I first noticed fasciculations in both feet 8 months ago. Prior to that I had tight and 'overworked' feeling muscles in my right arm. My doctor at the time noticed very very obvious atrophy in my left palm (thinner muscle) which sent me loopy with fear, thanks to Dr Google.
I found this forum which calmed my fears about the twitching (which by then was all over my body, though remaining constant in my feet to this day). Physic therapy helped my arm a bit, but I since developed unbearable feelings of weakness in both hands. I also started getting food stuck in my throat constantly and my tongue started burning like I burnt it on soup.
I had 3 EMG's over the pat 6 months. First one was normal, second one showed large MUP's (chronic denervation) in my right hand and number 3 was just performed yesterday and showed large MUP's in all muscles tested (both hands, chest muscle and calf). The neuros here don't know what's been causing it. They said it's reassuring that no spontaneous activity was recorded (i.e. fibs and positive sharp waves). Still I am beside myself with worry, as my EMG's have changed over quite a short period of time. The docs want me to come back in 3 months for further testing.... I'm scared that next time the really nasty stuff is going to join the party in my EMG.
Had ANYONE here had an EMG that showed large MUP's with no explanation?
Needless to say, my twitches are out of control right now, especially in my feet. I forgot to mention that I also have a very sore ankle which has been like it for 5 months. I'm trying to think of the positive aspects. Normal reflexes and I can to the toe-heal walk. However weakness was found in my left thumb.. Docs are saying maybe some kind of Polyneuropathy, but the thing I'm really scared of is you-know-what.
I don't know how I'm going to cope waiting another 3 months for the next EMG. They're keeping me in hospital for another 3 days on anxiety medication, as I'm quite beside myself right now.
Sorry for rambling (must be the meds)... Really all I need to know if anyone can relate and has possibly had similar EMG findings in the past.
Thank you for reading, the very best to all of you twitchers out there x
) How scary for you to have been admitted to hospital with suspected MND. This has been my second stay at hospital. As your name is german, can I assume you are german? If so, do you happen to live in Berlin? I have been in the neuro department of Charité and then Schlossparkklinik last week. No real diagnosis, but as I wrote before atrophy and paresis was found in my left thumb (much much weaker than right). My EMG results you know, everything else was normal except a slightly heightened protein in my liquor (which is non-specific though). My reflexes were described as very lively, but not pathologically heightened. They have ruled out autoimmune disorders and, because of the lack of spontaneous activity in my EMG plus ok reflexes, ALS. They suspected an old polyradiculopathy (possibly from a virus infection), so a nerve root disorder with benign fasciculations. But I have to have another EMG in 3 months, which I'm very scared of.