Val 2, MRI's do not detect ALS. They are used to detect MS and other issues regarding the brain, the spine and other parts of the body that may be causing symptoms. The EMG, NCV and neuro exam are the tests for ALS. A clean EMG and Neuro exam pretty much rules it out. As for the myclonic jerks throughout the body, they can be very common with people who don't have BFS. My husband jerks every night while falling asleep, always has and so do his brothers and his father. My neuro specifically told me that the jerk like movements are not related to ALS. And, no, we are not doctors, but I know I am very conscious to ask my doctors the right questions as they ARE the experts. I look, as do others on this Board, to help give information that I have learned from my neuro and other doctors throughout my experience with BFS. If you read my post from Friday regarding my last scheduled neuro visit, you will read about lots of things that my neuro and I talked about and the answers to questions I asked, as the key for most of us is having open, honest discussions regarding our symptoms and looking for the answers and having all the tests.
I personally do not look to this Board to diagnose me, as they are not doctors. I look to them to see if anyone has shared any of the same experiences, for support and quite frankly, have made some great cyberspace friendships along the way, which in no way is a bad thing. I also found it a way to shift some of my negative feelings into positive ones.