update: 10 years, and doing great

BFS Online Support Group

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update: 10 years, and doing great

Postby jeje3 on May 20th, 2017, 9:35 pm

Dear All.

It has been quite some time since I last posted here. I joined in the summer of 2007, 10 years ago, in the usual state of panic about twitching and MND. Well it's been nearly 10 years now, twitching all over the place, I mean everywhere: tongue, scalp, feet, plus all the usual (and not so usual) voluntary muscle locations (and some locations that I wish were 'voluntary' :wink: ). Twitches, in legs and forearms in particular, are sometimes so strong that they wake me up at night.

So for all the new members here who are in a state of panic and anxiety: you won't believe me, but yes you are fine, yes you will be fine, no you are not special, no you don't have ALS, yes I had this symptom and that one and that other one too, yes I have seen a million neurologists and got gazillions of tests done, no the Neuros / other Drs haven't missed anything when they examined you. Yes I still have it, but I absolutely don't care about it. I am fine, and so are you. I am very relaxed, and so will you.

Cheers,
Jeje
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jeje3
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Re: update: 10 years, and doing great

Postby seanrblock on May 21st, 2017, 12:09 pm

Hey jeje!

Fantastic that you are doing well. I have had BFS for 13+ years now and am the same. Where do your feet twitch? I get them on the arches and outside edges.
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Re: update: 10 years, and doing great

Postby jeje3 on May 23rd, 2017, 10:13 pm

Hi Seanblock.

Yes pretty much same locations for me. I got them also near the ankle bones.
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Re: update: 10 years, and doing great

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