Fibro or Lyme?

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Fibro or Lyme?

Postby Twitchlots on October 15th, 2004, 10:59 am

Hi everyone. Since my twitching lead to my having Lyme disease and never in a million years would I have thought that....I have been contacting people in my area that I have heard about who had fibromyalgia, chronic fatigue and asking them about their symptoms. I sent them info on Lyme and were shocked to learn that all of their symptoms were on the list! To make a long story short, they saw a Lyme specialist and are on antibiotics and doing well. One woman, 49 years old, went from being nearly bedfast using a walker for seven years to purchasing a mountain bike within 5 months on antibiotics. I've had my story on the front page of our two local newspapers. Here is a symptoms list in case anyone is interested. (PS: My ANA was 320...caused by the Lyme. I'm still on antibiotics and it's down to 40 now.) You do not have to have ALL the symptoms and you can have them in any combination. Although everyone probably has symptoms on this list, if you have numerous symptoms, I would wonder....

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
Sore throat
Loss of sense of taste
Difficulty Swallowing

Double, blurry or dim vision
Increased floating spots
Pain in eyes, or swelling around eyes
Over sensitivity to light
Flashing lights

Decreased hearing in one or both ears
Buzzing or clicking noises in ears
Pain in ears or sound sensitivity
Ringing in one or both ears

Digestive and Excretory Systems
Irritable bladder (trouble starting, stopping)
Frequent urination that is not normal
Upset stomach (nausea or pain)

Musculoskeletal System
Joint pain or swelling
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain

Respiratory and Circulatory Systems
Shortness of breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Heart blockage

Neurological System
Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Sudden jerking of fingers or entire limbs

Psychological well-being
Mood swings, irritability, rage
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Overemotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep

Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks

Females only:
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge

Males only:
Testicular or pelvic pain

General Well-being
Unexplained weight gain, loss
Extreme fatigue
Swollen glands
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well. (You may not even recall this.)

You do not have to recall a bite or have gotten the target rash to have Lyme disease. Less than 50% of people with Lyme do. The tick that carries Lyme is as small as the period at the end of this sentence and their nymphs are nearly microscopic. You do not have to experience ALL of these symptoms to have Lyme disease. It is also typical for many of these symptoms to come and go. It is possible to have Lyme disease and have a negative test result. Lyme bacteria hide in the spinal fluid, bone, tendons, muscle and nerve fibers and tissues and in many cases are not “floating” around in the bloodstream where they can be picked up on a test. It takes a LYME SPECIALIST to diagnose and treat Lyme disease and any of its associated co-infections. To find one go to
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Joined: October 24th, 2003, 9:56 am

Fibro or Lyme?



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