostly after that, and get worse everytime I have another ear infection


6. Do you have any Anxiety or OCD disorders?
yes, GAD, panic disorder, bi-polar, very slight OCD


7. Any other medical conditions that may be connected to BFS?
diagnosed by GP as having Essential Tremor, MVP,


8. Did you go through the typical ALS scare so common on this forum?
not yet.....


9. Body region most affected?
legs, left hand, jaw, feet, face


10. Most unusual area affected?
breast, rear-end, some other female parts... :oops:


Feel free to add more
I have never had the chicken pox or herpes or any other serious viral infections. I do get weakness and major twitching after exercise, especially in my legs and hips after being intimate with my hubby
:oops:

PostPosted: November 12th, 2002, 4:46 pm
by jblack
1. 28
2. Male
3. Caucasian
4. About 6 weeks
5. Had headaches and nausea right before it started, got worked up about that...
6. Never been diagnosed, but I've clearly become a hypochondriac. I'm not anxious about much else.
7. Nope.
8. Still going through the scare. This forum helps, and hopefully the neuro appointment (next week) will help too.
9. Calves (just below the calves, back of the lower legs), arches of feet.
10. Tongue

Thank you all for sharing...

Survey

PostPosted: November 12th, 2002, 5:39 pm
by Emily
1.25 years
2.Female
3.Caucasian
4.Fifteen years
5.No known illness at time (was age 9)
6.Some anxiety issues (escalator phobia)
9.In the area around my knees
10.Muscle inside shoulder blade joint area; nose

PostPosted: November 20th, 2002, 8:39 pm
by Guest
Posted: Mon Sep 23, 2002 3:54 pm    Post subject: BFS Survey
------------------------------------------------------------------------
Hi fellow BFSers,
I was thinking it might be interesting to start a survey about our individual experiences with BFS. It's totally unscientific, but maybe we can create a valuable pool of information for new BFS sufferers.
Please answer any of the following questions you feel are important.

1. Age 36
2. Gender male
3. Race ahh.. cacausian
4. Length of time you have been twitching? close to 8 month
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
big time flu. my body was aching for some 7 days
6. Do you have any Anxiety or OCD disorders?
yeah... mildly but undeniable
7. Any other medical conditions that may be connected to BFS?
no
8. Did you go through the typical ALS scare so common on this forum?
Yes
9. Body region most affected?
in the begin the calves. these days it is hard to say since I twitch at random.
10. Most unusual area affected?
must be the throat , chin and eardrums

BSF Survey Reply

PostPosted: November 29th, 2002, 1:29 pm
by Kannie
1. 43
2. Female
3. Caucasian
4. On & off for 12 years; worse in winter
5. Maybe birth of child
6. no
7. no
8. not really
9. mostly in limbs but very random'
10. legs, arms, and around the joints

BFS Survey

PostPosted: November 30th, 2002, 3:30 pm
by Ms Enigma
1. Age - 37

2. Gender - Female

3. Race - White

4. Length of time you have been twitching? About 2 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection) - Had extreme fatigue and a herpes simplex outbreak when symptoms became severe.

6. Do you have any Anxiety or OCD disorders? I have GAD and panic attacks which are mostly under control with Zoloft.

7. Any other medical conditions that may be connected to BFS? - I have Undiffentiated connective tissue disease which is an auto-immune disorder similar to lupus.

8. Did you go through the typical ALS scare so common on this forum? - At first I panicked, but I got it under control fairly quickly. I have an appointment with neurologist, and I've decided not to obsess about it until I see what an expert says.

9. Body region most affected? - All over twitching but legs, arms, and shoulders are where the majority occur.

10. Most unusual area affected? - Face. I also seem to be having hemifacial spasms.

Feel free to add more
My internest is sending me to a neurologist out of the local area. She is also having me tested for lyme disease and she mentioned the possibility of benign fasciculations. I asked her about ALS and she said that is a something that would have to be ruled out, but with all the cases she has seen, they have not presented themselves in this way. (I have no weakness)

PostPosted: December 3rd, 2002, 4:00 pm
by Guest
1. Age
29

2. Gender
M

3. Race
White

4. Length of time you have been twitching?
3.5 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
Nope, stressing over having decompression sickness. Having some weird symptoms following a dive. Twitching started 8 days later. FYI..I did not have DCS.

6. Do you have any Anxiety or OCD disorders?
Didn't think so, but I wonder now.


7. Any other medical conditions that may be connected to BFS?
Nope


8. Did you go through the typical ALS scare so common on this forum?
Yup, just getting over it. At this point, not much I can do about whatever it is that is causing the twitching - whether it is BFS, ALS, or something viral in the CNS (what my doc thinks). So, I just let it happen and not worry about it too much any more. Don't get me wrong, it is still annoying. Although, lately, sometimes I kind of enjoy it - weird.


9. Body region most affected?
Calves - nonstop 24/7. Everywhere else chimes in every so often


10. Most unusual area affected?
Ears, Butt.