bocareefguy wrote:I'm 34 yr/old male. Seem healthy otherwise. No family history of any serious illness (though my grandmother did die of some sort of dimensia when she was in her upper 70s.
A little over 2 weeks ago, I noticed BOTH my leg muscles twitching non-stop - mostly in the calves and feet, but also in the thighs. I occasionally feel twitches in both arms, but not nearly as frequent. I was on vacation and we had just driven 900 miles in a car to get there. My legs felt a little wobbly, but no objective weakness that I could tell. I even went for a few runs while on vacation (but AFTER I noticed the twitching). It started to freak me out. But I read about BFS and felt a little calmer, though the anxiety was still bothering me and I had numerous panic attacks. The twitching has not stopped at all since I noticed it. On the feet, it's strong enough to move my toes a little. I also have some random (but infrequent) twitching in both arms, eyelid and back - but those don't concern me.
I saw a Neuro last week. She did some blood work, which all came back "normal." I have an EMG sched for next week (at approx the 3 week mark from when I noticed the twitching). She told me that these symptoms are not the way ALS comes on and she would be "shocked" if it was ALS, but cannot rule it out yet (as it is only diagnoses by process of elimination). She did strength tests, etc and all seemed normal.
I did a full leg workout (squats, press, calf raises, etc) the other day and felt fine. I haven't seemed to loss any strength - which was encouraging. I am constantly "self-checking/testing" myself with calf raises, etc. There has been no noticable difference in size of legs or strength. My legs are not very big, but have very defined muscle (ignored my legs too much in the gyn).
I did notice that I may have a nerve problem in my lower back. My legs get tingly and start to fall asleep very easily from sitting in certain positions. I also have a constant dull ache that radiates from my upper thighs down to my feet. The ache almost feels like a "weakness" or like the burning you get on the last few reps of a workout. It is usually worse when I sit, and sometimes is worse on one side or the other, though I usually feel it more in my left leg. Last night, I had my son step on my back (to crack it - he's only 50 lbs, so not too much pressure) and when stepped near the tail bone, it intensified that "weird ache" down the leg. All that makes me think I might have a pinched nerve (but I'm no doctor!) It's really hard to put a finger on where the pain is and where it is coming from at times.
Lately, I've been having some random more painful aches in my calves and feet. The pain moves around and usually doesn't last too long. The pain feels a lot like a strained muscle or ligiment. I've been trying to stretch more, but nothing really helps.
Just scared. Have a beatuful wife and 4 amazing kids. I know that ALS doesn't usually cause twitching to start on both legs at the same time and there appears to be no atrophy on either legs. Also, pain is not normally present with ALS. But something is going on. I'm hoping it's just a pinched nerve but I have a tendency to assume the worst. Can a pinched nerve cause all these symptoms???
Any advice or opinions or just encouragement is greatly appreciated. My heart truly goes out to anyone that has ALS. It is a dreadful disease. I will definitely donate to ALS research after this, regardless of the diagnosis.
dARR wrote:1st off, so sorry about your twitchings...2 weeks in? jeeeeeeze man I dont envy you.
Still, on the bright side: Calf and feet twitching ESPECIALLY non-stop twitches is bona-fide classic BFS my man. Its the calling card of bfs..it is the most common type of non-stop twitching and is surprisingly common...I have it, robbie has it, raindog has it, dreadpirateroberts has it, check the archives ul find thousands of ppl with non-stop calf and foot twitching. I wouldnt worry about the old emg at all at all.(how *beep* easy is that for me to say?)ALSO THE BIG ONE JUST DOESNT HIT UNDER 35... Its something like 2 million to one...so take that with you too...more likely to be hit by lightning.
Can a back injury cause it? hmmmm I wonder because I did a lot of really bad dead-lifts before mine kicked off. But just like Robbie I have twitches in my face, arms, back, shoulders so it really wouldnt explain that either.
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