Breathing/lung capacity test, really worried.

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Breathing/lung capacity test, really worried.

Postby Tb12 on May 28th, 2019, 12:03 am

Hi guys,
Been going through this for 8 years now with no answers.
Today i had a breathing/lung capacity test due to breathlessness and sleep issues.
Its where you sit in a chair and blow into this machine in all different ways. Afterwards the dr said it was normal and then said theres a slight bit of lung restriction, we will do a more extensive test on your next appointment.

Could this be als?
Tb12
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Re: Breathing/lung capacity test, really worried.

Postby TwitchyDoc on May 28th, 2019, 2:47 pm

Hi, that is unlikely. Do you have any signs like morning headaches, daily sleepiness etc.? Have you had Xray of your chest (diaphragm weakness would manifest in its elevation)? If your problem is sleep apnea, a sleep study will determine its origin.
Anyway, EMG of paraspinal muscles and those from C3-C5 would give you a definite answer because if there was weakness caused by lower motor neuron disease, it would be obvious.

However, I think I do not need to say how rare is the respiratory onset of ALS (3-4 out of 100 ALS patients). The signs are not that specific, breathlessness at exertion and later at rest, but that happens with many other conditions. Any fasciculations around diaphragm or chest muscles, or cramps there?
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Re: Breathing/lung capacity test, really worried.

Postby Tb12 on May 28th, 2019, 6:22 pm

Hi twitchydoc,
I have twitched for 8 years, maybe longer, have had them all over including diaphram and chest.
Have had close to 5 emgs the latest about 3 years ago..
All were clear, limbs and face were tested.
Headaches and daily sleepiness on occasion.
Im having more sleeping issues than breathing issues, i just feel short of breath or like i cant get enough air sometimes..
But i can still do 45 minutes cardio.
Im only 34 and have had this going on since my late twenties..
Only new thing is the sleep issues..
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Re: Breathing/lung capacity test, really worried.

Postby TwitchyDoc on May 29th, 2019, 1:40 am

Dyspnea at exertion is typically the first sign when diaphragm and intercostal muscles weakens, so being able to do 45 mins of cardio is certainly a good sign. Have you had FVC measured? Anyway, if this is sleep related, a sleep study is a must.
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Re: Breathing/lung capacity test, really worried.

Postby Tb12 on June 14th, 2019, 1:58 am

Hi twitchy doc,

Got diagnosed today with obstructive sleep apnea, mostly causing hypoponeas.

My FVC was within normal range but the low end, all my lung tests come back within normal range, yet low end.

I have been prescribed a c- pap machine and told to lose weight.

Should i be concerned any of this could be als related?
Tb12
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Re: Breathing/lung capacity test, really worried.

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