normal emg and als....

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normal emg and als....

Postby SCOTT on June 29th, 2003, 5:03 pm

i have not posted for a lond time , i have twitched for 15 months 24/7 in the calves and other spots come and go . clean emg and exams all done by a nerve and muscle neuro who specialises in muscle disease at baylor college of med. houston med center.
he has dpne this 20+ years and told me without a doubt i did not have als from the start.

in his 20 years he has seen 0 people who start out twitching without weakness and have a normal emg needle exam get als.
not a single one.

stop with all this stuff about emg and when gor god sake people weakness is als not twitching and twitching in als is only from muscle death...you would be weak if your muscles where dying


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Postby Mike in Des Moines on June 29th, 2003, 5:12 pm

Scott,

Thanks for the post. As a new twitcher (5 weeks) who has not had my first EMG yet (scheduled for mid July), I've looked through a ton of information. When its all brand new, its hard at first to sort out the good info from the innaccurate info and know exactly what to make of it all. Your post was succinct and comforting!
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Postby reneeintx on June 29th, 2003, 5:26 pm

Scott~

You're not by chance known as CONCRETE on another forum are you?? The way you write posts seems alot like his.

Anyways, your post is right on the money. When I go to the doctor or the neuro I believe them for about 2 weeks or so...then I start slowing slipping backward losing all the belief I had accumulated.

My gp said to stay off these sights. It's just aggravating the problem. It's hard when the only contact I have with other twitchers, is this site and the internet. I'm like an addict that needs a shot of cyberotics(internet information).

I hope one day to be like you, honestly, I wish I didn't have to ride this mental rollercoaster..

Renee :)
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Postby Arron on June 29th, 2003, 6:01 pm

Scott's a good guy, I've had conversations with him, both in and out of the forum for well over a year. I do believe he is CONCRETE in the other forum and has had quite some experience with twitching, neuro's, EMG's and information gathered from the Medhelp.org site and many other sources as well.

What Scott just posted is about as "in line" and "consistent" with the general concensus about BFS and ALS throughout the medical community as you can get. It is also what I have been trying to convey since all of this "10 years to show up" stuff and "Carol's Story" scare came-up.

Like Scott's neuro's said, "not one person..." Well, if there hasn't been ONE person, then why worry?

Listen to Scott and the vast majority of people that post on these sites(both doctors and veteran people coping with BFS who have first hand, multiple neuro exams / EMGs and sometimes decades of experience behind them), and ask yourself, have you seen any BFS'ers that have been twitching for years, (and even decades) come down with ALS yet? I'll bet the answers is "nope". That should be clear enough to calm your nerves down :-)

Some people are SO ready to blame their twitches on everything in the book, that I'd be willing to put money on it that when they die (of old age) and they are still twitching, they'll still blame the twitches on their death... and they'll say, "See? I told you these twitches would get to me one of these days"... when in fact, the death was of natural causes. Just wait... you'll see :-)

Please stay calm and keep things in perspective about all of this :-)
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Re: normal emg and als....

Postby KERRI on July 7th, 2003, 2:38 pm

SCOTT wrote:i have not posted for a lond time , i have twitched for 15 months 24/7 in the calves and other spots come and go . clean emg and exams all done by a nerve and muscle neuro who specialises in muscle disease at baylor college of med. houston med center.
he has dpne this 20+ years and told me without a doubt i did not have als from the start.

in his 20 years he has seen 0 people who start out twitching without weakness and have a normal emg needle exam get als.
not a single one.

stop with all this stuff about emg and when gor god sake people weakness is als not twitching and twitching in als is only from muscle death...you would be weak if your muscles where dying


scott


Thanks scott
I did not read this right away somehow i missed it. I thank you for this post.

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