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Spasms

PostPosted: December 8th, 2016, 9:05 am
by Amylou29
Hi all, I'm over 3 years in and still twitching constantly! For the last 2 nights I've had terrible sharp pains in my inner calf, it's like they're going to cramp but do t quite get there. They size up then relax over and over, it's carrying on in the day too. I am twitching ALOT in that calf.
Is this part of bfs? I've never had cramping before, why would it start now? 3 years in?
Thanks, Amy.

Re: Spasms

PostPosted: December 8th, 2016, 12:37 pm
by leaflea
I am just over three years in as well. I have cramped from the start, but still have a new symptom. Just when I thought I've had them all - now it is the shortness of breath, sort of holding my breath (unconsciously) and then gasping. It is the constantly moving and changing nature of bfs. Yes, it is all bfs.

Re: Spasms

PostPosted: December 9th, 2016, 5:03 am
by Amylou29
That must be awful for you! Why does bfs cause that!
I'm not sure why I'm getting this cramping all of a sudden, of course I've got myself all worked up again and I'm sure that's not making things any better!

Re: Spasms

PostPosted: December 9th, 2016, 6:13 pm
by Amylou29
I have a question, I have read on the Internet from a man who has been diagnosed with something other than bfs that it's medical jargon meaning the Drs don't actually know much about it, is this right as when I asked my gp about the cramps being part of bfs she said she really had no idea! I'm just wondering whom exactly we are supposed to go to for advice if our own gp's don't seem to know much about this.

Re: Spasms

PostPosted: December 11th, 2016, 5:49 pm
by Amylou29
Also, I've measured my calfs and my left is smaller than my right by 1 inch?

Re: Spasms

PostPosted: December 12th, 2016, 5:28 am
by Amylou29
Not that anyone's reading this but just been to dr who agrees left leg is smaller than right but said it can be normal. Arranged blood work and emg at my request.