I'm on Doxycyline in case of chronic Lyme (had a tick bite before all sympomts started and one test pathological, but not the "official" tests, a test called CD57 that shows my immune system is very supressed - can have many causes inkl Lyme).
The latest weeks I've had less pain, a little reduction in fasciculations, the burning scalp is better, but my main problem, the paresthesias, have gotten even worse or at least changed. I seldom have the classical "pins and needles" but more and more the feeling of thousands of small bugs crawling/jumping and like FLYING ON my skin, not IN my skin, but on the surface if you understand...hard to explain. This happens mostly in arms and legs, but can come over my entire body. When I search the net in Norwegian I get 0 answers on this, but when I search google in English I get MANY sites and totally desperate people describing this phenomena. They discuss and are often convinced that they actually have bugs on them, that bite and crawl og creep...and fly..They try everything, like all kind of different insect sprays and washing routines with antibacterial soap etc. They try to convince their doctors but are are told it's in their mind...The word for this condition is "FORMICATION". http://en.wikipedia.org/wiki/Formication
I've never read about that or heard about that before yesterday when I googled "bugs crawling ON my skin", but these people describe it just like I have it. It's like torture...so distracting and totally unnormal. I get so afraid I can get these feelings even worse because some people are totally destroyed of it and mine is getting worse:(
I've asked several times on this forum about other people not beiing able to wear pants/jeans next to the skin because this makes it so much worse, but have got very few anwers. But when I read posts about "formication" they descripe it precisely. But they don't have the other symptoms I have it seems.
Do you think it can be possible that I actually have bugs in/on my skin, in the clothes, in the bed lines etc???? Shouldn't the other family members have got it then? Or is it the nerves?? in the posts about formication they discuss so many advises and they don't agree and I don't want to go into something like that if it is totally a waste of time and energy trying to get rid of "bugs" if it is actually the nerves..but I feel it ON my skin...
Can some of you relate to my feeling and do you have some thoughts about this problem I really hope you'll anwer!
Hugs to all