holes in my wrist discovered

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holes in my wrist discovered

Postby German2 on April 25th, 2014, 4:39 am

Hello!
a new strange thing popped up. Today I was examined by a GP. She discovered holes at the sides of my inner wrists. I knew before that my wristes got leaner there (like my hand muscles, foot arches as well), but didn't realize those dimples.
She said to me, that I have to wait and see what happens with me over the time...but that is what I cannot stand any longer...it has made me
so anxious again.

The holes are on both sides - so it is symetric. So I hope in that case, it is a good sign (I mean in the meaning of not having what most of us are afraid of here..)??
I will shortly summerize that I was completely neurologically tested and no one found anything yet - no MND nor MS.
But there is muscle decline which no one can explain up to now..though, making me feel so anxious.
I have not yet the diagnosis BFS though I have many symptoms like muscle pain, numbness, sensitive sensations, twitching in feet arches and s.t. calves since 9 month.
For the leaner muscles in my feet I have accepted that it might come from the hotspot twiching. But I had never any twiching in my wrists.
I would very much appreciate your opinion of symetric holes which developed...

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Re: holes in my wrist discovered

Postby Yuliasir on April 25th, 2014, 6:05 am

german. what holes do you mean?

In ALS abnd other processes which lead to muscular atrophy (like tunnel syndrome) atrophy usually affects the only bulk mass we have at the hand - a thumb moving muscle, can not recall its latine name. So if you do not have any muscle wasting there (on both inner and upper surface of the muscle), then it is SOMETHING ELSE.
Wrists are not so much muscular, and people in deep anxiety often tend to have their hands much slimmer due to loss of fat and water. Symmetrical 'holes' may rather indicate that process. Often tendons and veins become more prominent, there is also nothing sinister in this fact. My own neuro also burbled something about my 'skinny hands' once but it was two years ago and my hands are still here.

As you do not have any clinical sign of hands function decline, you must build your position on that fact.
and remember that once you already were pretty convinced you are dying - and it was resolved.
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Re: holes in my wrist discovered

Postby German2 on April 25th, 2014, 6:36 am

thank you Yulisair, once again! My thumb muscle had been declined at the inner side some time ago. That was confirmed by doctor and ergo therapist. I could hardly hold a book that time with left hand. But after training the muscle came back..so some strange things happen to me . And my GP said there must be a reason for all of that. I really just try to just enjoy life with my kids. And I do improve :? The way from the bottom of the whole back is shorter now. But if s.o. tells me about waiting and seeing what it is, one day and all that stuff, and that it would be obvious that s.th. is wrong with me puts me back to anxiousness.....feel s.t. ashamed about it.
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Re: holes in my wrist discovered

Postby Yuliasir on April 25th, 2014, 7:19 am

Yep it is strange but at least your condition appeared to be reversible and you know the difference between irreversible paralysis and whatever had happened to you.

all our life it to wait and see what will happen.
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Re: holes in my wrist discovered

Postby nrwtwitcher on April 25th, 2014, 8:49 am

Hi German, my wrist is also very small and in looks like that there are holes, but my neuro said, that I have a small wrist, nothing more.... Are you slim? Is it possilbe that the holes where there sin ce years?
ALS don`t beginns in feet and hands together... I do not think that there ist anything wrong. I also don`t think that you have to wait for something. You can live your life, you have visited more than two neuros, if there where anything wrong, they have seen it. If you are unsure, you can visit one of the neuros once more to ask him and to calm down.
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Re: holes in my wrist discovered

Postby German2 on April 25th, 2014, 9:47 am

nrwtwitcher wrote:Hi German, my wrist is also very small and in looks like that there are holes, but my neuro said, that I have a small wrist, nothing more.... Are you slim? Is it possilbe that the holes where there sin ce years?
ALS don`t beginns in feet and hands together... I do not think that there ist anything wrong. I also don`t think that you have to wait for something. You can live your life, you have visited more than two neuros, if there where anything wrong, they have seen it. If you are unsure, you can visit one of the neuros once more to ask him and to calm down.


No to be honest I am not so slim. At the place where muscle reduced at the wrist I had pain before. Actually it is the biceps. Pain comes and goes there, in the foot arches they stay. As long there is pain, there is a vivid nerve I say to myself...
I ve visited 10 different neuros during my hospital stays, local ones and ambulances. The ALS expert excluded MND explicetly in his report but I am looking for an approach to explain my reducing muscles.

15 years a go I had a syndrom lasting about one year with muscle involvement, fatigue, sicca syndrom and fasciculations. It stopped me from studying and working. That all happened after a bad virus abroad. Nobody had a clue though what it was. Now muscle problems are back. In a somehow different way with other symptoms combined. For me it's hard to understand. And the doctors are clueless again.
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Re: holes in my wrist discovered

Postby Yuliasir on April 26th, 2014, 2:35 am

probably you have virus reactivated. many of them dwell in the body, like herpes.
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Re: holes in my wrist discovered

Postby German2 on April 26th, 2014, 5:55 am

Yuliasir wrote:probably you have virus reactivated. many of them dwell in the body, like herpes.


Yes, also possible. Herpes Zoster burst out ouf my body two years ago, by the way. Writing all this I think by myself....oh my goodness. I really had too much. When is that all stopping?
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Re: holes in my wrist discovered

Postby Yuliasir on April 26th, 2014, 6:06 am

zoster is a real hell ^(( so painful. I had herpes in my throat, and those recurrent issues were really a hell of pain.

oyu need to make a new equilibrium starting from stress mamangement, psychoterapy, etc.

there is a fellow member here who had eleven (!!!!) strongest stress factors, including family member death, another family member disease, moving from home ot absdolutely another cultural environment, several health issues, change in family status, etc. etc. within 2 years.
no wonder this person has got extreme anxiety and BFS.

look at this as at a real disease. we do not know if we really have glial inflammation, but it is possible - considering the fact that stress makes us vulneralbe to inflammation beccasue stress hormones are inflammatory ones. For wast majority of cases this condition resolves by itself as soon as you allow your body to decrease stress hormones level. Some people propose also antiinflammatory diet, but generally it is aslo very individual. On my own experience psychotherpay helps a lot :))) Just let yourself know that you really may had "too much' for the last two years.
who knows - only you.
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Re: holes in my wrist discovered

Postby German2 on April 26th, 2014, 11:04 am

My herpes was not so much painful but quite widespread....But to that time I had to take my small daughter with a severe atopic dermatitis to hospital, accompanied by the other child. So I played a minor role...and maybe did not even realize me.

Yes I had very much stress, over the last years, lots of sickness in the family, moving also away from our former home and a lot more. The symptoms started after the move from our former house and a wrong treatment of an ostheopat to my head (I had to go to emergency hospitalization after it), all parallele, and than the nightmare began...GEt worse with the beginning of the fasciculations one year after the beginning of the symptoms, and still last.

Since two days there is numbness and pins and needles in my left foot making me feel anxious. To the numbness of my hands when I lie in bed I am already used..But on the other hand I've started to resign., feeling so tired from all this.
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Kind of twiches..

Postby German2 on April 28th, 2014, 9:33 am

I read in a post that a neuro explained that A#S twitches look like a little worm under the skin, with small individual fibres.
Well I have those kinds of twiches. Now that I read this, I feel again my fears rising.
Especially at the beginning of my twiching carreer, I had those worms running down my lower leg.
Any experience to share wether it could also be benign ones?
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Re: holes in my wrist discovered

Postby nrwtwitcher on April 28th, 2014, 12:32 pm

Hi German, in bfs it looks like the same. A lot of people here have the same kind of twitches. You can read this also in bfs in a nutshell. Don`t worry, you have visited 10 neuros, they had seen anything if there was something wrong.
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Re: holes in my wrist discovered

Postby leaflea on April 28th, 2014, 9:27 pm

GERMAN2: I have the same! I am sure of it. I was SO freaked out about my wrists, this is what sent me over the edge. My wrists have also changed. I am not a lean person, not really heavy, but have never been skinny either. Well, sometime over the past year, my hands, wrists, and feet have become SKINNY and stringy -- all tendons, bones, ligaments. Also some ganglion looking lumps on the top sides. I work in an ER, so have had the benefit (or not) of having a couple doctors look at them. One said, yes, it looks like atrophy. YIKES! The other said "well, it could look like atrophy, but I would expect it to start at the top and become thinner as the muscle descends." So, he was puzzled. He also said "I don't know, because really, there isn't a muscle there in that area (watchband area)." I anxiously awaited my neuro exam. I used every opportunity to look at wrists of everyone I could see - if they had short sleeves I would fixate on their wrists. I didn't see any just like mine and it scared me to death. This was last November and December. I finally had my neuro exam on January 8th. I had a clean EMG on December 8th, 2013. Well, I was so fearful about what the neuro would say about my wrists. He is a MND/ALS specialist. He looked them over as I flexed them every which way...and he shook his head and said "there is no atrophy there, there is no muscle there to atrophy." So, I cannot explain it, but it seems I have lost subcutaneous fat in these areas and this has also been described by others. It is now six months from the start of this and I have no appreciable weakness. It was my most problematic limb EMG'd because of this wrist. I came back from neuro and posted WRIST ATROPHY if you use the search function you will see. I posted it precisely because I was sure I wouldn't be the only one with this very scary observation. If I am fine, so are you. It puzzled some doctors, but not the specialist. I still look at others' wrists...and I recenly saw another guy with these "holes" -- DEEP cavernous areas evident expecially when you flex. Relax!
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: holes in my wrist discovered

Postby German2 on April 29th, 2014, 4:54 am

Back from Neuro....but I don't feel much better. She could see the differences between my muscles, espacially between my foot arches, and also a bit beetween my thumb muscles, but she did not think it is so strong to order a second EMG (seems as if they do not by themselfes in their office).But that indeed would have ben helpful for my peace of mind. I should come back when it gets worse...But I could be 99,9% sure it is no a#s. I would have the statement of the ALS specialist.
Could be that I have a rheumatic disorder but most probably it would be a somatic disorder..Or maybe in a very unlikely case another muscle desease. Now back home, I feel that this was not able to kill my fears. Since a few days I have pain in my yaw muscle, and I have the pain im feet muscles.
The neuro she saw also my fasciculations but did not react to my question whether I can get a bfs diagnosis.
But she told me again of one of her patients developing first weaknesses after 4 years having a#s. And even that could have been objectivated by measuring before that has happened. I really feel awful. I can't do nothing but wait.
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Re: holes in my wrist discovered

Postby TwitchyDoc on April 29th, 2014, 5:15 am

German2 wrote:one of her patients developing first weaknesses after 4 years having a#s.

I think you misunderstood her. One cannot have ALS for 4 years without weakness - what would be his symptoms then?
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Re: holes in my wrist discovered

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