BFS Survey

Post your questions about BFS here

Moderators: JohnV, Arron, garym

Postby cramerb535 on November 5th, 2003, 11:33 pm

1. 24
2. Male
3. Caucasian
4. 2 Months
5. Stress
6. Generalized Anxiety Disorder
7. No medical conditions
8. First MS then ALS
9. Calves and thighs
10. Nowhere unusual
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Postby shammontree on November 8th, 2003, 10:21 pm

Age: 35
Gender: Male
Race: Caucasian
Length of time: Since 1997

Trigger: I had a sever upper respiratory infection in 1996.
I was put on Steroids for awhile. It took 3 months to clear up.
I noticed the twitching after that episode.

I have no anxiety or OCD's.

I have cramps, myoclonus & spasams occasionally.

Yes, I went through the typical ALS Scare?
I came up with three possibilities: Parkinsons, MS & ALS.
I did not know about BFS in the beginning. I was
relieved that I had BFS. My Neuro ruled out
MS with an MRI of my entire spine and ALS with an EMG.
He ruled out Parkinsons with a confident statement.
He said, "I know you do not have Parkinsons."

My fasciculations are all over my body.
Everymucsle in my body has twitched at one time
or another. The most unusual area affected is my
buttocks.

I have accepted my condition. I lead a happy
healthy life. I take no medications for my condition.
I eat a healthy diet and exercise regularly.
I have more good periods than bad. Currently,
I seem to be in a down phase but it does not keep
me from enjoying life.

I thought about making my own web site for BFS.
I did a search on the internet and found this site.
Why re-invent the wheel, right? So, I would like to
hang out here and help people get through what we
went through. :D

Rgds,
Scott
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Postby Florian on December 8th, 2003, 12:14 pm

Anonymous wrote:
1. 40
2.
3. Race
4. Length of time you have been twitching?
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
6. Do you have any Anxiety or OCD disorders?
7. Any other medical conditions that may be connected to BFS?
8. Did you go through the typical ALS scare so common on this forum?
9. Body region most affected?
10. Most unusual area affected?
Feel free to add more

1. 40
2. Male
3. White
4. 4 months
5. It started after a long heavy period of stress, than fear of ms because had some numbness-feeling in the face and than skin burning at arms, shoulders and legs. Both symptoms are gone after some weeks and than twitching startet
6. Anxiety Disorder
7. no
8. yes
9. 80%calves, 10%thighs,5%chest&shoulder,5%everywhere
10. face and neck
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Postby thetwitchkid on December 8th, 2003, 2:05 pm

1) 35
2) Male
3) White
4) 8 months
5) Started after problem with my mid/lower back. Twitching started after back was improving after two months of chiropractor visits. Initally thought Chiropractor caused it.
6) No previous "clinical" Anxiety or OCD
7) None known
8) YES! YES! YES! Almost a neurosis about Twitching/MS/ALS
9) thighs 50% arms 40% calves/other 10%
10) Stomach area
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bfs survey

Postby Cooper on January 2nd, 2004, 8:18 am

1. 26
2. Male
3. White
4. 1 year although occurs very rarely now once i realised it was not MND after 6mths.
5. Don't know
6. None
7. None
8. Yes, BIG TIME!
9. Hands would cramp almost daily and ache when undoing lids to jars,etc.
Fatigue in limbs caused by constant twitching at various randomised locations. Also hot spots where it would occur in one location for days.
10. All areas affected except face.

This completely ruined my life for 6mths and did'nt tell anyone about my symptons, i split up with my girlfriend due to the stress of thinking i had MND. I was so busy fact finding about MND i became a hermit and stopped exercising. I would constantly test every part of my body for signs of muscle atrophy. Because of the cramping symptons i was convinced it was MND but then i found this website and within 4 hours i began to relax again. 2 days later my symptons dissapeared with just occasional twitching and it has been like this since. I am now A VERY RELIEVED MAN
and i have become a much more decent person having gone through the emotions of all this. I would just like to say a big thank you to all the contributors to this forum!
Cooper
 

survey

Postby Domino on January 12th, 2004, 8:21 pm

1. 57
2. female
3. caucasian
4. 4 months
5. terrible stress and got a lfu vaccination 1 wk before
6. generalized anxiety disorder
7. yes I was very worried about ALS
8. most consistently by legs and feet twitch, but I have random twitches all over and in the beginning my arms and hands buzzed so badly that I developed carpal tunnel-like symptoms
9. most unusual symptom at one point was numbness inside my nose and burning sensation on thskin of my upper arms ( still occurs on and off)
Domino
 

Postby stra13 on January 22nd, 2004, 5:06 am

Hi fellow BFSers,

For your statistics

1. 26
2. Male
3. Caucasian
4. 11 months
5. After unknown viral infection, then ulcerative colitis
6. Anxiety Disorder
7. no
8. Most definitely
9. Calves
10. Mouth
stra13
 

Postby EJay on February 12th, 2004, 12:46 am

1. 43

2. Male

3. Caucasian

4. Length of time: 1 1/2 years

5. No apparent triggering factors

6. Lots of anxiety and some OCD tendencies

7. Any other medical conditions: don't think so

8. ALS scare? Man, I was planning my funeral!

9. Region most affected: Legs, about 90+% of the time, but I'm used to the twitching, it's the weakness and cramping that gets to me.

10. Most unusual area affected: really just everywhere has twitched at one time or another...at first it bothered me, but now I'm used to it.
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survey

Postby Todd on March 1st, 2004, 3:59 pm

1. Age : 29
2. Gender : Male
3. Race : whit
4. Length of time you have been twitching? : 1 year
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection) : no. 2 unlikely possibilities: had horrible food poisoning about six months before it started. Foolishly ate some really smelly crab about two days before.
6. Do you have any Anxiety or OCD disorders? Yes, high anxiety. Mild OCD.
7. Any other medical conditions that may be connected to BFS? no, but they said my thyroid antibodies were high which means my body is attacking my thyroid.
8. Did you go through the typical ALS scare so common on this forum? Yup, and still am, though I am pretty sure I do not have it. Also Issac's scare.
9. Body region most affected? quads, calves, feet
10. Most unusual area affected? none
Todd
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Postby StayingAboveIt on March 8th, 2004, 1:35 am

1. Age
2. Gender
3. Race
4. Length of time you have been twitching?
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
6. Do you have any Anxiety or OCD disorders?
7. Any other medical conditions that may be connected to BFS?
8. Did you go through the typical ALS scare so common on this forum?
9. Body region most affected?
10. Most unusual area affected?
Feel free to add more

1. 24
2. Male
3. Caucasian
4. 8 months
5. No...except maybe stress
6. GAD
7. No
8. ALS...yes unfortunately I did...
9. all over
10. no where in particular
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survey

Postby barbo36 on April 6th, 2004, 12:41 pm

I am 36 a female white I have been twitching 10 months although about 2 years ago my eye twitched almost non stop for 3 months. I dont think anything triggered it except severe stress for a very time. I have been given the gad diagnoses and I do have a bit of ocd.No medical conditions except mild copd.Yes I am very scared of als I have not had emg. I geuss it would have to be legs although I am not sure.The most unusual places are places that I would rather not mention. I along with some or all of you have the pin and needles the buzzing and burning.3 out of my 4 kids twitch just not as much as me.
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Postby Guest on April 7th, 2004, 1:32 pm

1. Age
2. Gender
3. Race
4. Length of time you have been twitching?
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection)
6. Do you have any Anxiety or OCD disorders?
7. Any other medical conditions that may be connected to BFS?
8. Did you go through the typical ALS scare so common on this forum?
9. Body region most affected?
10. Most unusual area affected?
Feel free to add more

40
female
white
3 1/2 months
nothing that I'm sure of...had been experiencing health related anxiety for about 3 months prior to onset of twitching
the only anxiety was about 3 months prior - had not been overly anxious or stressed at any other point in my life
none
Yup! I, too, was planning my funeral, who to ask help raise my children, etc.
legs and feet
it ALL feels unusual to me!!

After starting paxil in Jan. and now weaning myself off I feel much better emotionally. I think I'm twitching less but, if not, I am quite unconcerned about it. Am still very curious as to the cause.
Steph
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Postby traveler27 on April 17th, 2004, 10:55 am

1. 42
2. Female
3. Caucasian
4. 8 months
5. Excessive physical/mental exertion
6. Anxiety, had one bout of clinical depression
7. MVP
8. No, GP told me he thought I had MS - that's what started my big worrying.
9. Back, legs, feet
10. Hasn't missed a spot.
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Location: California

Re: BFS Survey

Postby brownale on April 19th, 2004, 6:56 pm

1. 32
2. male
3. white
4.3 months
5. I wore new/tight shoes, starting twitching in the feet first. After googling 'twitches' I got freaked and started testing my strength with push ups, and the twitches spread bodywide within a couple weeks.
6. 99% sure I have Generalized Anxiety Disorder.
7. GERD? Not sure if it's really related, but it often gives me problems.
8. Still going through the ALS scare, unfortunately.
9. Calves and arches of the feet.
10. Eyelid/Butt (not the eyelid of the butt though...)
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Postby Bradford on April 21st, 2004, 4:18 pm

Age 44, white male, twitching for 4 months as of December 26th, 2003

ER visit with atypical chest pain that turned out to be acid reflux triggered
esophageal spasm. Very phsyically and emottionaly about having a heart attack during this episode. 3 days later the twitching began out of nowhere.

Widespread "blips" have occured all over, but hot spots are my left calf which twitches in several locations 24/7

Definately developed anxiety and sleep disturbances after visiting web-sites about twtiching and causes. Definate ALS scare and compulsive behavior to find answers. Scare has subsided, but twtiching always causes doubt.
Bradford
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