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Remaining question after 2nd opinion from neuromuscular spec

PostPosted: October 15th, 2014, 6:00 am
by LKP1231
Ok I have to ask one thing! I saw a neuromuscular specialist yesterday with 25 years experience. He has experience with ***. He has said I have bfs and agreed that my emg results are from radicular lower back disease. I feel the need to clarify certain things and ask more questions which is where I made myself nuts the first time. I need to accept this man's experience and knowledge, right? It's time to stop second guessing and move on, yes?

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 15th, 2014, 6:06 am
by Yuliasir
yes surely and absolutely you should move on.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 15th, 2014, 7:00 am
by LKP1231
Thank you Yulia. I know that is the right thing. His expertise led him to these conclusions and my asking more questions surely won't make him change what he firmly stated in his office. It is very hard for me to do this and I'm not sure why. But I will make myself get there.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 15th, 2014, 7:12 am
by Yuliasir
think that he has 10 years of studiong of ALL systems of the body, and 25 years of experience. This is his basis, this and your own presentation (how do you walk, speak, breathe and move). If you are a specialist in something, yu probably should know this - when problem is evident for you and other people just do not see it). Like the car technician can judge sometines what is going wrong just by the motor sound.

You doubt the doctor becasue you have reasons - your own, which are very important to you. This does not mean they are practically justified, but in the realm of your life which is a combination of external and internal factors, you feel therer is something wrong with your life. Neurologists said you this is not ALS, and you may trust them, but then you should ask yourself, your own spirit, what is wrong with you and why you are so freaked out. And the answer usually comes, believe me. Something freaks you, and only you can understand what it is. It really could be ANY thing - from the fact the children grow and you are getting older to the death of a family dog, I am only sure it is something related to our exitence, something deep in nature. Physically you are more or less ok, according to the age, I think, but seems like your spiritual part is wounded deeply and causes you pain, maybe long ingored. Dig what it is, and you will usually get much better. Talk you your AkuAku. It helps.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 15th, 2014, 12:39 pm
by LKP1231
I am sure the above is all true. I am sure losing my first husband to *** is a huge part of this. So hard to let this go.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 15th, 2014, 12:57 pm
by Yuliasir
it takes so lot of time to heal the wounds...

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 6:13 am
by LKP1231
So a third opinion is not needed? I can't keep disbelieving these doctors. I have to believe even though there's always something I question. Two doctors saying I don't have this disease (altho the first wound up being less firm in the end), both had the same reason for the emg results.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 7:58 am
by German2
It depends on where you are planning to go, I guess. I can understand your position of distrusting the docs. I have my personal reasons. But if you choose a 3rd position, it should also really be an expert. Not just "any" neuro..My neuro sent me to a further specialist to collect a 3rd opinion. But it is a specialist with a wider range of knowlege, not just MND focused..At a MND ambulance you can just get a "you have/you have not MND". It is just an idea. And just if you need that 3rd opinion for your peace of mind...

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 10:00 am
by LKP1231
I don't know if I will have piece of mind. And this guy was a specialist in neuromuscular disease. I don't know when to stop

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 11:03 am
by Bibi
LKP1231 wrote:I don't know if I will have piece of mind. And this guy was a specialist in neuromuscular disease. I don't know when to stop


Hi How about other symptomes , is it still " only " twitching ? Did You ask The latest neuro if he could explain what is going on ( i know They Said back problems ) ?
I Think it is hard to trust The neuro When there is no explanation for The symptomes , for me i know it wasnt anxiety before The Twitches , my anxiety came with The twitching , i Think i Would feel Calm if there was A good explanation ( not ***)

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 11:23 am
by LKP1231
The twitches he said was bfs and anxiety. My only other symptoms are perceived but not clinical weakness. The back issues were discovered on the testing.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 1:37 pm
by guitarguy11
You and I are in a similar boat in many ways. I used to not think I had any leg pain from the twitches in my legs (the little bubble pops in my calves), but now I am not so sure. Before I was chalking up my right leg pain to some foot surgery I had in August. That still could be causing it, but I am not sure. Yesterday my leg twitches in my calves were going crazy and then this morning I woke up with a weird chest spasm that made me swallow. Kind of freaky, but I am having no trouble eating, swallowing, or any other weird throat sensations or problems. I was more anxious yesterday because of the calf twitching was worse and more random twitching, so maybe heightened anxiety caused the weird "swallowing twitch." I do know without a doubt that anxiety and stress make it worse. I have proven that time and time again to myself. But, anxiety exists at both a subconscious and a conscious level so even though my anxiety is SO much better than it was a month ago and SO, SO much better than it was almost 3 months ago before my EMG, it is still there, perhaps just as strong at the subconscious level because I still notice every twitch, I tend to worry about them if they are more intense, more constant or "weird" compared to prior twitches.

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 2:27 pm
by LKP1231
In my case the abnormalities on my emg were explained to me, pretty much the same way by both neuros. I had my husband call the neuromuscular guy today to clarify things so I wouldn't read too much into anything.the doctor told my husband that I am perfectly healthy and have no disease or anything pointing to disease except my back. He said my anxiety is my biggest problem and needs to be addressed. He will follow up with me in 3-6 months but is insistent that I am healthy. At some point I need to stop questioning. I don't think another opinion would change anything at this point (unless of course I was told bad news).

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 3:47 pm
by misterjuanperalta
I knew you'd be OK. ♥

Re: Remaining question after 2nd opinion from neuromuscular

PostPosted: October 16th, 2014, 3:50 pm
by LKP1231
Thanks. Still need convincing.