help!

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Re: help!

Postby ShawnW on April 18th, 2014, 7:03 am

They had every right to be upset with the ortho doc. Unbelievable. What was going through his head to make such a proclamation? The most telling thing in all of this history? The fact that you went to the hospital with serious perceived deficit and it resolved with reassurance. I too got better after reassurance...weakness resolved in quick fashion...just days. I mean I couldn't shampoo my own hair without great difficultly.

And I want to say this for those who do not believed our symptoms are caused by anxiety...for some I believe that it's not. I truly believe in some of us there are other causes. But, many of us are highly anxious individuals...and our minds create real life symptoms. I think for many of us, anxiety is the root precipitating factor that triggered an underlying genetic predisposition.
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Re: help!

Postby jburzlaff on April 19th, 2014, 9:59 am

Hey German, I read tour posts and I think I might have an answer for the muscle decline. You said your feet twitch constantly, this means your muscles are in constant repetitive light activity, so wether you want it or not, they are getting leaner and stronger. Just like when you go to the gym, if you want to get big, you use heavy weights and low repetition, if you want to get lean and resistant you use light weights and lots of repetition. Well, that's just a theory, but I think it makes sense. :)
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Re: help!

Postby German2 on April 19th, 2014, 10:17 am

jburzlaff wrote:Hey German, I read tour posts and I think I might have an answer for the muscle decline. You said your feet twitch constantly, this means your muscles are in constant repetitive light activity, so wether you want it or not, they are getting leaner and stronger. Just like when you go to the gym, if you want to get big, you use heavy weights and low repetition, if you want to get lean and resistant you use light weights and lots of repetition. Well, that's just a theory, but I think it makes sense. :)


Hi!

Yes, maybe this is an answer...I have also pain in these muscles meanwhile. As I have definitively no ALS there might be some other reason....
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Re: help!

Postby German2 on April 22nd, 2014, 12:16 pm

Hi there,

today am completely punched down by my anxiousness. No one answered to my post about "s.o. else with muscle decline". So I think my obvious atrophy under my foot is s.th. else then benign... My next appointment at neuro is in one week.
But I can hardly stand to wait. Maybe s.o. can help me a bit with answering a question to give a bit reassurance...
I had an EMG about 7 month ago, one month after fasciculation started. Can I really be sure it would have shown an ALS? Sorry, I have the feeling of getting crazy about that.

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Re: help!

Postby Yuliasir on April 22nd, 2014, 11:20 pm

German,
you were suggested that your foot muscle is NOT atrophied just become leaner - why you are not satisfied with that idea? If you do not feel any clinical weakness in that foot - can stand on toe, walk on heel, no footdrop, no strange curvature of the foot inside or outside (spasticity) - they you are perfectly OK.
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Re: help!

Postby nrwtwitcher on April 23rd, 2014, 12:53 am

German2: You have visited more than one neuro specialists, I think that there is nothing to worry about... I am twitching all over my feet too... The twitchers are felt and visible. Please don`t watch at your feet..
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Re: help!

Postby German2 on April 23rd, 2014, 5:08 am

Yuliasir wrote:German,
you were suggested that your foot muscle is NOT atrophied just become leaner - why you are not satisfied with that idea? If you do not feel any clinical weakness in that foot - can stand on toe, walk on heel, no footdrop, no strange curvature of the foot inside or outside (spasticity) - they you are perfectly OK.


I try not to watch my feet. But from time to time I cannot avoid. :oops: My leaner foot arche is the one which is twiching less. But anyway...You are right Yuliasir. No functional restrictions up to now...

As the same happened to my left hand before I did not worry soo much. Though I really lost my power there, too, had pain there and paresthesia in both hands. But to that time they discovered in the MRI a relative throat spine stenosis due to a herniated disk. I did not mention because my neurosurgeon told me that it is not serious enough to cause my problems. But in my head this approach seemed not too far away to keep me calm somehow.
But for my feet it must be s.th. different, because all this is in the throat spine.

So many weired things happened to my body over the last 1,5 year that I can hardly list them all up. And I always think, what comes next. Since 3 days my yawn hurts somehow. My twichting feets anyway. But this is not a wonder...
I tried do find one logical approach to all of that.

-sublinical Hashimoto...could cause muscle problems. But no decline
-blood circulation problems in hand and feet could cause problems there. But several other muscles hurt, too
- rheumatism was first idea (Sicca Symptoms of my eyes, high ANA to that time) but there is no waist seriously suffering (I should come back if that happens, doctor told me)
- my left eye begins to hurt again after I stopped swallowing Vit B12,...
- and - like many of you - I take medicine to cure my mind and thoughts. That helped a bit to reduce the body twichtes indeed and in my worst perioud where I felt weakness all over, as I described before.

I have an appointment next week with my neuro. Maybe she can give me the diagnosis "BFS". Last time I saw her she was not sure enough...
Thanks a lot to all of you. I spent too much time in hospitals last year. I will really stay with my kids now, and see them growing. BUt sometimes going gets tough when new strange things appear to my body.
I wish a really nice day to all of you. Sorry fort that long post!
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