Just found this site yesterday while looking at some neuro info site. I had no idea that other people have bfs and worry some much about other diseases (like als). Here's my story - I'll try to be as brief as possible.
Noticed my calves (both) twitching in April 2002 - maybe even months earlier. Can't remember exactly when it started because I just sort of ignored it. Soon I noticed other parts of my body twitchings, like arms, theighs, feet etc. Went to Dr. early June. Mri, Blood work, EMG a week later. All normal. My internist wanted me to see a neuro just to be sure, so I made an appointed for early October - everything fine. He went over my EMG and MRI and gave me a very extensive exam. Said I was fine and didn't need to come back. Now, I'm still twitching and my imagination is getting the better of me. You all probably know - maybe the Dr. was wrong, on and on...... I should also mention that my thyroid is totally out of whack. I had thyroid cancer 25 years ago, so I have no thyroid gland and take synthetic thyroid. Was on a dose of .175 for years and somehow either the pharmacy of my dr. goofed and since Octber 2001 I have been taking .3 (almost 2 times as much) of my thyroid medication. To make a long story short, my Dr. cut my dose in September to .05 and I ended up very hypothroid and feeling terrible. Still hypo after 6 weeks, so he just raised my dose to .1, and just last week, to .15. Anyway, I know that having thyroid problems can give you lots of symptoms (like cramps, tiredness, muscle problems, etc.) and I need to be patient and wait till I get on the right dose. In the mean time, I'm obsessing about having als. I still jog 2 miles every day and lift weight 3x a week. Why can't I let this fear go? Sorry to go on so long.
Sarah