joycecaroll wrote:Also, another (hopefully my last) question: I had tongue twitches this summer to. Maybe 10 twitches, but this happend just one time. Then I didn't have any until september. If i count the time from this summer, this makes 6 months. After 6 months I should notice some weakness if it was ALS, right? I feel insecure about counting from this summer, since it was in september the twitches started to happen every day. What do you think? Can I count from this summer?
jc,
if you had tongue twitches this summer, and they were due to als, they wouldn't have stopped and then started up again, then stopped again. Once the disease process starts in als, it doesn't stop and start. unlike with bfs, it keeps progressing until the muscle wastes away. To be sure, this can happen at very different rates, but the point is that once it starts due to als, it continues. Given the fact that you haven't reported issues with loss of daily function I believe you are just fine.
also to be clear, not one single person on this board is an expert about
YOUR condition. The only expert about your condition is your doctor. This is a great place to seek support and information, but not one person here is qualified to dx you or even advise you on your specific condition. We are here to support you, and pass on the collective knowledge of all of our experiences, but unless a member is both qualified and performs an actual clinical exam on you, any information offered should be viewed as support and nothing more.
having been here for over a decade, i will offer you one last bit of advice and one last statement. 1 - do yourself a huge favor and get with a doctor to help with your anxiety. Most of us here have suffered through the extreme anxiety associated with bfs, and i can honestly say that getting it under control is the single best thing you can do for yourself. 2 - your condition seems to be no different than all the rest of us here.
Hang in there, things will get better!
gary