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Neuro Appt This week...help

PostPosted: November 24th, 2014, 7:54 am
by enzoli99
My neuro appointment has finally arrived. Its this week. Im more anxious than I have ever been.
My swallowing is getting harder and harder. Its been 2 days that my tongue hurts like when a muscle is tired. The twitching on my left leg is out of control.
Its a good thing that I am on 75mg of Zoloft and use Ativan to sleep. My poor wife cannot take it anymore.
According to your own experiences with neurologist appointments...
Does anybody know if the neurologist may be able to calm me down with one visit? Or will it make things worst. ( like him saying that you need other appointments and tests to see , I cannot tell you anything today).

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 9:27 am
by LKP1231
If I recall you've been they the whole neuro process with tests, correct? If so I think he will be able to calm you down on this visit! And if you haven't, yes he can still calm you down at the first visit. Your symptoms are just like so many here. Anxiety does a number on our physical bodies.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 9:50 am
by LKP1231
Also I don't believe w *** you have symptoms in leg and tongue at once. It's one or the other for a while. That certainly was my late husbands story. All limbs first, other symptoms much later. Try to relax if possible.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 10:09 am
by enzoli99
LKP1231 wrote:Also I don't believe w *** you have symptoms in leg and tongue at once. It's one or the other for a while. That certainly was my late husbands story. All limbs first, other symptoms much later. Try to relax if possible.

Oh no ! My tongue does feel weird, heavy, and tired just like when a muscle is tired. My leg has been feeling weaker the last 4 months...I think its better if I don't know the symptoms because I will have them all once I learn of the symptoms.
Im so scared, I cant handle it.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 10:30 am
by LKP1231
Nooooo! That was supposed to calm you not scare you! The legs and tongue don't start within a few months of each other! One would be the beginning the other towards the end! I'm sorry that was misunderstood! You will be ok!

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 10:49 am
by enzoli99
Ohhhhhhhhhhh ok ! I know you don't mean to scare me or cause more anxiety. Its me . I'm just too scared and nervous.
I wish I could wake up tomorrow and have a complete memory loss of the last 4 months. Its been so hard.
I don't look at the symptoms on-line anymore. I feel like I bring them on one by one. I now have 3 or 4 of the symptoms and Im stopping there.
I hope I will be ok.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 11:18 am
by LKP1231
I know exactly how you feel. Our time frame is similar too. It's exhausting.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 11:24 am
by enzoli99
I send you positive vibes and I am sure you will be ok. Best of luck. :-)

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 11:30 am
by LKP1231
Back at ya :)

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 1:41 pm
by Scboy
Based on my experience Ativan can cause all kinds of weird symptoms. I would be very careful with that drug. I am down to 0.15 mg a day and hope to be off by January or February. I am so sensitive I need to do a liquid taper and reduce 0.05 mg at a time. I really feel it when it's time to cut my dosage by just 0.05 mg. One of my neuros said that the Ativan is likely putting gasoline on the fire with me and I need to be off of it. But everyone is different.
The most likely thing that will happen from your neuro visit is that he will do a bunch of reflex and strength tests and tell you that you are fine. I hope it goes well for you and you can find some peace.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 2:47 pm
by enzoli99
Scboy wrote:Based on my experience Ativan can cause all kinds of weird symptoms. I would be very careful with that drug. I am down to 0.15 mg a day and hope to be off by January or February. I am so sensitive I need to do a liquid taper and reduce 0.05 mg at a time. I really feel it when it's time to cut my dosage by just 0.05 mg. One of my neuros said that the Ativan is likely putting gasoline on the fire with me and I need to be off of it. But everyone is different.
The most likely thing that will happen from your neuro visit is that he will do a bunch of reflex and strength tests and tell you that you are fine. I hope it goes well for you and you can find some peace.

Thank you so much for your advice. I take 1mg a night to help me sleep. I hate to be on pills. all my life I avoided even pain killers. The thing is that I am too worried about having *** so I have no choice but to be on pills. I hope that I will be ok at the neuro. I feel like my neck is closing in...always swallowing. And now my tongue hurts. and that my leg is weakening. I really hope its all in my head. I really appreciate your advice and words of encouragement. Peace back at you and health.

Re: Neuro Appt This week...help

PostPosted: November 24th, 2014, 7:38 pm
by SecretAgentMan
enzoli99 wrote:The thing is that I am too worried about having *** so I have no choice but to be on pills.


Understand that you always have a choice. Have you ever seen the Will Smith movie 'After Earth'? If not, you still may have seen the relevant quote in the previews. He tells his son, “Fear is not real. It is a product of thoughts you create. Do not misunderstand me. Danger is very real. But fear is a choice.”

Consciously or unconsciously, when we participate in fear, we are making a choice. The power to change that decision is always ours, as difficult as it may seem at the time. Perhaps instead consider making a choice to empower yourself. Have you considered taking part in the meditation challenge? See the thread here: viewtopic.php?f=4&t=21252

Everyone here who is scared and feeling powerless would amaze themselves at what they are capable of. Fear, panic, and worry are the easy choice. The are the result of letting 'fight or flight' run its course unchecked. The only way to break that cycle is to empower yourself and change your thoughts and change your behaviors. Not making any changes will just give the same results. Meditation is key in mastering your mental discipline. Meditation is excellent for reflection and contemplation. Meditation is excellent for relaxation. This is but one tool among many to empower yourself and make changes for the better. Please consider trying it. Good luck.

Re: Neuro Appt This week...help

PostPosted: November 25th, 2014, 7:22 am
by enzoli99
Secretagentman,

I will definitely try it. I would take the meditation and natural way anytime over chemicals and drugs. If all goes well at the neuro ( which I am praying for), I will take your advce. Thank you sooooooooooooo much ! Peace and health!

Re: Neuro Appt This week...help

PostPosted: December 1st, 2014, 2:28 pm
by LKP1231
Hope everything went well.