I can’t believe it’s been 5 years since I started reading and posting on this forum! So I still twitch every day. The foot arches and calves are pretty constant. Hot spots pop up from time to time and can last for a week or so, but nothing has really progressed. I go numb really easy, but it’s all positional. I’ll wake up in the middle of the night and my outer thigh or my pinky and ring finger will be totally numb, but as soon as I reposition my leg or arm, the feeling comes right back within seconds.
I do have one question and concern. So 5 years ago when this all started, my dr. had me get a brain MRI because I had convinced myself that I had ms. It wasn’t until later that the als fears came into the picture. So the neurologist said the mri was normal and I did not have to worry about MS. So fast forward 5 years to last week. I’ve been having bouts where my neck will go out. Like I pinch a nerve and for several days it’s super tight and painful, then slowly loosens up several days later. This happens to me several times a year and I finally got tired of it and my dr. Had me get a MRI of my cervical spine. Long story short, I have 2 bulging disks in my neck and slight narrowing for the spine which is pinching on the spinal cord and nerve roots and the dr. Thinks that’s what’s is causing my pain (and who knows maybe my twitching).
Here’s my question and concern. During my appointment with the neurosurgeon, he asked if I’d ever had any imaging done and I told him my history with bfs and that I had a brain mri. He asked what the neurologist said and I told him that I was told it looked fine and that I didn’t have MS. So when I got home, I pulled out the films from 5 years ago and read the radiology report. Everything was stated as being normal, except it said there was “rare small foci of enhanced signal strength”. And none on contrast. It said most likely small vessel changes or migraine associated changes. So I did what I know I shouldn’t do, and I googled it and of course I’m afraid the neurologist downplayed my mri and I’m fearful of MS being the issue all along. Does anybody here have spots show up on their mri that their dr. said was nothing to worry about like mine did? I’m afraid I’m taking a big step back towards how I was years ago, and I don’t want to loose all the progress I’ve made. Thanks in advance for the help.