Page 1 of 1

Family Members

PostPosted: July 9th, 2003, 9:24 am
by kim
Does anyone else here have family members who twitch like you?

I think I have mentioned this before, but I have a twin sister who started twitching soon after I did. Her's was to a lesser degree. So, we figured it was either "sympathy" twitching, or that she just started noticing them because I made such a big issue out of them.

Anyway, she now is experiencing them to the degree I used to. She too is in a panic over it. Our Grandmother died of ALS, and we are well aware of the symptoms and progression. However, there seems to be so many opinions, and variations of it's progression, that at times it still makes me wonder. (Unfortunatly)

ALS can be familial. But not one other person in our family has had it but Grandma. Should this be worth pondering, or should we dismiss it?

Thoughts appreciated.


PostPosted: July 9th, 2003, 9:57 am
by Dale
Hi Kim - have you recovered from the house party?

For what it's worth, I have a friend who's Dad passed away from ALS two years ago. Afterwards, we went out for beers to talk & he mentioned that during one of the family appointments with the Neuro, he asked about the possibility of him or another family member contracting ALS.

The neuro, basically laughed at him (in a nice way) & said that he understood Shawn's concerns but the chances of it happening were EXTREMELY low.

As my Commonwealth cousins down-under say - "NO WORRIES!"



PostPosted: July 10th, 2003, 4:33 pm
by Floater
my girlfriend has constant fasiculations in her left calf....we use to put our legs together and watch them twitch.

PostPosted: July 10th, 2003, 11:52 pm
by Arron
Now THAT's romantic! :lol:

PostPosted: July 11th, 2003, 10:49 am
by kim
My poor sister is freaking out! Now she is convinced she can't swallow properly. She is certain the end is near. Her Dr. told her she has some serious post nasal drip going on, but she is convinced he is wrong.

Boy can I relate! (I'm sure all of us can!) Even though it's been a year for me with NO weakness or atrophy and some really good months without much twitching, she can't seem to believe it's benign.

Our Grandma passed away from ALS 7 years ago. So the thought of the familial possibility stays with us. It is very hard to shake. No one else in our family shows any signs or symptoms of BFS, just us two.

Why do we let ourselves get so worked up?