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PostPosted: February 26th, 2006, 11:47 pm
by lisak

I've been reading this message board for awhile now and just decided to post to it to thank everyone for posting to this board. I am a 24 year old and at several points in the last 3 years been convinced that I have ALS. It started when I was a junior in college and was woken up early in the morning by my phone and when I got out of bed fell right to the floor. I tried to get up again but couldn't and on the third time made it up off the floor. I'm not sure how awake I was when I got out of bed but it was a bit weird. Initially it didn't really scare me but my mom thought I should call a doctor and then I looked it up online and found a link to ALS which was all the proof I needed that I had it. I went to see a neurologist several weeks later, scared out of my mind, and he looked me over and decided it wasn't anything to worry about which satisfyed me.

Two years later I began feeling muscle tiredness and occassionally light headedness. Like my muscles didn't feel weak but like something was off with them. It's hard to explain. This reminded me of the experience I had in college and became convinced it was related. At this point I became convinced that I had either ALS or a brain tumor. I went to see my doctor after this fear had gone one for quite a while. She looked me over and found nothing wrong so I told her what I was worried about. She told me about the muscle twitches in order to appease my concern but that did not help at all. As soon as she said that I began feeling all my twitches. I think they were present beofre but I never thought about them as anything but after that I noticed every single one and until I found this site they completely freaked me out.

I get the calf twitches a lot but really all over. I can't tell you how helpful this site has been to me. I don't want to say I'm completely convinced I'm ok (I now am getting tongue twitches on the tip of my tongue and they are currently what I'm freaking out about) but this site has helped so much. I'm now pretty sure that the falling out of bed is not ALS because it has been 3 years since that happened but I worry sometimes that all this is some kind of early progression of the disease. I'm pretty sure I have bfs. It would be nice if there was some conclusive test for it so I could be sure but oh well.

Anyway I just wanted to say thank you to everyone that posts cause it helps so much to hear people's symptoms and stories and everything.