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Re: short breathing - strange feeling in breast

PostPosted: November 26th, 2014, 12:50 pm
by German2
Dear Yuliasir,

home again....and feeling worse than ever..The hospital recommended me to another one with a rheumatology and a good professor..Now I have to wait until 6th of January. My legs are so weak today, that I can hardly walk. But I feel in general very very sick and shortbreathing...My lung was fine on ct. Xray was an artefact. False shadow..Neuros are all not concerned. als expert just had a small chat with me...not taking my weak feeling serious. But I feel like dying soon...Tommorrow I see a famous immunologist. Hoping hoping hoping...

Re: short breathing - strange feeling in breast

PostPosted: November 26th, 2014, 2:52 pm
by LKP1231
Hoping for you, too.

Re: short breathing - strange feeling in breast

PostPosted: November 26th, 2014, 4:28 pm
by Bibi
Hi german

Have They ruled " All virus " out ? I remember having parvovirus b19 , When my daugther was little , she had A red rush and A week later i had fever and pain in my legs . The fever was on / of for A couple of month and i was very tired and had this burning pain in my legs. I went to my gp Several times and she did an xray of my lunges . Theres was A shadow in my Right lunge but no signs of infection. I had A lot of bloodtests taken and finally it showed up as parvovirus b19. In adults this infection Can be quite " hard " but of course i Would Think that They have checked You for virus.

Re: short breathing - strange feeling in breast

PostPosted: November 27th, 2014, 1:10 pm
by German2
No Bibi, I think they did not check me for any virus yet. Today my lymphedema is back, and I have pain in my pleura. I was at an immunologist who did several tests to see whether I have an immune deficite...If that is the case, there would be a cure...I suffer mostly from my loose of muscles and muscle pain...even the als expert looked several times at my hands...but then saying..no. It is no atrophy...but seems not to be sure. Just about the fact that mnd is ruled out due to time period...But as I told him that I have muscle vibrations he asked me to film it, if it is visible..But to be honest, I don't know whether it is visible. The vibrations always happen in bed...I cannot watch myself. Ok, the twiching during day is visible of course. But too random to film it. It's there and then it is away again....No chance to catch it.

Re: short breathing - strange feeling in breast

PostPosted: December 3rd, 2014, 7:42 am
by LKP1231
How are you doing?

Re: short breathing - strange feeling in breast

PostPosted: December 3rd, 2014, 4:39 pm
by leaflea
German2 - tell us more about the lymphedema. Where do you have it? It went away? When did you first get it? Do you do anything to manage it? Do you know why you have it? I have it and thought I was the only one...it happened just before all this bfs, both legs for no known reason unless maybe genetics. I had to undergo a throrough cancer screening, all but my head was checked. Verry stressful and took months to get in with proper specialists. I blame the stress of it for causing the bfs.