I'm a chicken but finally made an appt.

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I'm a chicken but finally made an appt.

Postby SusanSid on March 6th, 2003, 3:10 am

Hello my fellow BFSers,
I haven't posted in awhile as I had this brillant idea to return to school full time. What was I thinking!? I'm enjoying a lot about my return and my goal, but the homework is pretty overwhelming...especially anatomy. We just happen to be studying muscles which made me think of all of us. I had forgotten the stress college students go through, tests, more tests, no life and homework! With the stress, you guessed it, has come twitch city!

I have had fasciculations for 14 months, they have waxed and waned, but on any given day I can always feel them somewhere. If I look long a hard I can usually find them in my arches and calves. They also vary in intensity a great deal. My hands have a crampy, painful feeling at times, as well as my feet. Then the next day no pain and things are calmer. I also have pretty regular twitch in my posterior forearm that I can feel if I am really still. I don't have weakness, but have a long history of sciatica (L5/S1) and neck problems (C5/6) which have given me problems for 15 years on and off. So where am I going with all of this?

I have had the thought of ALS or some other neuro disease rambling in my head off and on since this all began, but the one thing I have not done is seen a specialist or had an EMG...why? Because I'm a total chicken. Being in the medical field sometimes is a disadvantage, we are sometimes the biggest wimps of them all. However, the unknown seems to be more painful than the known and I have therefore finally made an appt. for next Friday. Now, all applaud!

I was embarrassed to admit that I hadn't gotten an EMG or gone to a neuro, I was just too afraid to go. My regular doc says oh, it's fine....please has she ever seen a case of BFS? Plus I know I downplayed my symptoms.

We were in the middle of moving back to CA when the symptoms started and thought I'd see one of my old docs who are from the Bay Area. However, I have convieniently put this appt. off and off and off. I live about 3 hrs. away,but made an appt. with an excellent back doc (one who really knows me) to give me an referral to a GOOD neuromuscular specialist. I don't want a bad experience with an inexperienced neuro!

Deep down I feel I will be fine. My stress level is sky high and I know that doesn't help. However, I know I need to get things checked out. I want my quality of life back and not have times wondering I'm going to be around for my kids next year. I think you all know what I mean about the fears we feel.

I just wanted to share this and I cannot tell you how much all your postings have helped me, even when I'm not always active on the board. I promise to keep you all posted, but imagine the testing may take some time before I have any definite results. Ah, to have some peace of mind again. :!:

Be happy...
Sue :lol:
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Postby osbormd on March 6th, 2003, 10:04 am

Good luck on your EMG! I'm sure it will be OK.
Let us know how it turns out...and what your Neuro says to follow up.

Mike
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Postby reneeintx on March 6th, 2003, 1:02 pm

:) Hi Susan,

Your emg will go fine. I was a chicken too, afraid of the results. I had the test from a neuromuscular specialist. He didn't see one fasic. I was having twitches at the time, so I am stumped. I'm glad you decided have one for peace of mind.

I'm somewhat disappointed though... I wish he could give me a reason why we twitch and not lump us all into the BFS bucket. I've been all over the net and to various book stores, I have yet to find alot of info. about BFS. The only satisfaction I get is from talking to other people in my same situation.

renee in tx :)
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Postby Davidd on March 6th, 2003, 10:34 pm

Susan--

I'm sure you will be fine. One thing that I am wondering is if there is any connection between your back problems and the twitching? I'm not sure if you had seen another one of my posts, but two of the neurologists I had seen felt that nerves leaving my spine that go into my legs were being irritated (due to degeneration) and that this may in fact be the cause of the twitching in my legs (which still doesnt answer the twitches I get elsewhere). I wonder if something similar may also be the case for you?

Good luck in school! I am in school part time at night and just took a midterm tonight...it has been many years since I've been in school (this is my second semester part time so far) and wouldn't you know it but right at the beginning of the exam, the twitches in my calves actually hurt a little because of their intensity! After a little while though, they subsided.. The subject was statistics...a bit dry as you can imagine! :)

--David
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Postby Nole on March 6th, 2003, 11:10 pm

Im sure you will be fine, just like the rest of us. Try and stay calm, find some relaxing techniques, and destress. I think the stress of school has added to the twitching but just remember the mind is a powerful thing, feed it with positive thoughts and i think they will start to subside abit.
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Postby SusanSid on March 7th, 2003, 12:37 am

Thank you all for your replies. I'm great at encouraging others, but when it comes to admitting I'm in a bad spot or am scared...well, you know, it's harder.
David, I recall your postings about your disc problems and wanted to respond back then but never did (my brain is on overload right now!), but that's exactly why I'm starting with my back doctor. He's in a great group of specialists and he knows me well. I do have disc degeneration and the areas that twitch the most are the areas that have always bothered me. I agree, it doesn't answer for the other twitching. We live about 3 hrs. away from my former doctor, but I was in another state for the past 2 years, so it's nice to be able to go to someone where you don't have to start from scratch. I got my local doctor ( the one I go to when I have a cold or something) to order physical therapy for me as my sciatica was really flaired up. After talking with the physcial therapist she really felt I should get another MRI of my back as it's been over 5 years. So, we shall see. I did have an EMG once in my arm because my disc was so inflamed I had minimal reflexes...it got better and the EMG was fine. However, that was some 5 years ago. Not to be long winded, but I think it may aggravate the BFS.
I had a big test today in school and my left jaw started twitching...what's that all about. I swear, this is getting old!
Anyway, thanks for the support you all!
I will keep in touch and let you know what the next step is. Thanks for the support!
Sue
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Postby DogBone on March 7th, 2003, 12:24 pm

Folks,

I just wanted to applaud you for moving on with you life and going back to school. Just the fact that you are going back to school indicates that you are strong enough mentally to look past the next few years and you have understood that you are goinig to be around for a long time. I applaud you all for getting past the fears, you are all great examples to the rest of us.

Thanks,

DogBone
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Postby Davidd on March 7th, 2003, 8:59 pm

Susan--

Please let us know the result of your appt. I'm especially curious about the relationship between your back problems and the twitching, if there is one.

Dogbone-- Thank you for the compliment. You know, it's funny (ok, not really funny) but I'm not worried about having some life-threatening illness...but the worry that I have usually is that the twitching will just go on until the day I die. Maybe that sounds strange but I guess I think back to the days when I felt pretty good most days and was on top of the world. That said, I generally try to keep a positive attitude towards things and not try to worry too much. I guess that in a way every day is a small challenge but I know that over time it becomes easier and easier...except today when I had this stupid twitch in my upper back all day at work! It finally went away however... :)

--David
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EMG

Postby fastpage on March 10th, 2003, 4:22 pm

Have you had your tests? I am in much the same situation as you. History of sciatic problems, back pain, leg cramps. etc. This mostly cleared up and then the fasiculations set in a few months later. GP thinks they are benign but I haven't been to a nuerologist either. I am not really so afraid of the diagnosis (have had a few close calls in life so I am kind of used to the possibility of dying) except that in my case it may ruin my chances of replacing my insurance when COBRA expires. Anyway I am wishing for the best for you and wondering how you came out.
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Postby SusanSid on March 11th, 2003, 1:51 am

Hi,
My appt. is this Friday, March 14. I'll post what the doctor says, but if there are tests ordered it may be awhile before we have anything definite. I've been putting this appt. off for over a year, so it's about time, isn't it!
Sue :-)
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