BFS Survey

Post your questions about BFS here

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Postby reneeintx on April 9th, 2003, 4:16 pm

I thought I might add myself to this wonderful group of ours :)

age-39

gender-female

race-caucasion

length of time*twitchin*- almost 5 months
was there anything that appeared to trigger the *twitchin*- no, nothing comes to mind...just out of the blue. Left eye started first then in a month all over my freakin' body. :(

Do you have anxiety disorder?- Yes very bad. I've taken prozac for the last 9 years for panic attacks, and depression. Who knows maybe the prozac over time screwed up my nervous system.

any other medical condition that may be connected to BFS- I was hypothyroid taking .05 mg of synthroid which in turn made me hyperthyroid. Doc's have lowered my dosage. Doc's have said thyroid problems can cause *twitchin* Well if that's true why am I still having problems :roll: I also have heart palpatations.

Did you go through the typical ALS scare? Let's just say when I searched *twitchin* on the internet I was deciding on wether to be buried or resting on a mantle.

Body region most affected? FEET, FEET, FEET and toes and calves.

Most unusual area affected? ear canal. It feels like bats flapping against my ear.


~I hope somebody, maybe a doctor, will take this data and use their knowledge to study and hopefully cure this crazy illness, syndrome, or annoying watchamacalit thing we all share~

Renee :)
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Postby dave_stereophonic on April 24th, 2003, 1:31 pm

1) 19
2) Male
3) White
4) About 18 months
5) Not sure, stress and anxiety possibly
6) Yes, anxiety
7) Don't think so
8) Oh yes!
9) Pretty much everywhere - legs, ass, back, neck, often in biceps
10) Don't like the biceps twitching at all

I have very annoying leg and back aches
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Postby vessel on April 28th, 2003, 8:47 pm

1. Age 33
2. Gender M
3. Race cacausian
4. Length of time you have been twitching? 1.5 years
5. Was there anything that appeared to trigger the twitching. (i.e. viral infection). Not that I am aware of.
6. Do you have any Anxiety or OCD disorders? OCD and anxiety/ panic attacks
7. Any other medical conditions that may be connected to BFS?
no
8. Did you go through the typical ALS scare so common on this forum?
OMG, Yes. Thought I was doomed.
9. Body region most affected? Calves all the time. Mostly right one. It settles down once in awhile, but always noticable.
10. Most unusual area affected? neck once in a great while.
vessel
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BFS SURVEY

Postby KERRI on May 9th, 2003, 9:41 am

1. 29
2. FEMALE
3. CAUCASION
4. 1 YEAR
5. HEAVY LIFTING
6. ANXIETY DISORDER
7. BIRTH CONTROL PILL
8. YES, AM STILL GOING THROUGH IT
9. LEFT HAND
10. VAGINAL AND ANAL

I BEGAN SUFFERING FROM TWITCHES AT THE MOST STRESSFUL PERIOD IN MY LIFE.
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Postby Guest on May 16th, 2003, 6:19 am

1. 31
2. Male
3. White
4. 6-7 years
5. I don't think anything kicked it off. I did have a bad flu around about that time but i'm not sure about the exact timing in relation to when i noticed the BFS. I started drinking coffee around about the same time.
6. No
7. No
8. No
9. Calves go 24/7
10. Eardrum
My symptoms appear mostly after exercise. I stopped exersicing for about a year and the BFS stopped (in the calves) I haven't actually been diagnosed but from reading this post it's clear that's what it is. The BFS doesn't bother me in the slightest. It's not painfull. there is hardly any sensation at all and I don't suffur from any soreness or other symptoms other than twitching. I was curious as to what the cause was though.
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response to informal survey

Postby guest on June 2nd, 2003, 1:10 pm

1. Age: 40
2. Gender: F
3. Race: C
4. Length of Time Twitching: 8 months
5. Trigger: Stress
6. Disorders: None diagnosed, although I would consider myself anxious
7. Other Medical Conditions: Hypothyroidism
8. Typical ALS Scare: To the point of hysteria
9. Body Region Most Affected: Calves, but I twitch everywhere
10. Most Unusual Area Affected: None - it all suprises me.
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Postby SarahluvsMike on August 1st, 2003, 4:45 pm

1. 21
2. female
3. white girl
4. 6 loong weeks :evil:
5 I wish I knew
6. I guess I do have a tendency to be a hypochondriac
7. not sure
8. Yeah, I'm still going through the scare
9. Mostly upper legs, then calves, then hands
10. I hate the lip twitches, they're new

I really feel for the people who have been dealing with this for years, I'm already being driven insane!
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Answer to survey

Postby Poland on August 6th, 2003, 5:54 pm

1. 38
2. Female
3. White
4. 5 months
5. After 3 days of serious weight training classes without recommended break.
6. No, but am definitely more anxious since I got this
7. GERD
8. Totally, several times!
9. Started in Tricep, moved to calves and now can pop up ANYWHERE!
10. Side of Head

It freaks me out just when I think I can handle it! But became much better once I decided I could handle it!! Also experience, tingling and electrical sensations sometimes around knee and bottom of foot.
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BFS survey

Postby angela on August 7th, 2003, 9:47 am

1. 35
2.F
3.caucasian
4.2 yrs
5.I think it might have been a cold or flu
6. both anxiety and a little bit of OCD (checking my coffee pot 3 times to make sure it's turned off!)
7. hypothyroidism (replaced with Synthroid)
8. Yes
9. face, upper lip & calves
10. little toe, ears drum, scalp
I am self diagnosed, I have had no weakness, just twitching and paresthesia for a few years now. I've told doctors about it , no one seems impressed enough to order a work-up and I don't really want one (lest they find out something that I really don't want to discover, i. e. ALS, M, brain tumor, somethign else bad!) i just try to live with it and read this site every once in awhile when I need a little support.
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Postby PamT on August 8th, 2003, 1:00 pm

Posted: Thu Aug 07, 2003 9:47 am Post subject: BFS survey

--------------------------------------------------------------------------------

1. 39
2.F
3.caucasian
4.2 months
5.I think it might have been a sinus problems or medicine or stress
6. anxiety
7.
8. Yes
9. thighs, knee, upper lip & calves
10. throat
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Postby Alice on August 12th, 2003, 8:17 am

41
female
white
1. 11 months
2. whole body was shutting down--labyrinthitis, terrible gastric problems, on reflux drugs, then bladder infections and antibiotics . . . very stressful time for personal reasons as well.
3. I had as series of panic attacks (i was also hypothryoid and when that was treated the anxiety stopped. no anxiety now but still twitching.)
4. CANDIDA PLEASE SEE MY POSTING BELOW
5. Totally flipped about ALS as a beloved friend actually has it and twitching was his main symptom.
6. left leg and feet
7. I get twichtes EVERYWHERE--abdominal muscles, jaw, throat, private places.
8. SEE BELOW
SEE MY EXCHANGES WITH JEN RECENTLY POSTED ON "QUESTIONS ABOUT BFS" about "Could this be a cause?" There seems to be a big candida/BFS connection. . . in my opinion anyway
Thanks for doing this survey!
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Re: BFS Survey

Postby Pole on August 12th, 2003, 8:43 am

1. Age - 28

2. Gender - male

3. Race - white

4. Length of time you have been twitching? - 4,5 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection) - NO

6. Do you have any Anxiety or OCD disorders? - anxiety related with ALS-fears
7. Any other medical conditions that may be connected to BFS? - NO

8. Did you go through the typical ALS scare so common on this forum? EXACTLY THE SAME

9. Body region most affected? - calves

10. Most unusual area affected? - wrist and top of head
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Postby Guest on August 15th, 2003, 2:23 pm

1. Age - 28

2. Gender - male

3. Race - caucasian

4. Length of time you have been twitching? - 2 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection) - possibly stress/anxiety (really stressful week at work)

6. Do you have any Anxiety or OCD disorders? - have some anxiety and OCD symptomology. Don't know if this was preexisting or precipitated by ALS scare.

7. Any other medical conditions that may be connected to BFS? - No. Have had other transient symptoms, such as tremors, numbness, etc.

8. Did you go through the typical ALS scare so common on this forum? - Definitely, and still do

9. Body region most affected? - left foot and calves

10. Most unusual area affected? - temples on side of head, and eardrum.

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Postby wakefield on August 15th, 2003, 2:26 pm

Sorry. Last post was me. I forgot to log in.

Chris
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survey

Postby sscheffler on September 4th, 2003, 10:30 pm

1. Age - 35

2. Gender - male

3. Race - caucasian

4. Length of time you have been twitching? - 1.5 months

5. Was there anything that appeared to trigger the twitching. (i.e. viral infection) - not sure

6. Do you have any Anxiety or OCD disorders? - I didn't think I did, but the twitching set off a two-week (until I met with my neuro) anxiety trip unlike anything I've ever experienced.

7. Any other medical conditions that may be connected to BFS? - No.

8. Did you go through the typical ALS scare so common on this forum? - Definitely (see answer to question 6), and I'm still trying to shake it. Doing pretty good right now.

9. Body region most affected? - legs and calves; hands

10. Most unusual area affected? - face twitching (more like tickling); butt.
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