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Re: Hyperexcitability phase

PostPosted: January 29th, 2015, 10:49 am
by joycecaroll
Okay I tried to drink a cup of coffee. Every time I swallow I get a sensation in my nose like there is a little bit of liquid there.

I'm thinking: well, at first the weakness would be really subtle, so this is probably how it would manifest.

Re: Hyperexcitability phase

PostPosted: January 29th, 2015, 11:39 am
by Yuliasir
Nope/ you just do not have enough muscles to compensate weakness here so if it comes - it comes clear.
many fellows here complain for this feeling of a bit of liquid going to the nose. I personally felt that too.

Re: Hyperexcitability phase

PostPosted: January 29th, 2015, 11:58 am
by joycecaroll
Thank you Yulia. Thank you so much. I feel better knowing that.

Re: Hyperexcitability phase

PostPosted: January 29th, 2015, 11:58 am
by joycecaroll
Thank you Yulia. Thank you so much. I feel better knowing that.

Re: Hyperexcitability phase

PostPosted: January 30th, 2015, 7:29 am
by joycecaroll
I woke up today and drank a cup of coffee while googling "normal uvula". Everytime I swallowed the coffee I felt like little bit came up my nose. Sat there for a good couple of hours saying "ah" while looking in a pocket mirror to see if the uvula was straight and if my soft palate rised in a good manner. Of course I wasn't satisfied. The uvula didn't really go up while I was saying "ah" and it also turns to the left.

Oh! And I noticed ons side of my tongue is smaller than the other.

I emailed TwitchyDoc a few videos of my uvula and also showed him how it lookes when I try to gag. Just normal stuff to send people you've never met, I guess.

Than my roomate came home and came in to the living room just staring at me crying and going "aaah" "AAAH" in the mirror.
What are you up to? She asked.
Oh, just checking to see if my soft palate is paralyzed. Have been to scared to swallow anything the last few days, you know.

Need less to say this is a new low. I've gone crazy on a whole new level.

Re: Hyperexcitability phase

PostPosted: February 7th, 2015, 5:50 am
by joycecaroll
Oh my God, I'm freaking out. Since yesterday the fasciculations on my tongue are constant and all over. I feel them every second. What do I do?

They don't stop if I use my tongue either. Is that typical for ALS? That they don't stop even when muscle is not relaxed?

Re: Hyperexcitability phase

PostPosted: February 7th, 2015, 10:16 am
by TwitchyDoc
Joyce, once again, there was surely no paralysis in your soft palate! From the videos you sent me, all movements were symmetric, no drooping or dragging of one side. You were satisfied and relieved, what happened? I believe you focus too much on possible nasal regurgitation and that is why you feel liquid up in your nasal cavity, possibly because of changed breathing pattern, selective perception and normal motility...
As for your non stop tongue fasciculations, I am nearly sure these are normal movements. You are under a lot of stress and possibly just perceive more the movements.

Re: Hyperexcitability phase

PostPosted: February 7th, 2015, 10:56 am
by joycecaroll
They are real. I feel them. They are strong. Is it something to worry about?

Re: Hyperexcitability phase

PostPosted: February 7th, 2015, 11:17 am
by SecretAgentMan
joycecaroll wrote:They are real. I feel them. They are strong. Is it something to worry about?


Will worrying solve anything? If not, then is anything something to worry about? Chances are that worrying is more your problem than the symptoms you fear. Yes, it is easier said than done to not worry, but if you don't do something to break that cycle you'll just carry on repeating it making yourself miserable. There are tools and techniques available to help you face your fears in your own mind. I like meditation and hypnosis, but there are others. There is professional help available to assist you. Please consider taking action in this area to make a meaningful difference at breaking this cycle.

Re: Hyperexcitability phase

PostPosted: February 7th, 2015, 1:13 pm
by joycecaroll
They don't stop if I use my tongue. Is this typical for ALS?

Re: Hyperexcitability phase

PostPosted: February 20th, 2015, 12:15 am
by joycecaroll
Help!! For the last few days everytime I swallow my medicine it get's stuck in my throat. Not like I choke, but it just feels uncomfortable. Even if I drink plenty of water the pills doesn't go down completely. Is this a a symptom of bulbar?

Re: Hyperexcitability phase

PostPosted: February 20th, 2015, 12:31 am
by Yuliasir
Nope, and it did not stuck in your throat. it is just the throat edema, most probably due to GERD, and it is well known to make a feeling of object (which in fact is passed) is stuck. The feeling might last for hours. Just let it go. I survived numberless issues like that, so it is not worth of any panick. Not a pleasant experience, but not a fatal too.

You practically answered your own question saying "even if I drink a plenty of water" :) should it be bulbar palsy, hardly you could drink a plenty of it :))))

Re: Hyperexcitability phase

PostPosted: February 21st, 2015, 6:38 pm
by misterjuanperalta
All,

Read this recent, relevant study: viewtopic.php?f=3&t=21446#p161287

Regards

Re: Hyperexcitability phase

PostPosted: February 22nd, 2015, 5:10 am
by joycecaroll
All night last night my tongue was buzzing in one spot. Is that fasciculations or something else?

Re: Hyperexcitability phase

PostPosted: February 22nd, 2015, 6:33 am
by Yuliasir
Nope it was just tongue buzzing, most frequently caused by jaw muscle tension (and this is most ptobably caused by nervousiness)