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AboutBFS.com • View topic - Yes, swallowing problems now. Seeking support

Yes, swallowing problems now. Seeking support

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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 24th, 2014, 7:58 am

Hi everyone. The ENT scheduled a colonoscopy and a endoscopy for Dec 8. He said that reflux issues would MAINLY explain all of these things.

This is where the freak out part comes in:

My primary care doctor told me to show him the positive ANA blood test result. The ENT said this most likely does not have anything to do with my issue, BUT it does say on the report that things like sclerdoma? or other diseases related to the ANA could cause "MOTOR" issues, which would cause the muscles to not get food down like normal, then he said, "for instance, you said that food sticks in one spot in your throat then flushes down eventually..."

I asked him to clarify if he thinks that is what it could be because that scares me, and he said "it's a far fetch, but these things can happen, and if we think after the procedures that you also need a pressure test, we can have one done. But if your issue was due to motor problems, I believe you would also complain that the food is getting stuck also further down."

I'm shaking in my boots again. This stupid word: "motor" ....I hate it!!

So, if there are motor/pressure issues, and if it's related to positive ANA, then that still points away from MND, right?

I have a separate question about reflux disease. ENT explained it that the esophagus does not close back up properly and let's the acid come up. Well, why does the esophagus not close properly?
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Re: Yes, swallowing problems now. Seeking support

Postby Yuliasir on November 24th, 2014, 8:37 am

Esophagus is not closed properly becasue you have dysfunction of autonomous system caused most probably (practically 100 %) by long term anxiety. Esophagal peristaltic and operation of two valves you have inside are coordinated mostly by action of vagal nerve, part of autonomous nerve system. When it is out of balance and hyperexcited, you have not only bad closure of those valves, but even bakward preistaltic causing regurgitation etc.

Your doctor is right saying you must be having more issues in case of any dysphagia caused by motor neuron diorders. Feeling of the food stuck in the throat for long time is also very common in GERD (becasue your esophagal mucosa is swollen and hypersensitive too -well just imagine you poured strong hydrochloric acid (and acidity factor of your stomach juice is 2 to 4, which is qute strong acid) to your eye for example (God spare you of course from such experience) - definitely each smallest piece of stuff getting onto burnt and swolled mucosa would leave the feeling of foreign object stuck to it...
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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 24th, 2014, 9:07 am

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Re: Yes, swallowing problems now. Seeking support

Postby Yuliasir on November 24th, 2014, 10:11 am

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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 24th, 2014, 11:57 am

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Re: Yes, swallowing problems now. Seeking support

Postby Yuliasir on November 24th, 2014, 1:10 pm

he did not mean motor neuron issues, believe me :) he must mean motoric issues, as generally esophagus becomes less motile and has less tonus due to changes in the tissue, not in ennervation (as far as I understand the nature of the disease).
Wish you good luck with all those not very pleasant investigations and hope you could be properly treated then for your GERD :)
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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 24th, 2014, 1:29 pm

He did say "motoric"....exactly that word, but I thought that was "motor" in English.

And thank you! I hope it all goes by fast...
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Re: Yes, swallowing problems now. Seeking support

Postby LKP1231 on November 24th, 2014, 1:32 pm

None of this says anything about mnd. I think you can stop worrying about that. Everything going on with you is treatable, just might take some time. You should be glad.
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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 26th, 2014, 6:44 am

Ok guys check this out:

I was sooo nauseous yesterday and around 3pm I started throwing up at work, same time had severe diarrea.

I went home to rest but it got way worse, could not stop, was freezing and shaking but no fever. My circulatory system crashed and I was rushed to the hospital. Also terrible stomach pains and lower back pain (kidneys). They helped me with meds for throwing up and pain. They are keeping me in isolation until they can rule out a contagious stomach virus, but they know my history of gastro type issues and that I just visited the ENT. They may do the scopes on me here in the hospital. They said it could be a gastroenteritis (spelling?) or a chronic gastro issue.

One question that I wanted to get your opinions on:

Lately, past few weeks, I've been getting this tingly feeling on my forehead where my hair meets my forehead. It feels like my hair is moving but it's not. Not a twitch, more of a vibration, crawling feeling. It is not constant but has been there for a few weeks. Same spot. Until this vomiting spell last night, I didn't think much of it, but now I'm wondering if this is connected somehow?Should I be worried about that or should I tell the doctors that?
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Re: Yes, swallowing problems now. Seeking support

Postby Yuliasir on November 26th, 2014, 8:00 am

Xina,
I do not think you shall worry about mildest issue of paresthesia (this crawling feeling at the edge of hair line) compared to what you suffer right now.
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Re: Yes, swallowing problems now. Seeking support

Postby LKP1231 on November 26th, 2014, 9:10 am

I don't think the feeling in your forehead is worrisome. I hope you are feeling better.
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Re: Yes, swallowing problems now. Seeking support

Postby physerv24 on November 26th, 2014, 9:19 am

Xina,

Certainly sounds like you are having a bout of gastroenteritis. Dehydration is quite common with this and since you are in the hospital, I'm sure they will control this but before you went to the hospital, with all of your throwing up, you likely became dehydrated rather quickly and I'm sure your electrolytes were out of balance as well. This would likely exacerbate your BFS symptoms as would any type of virus. I am a firm believer that BFS is indeed an autoimmune disorder. Therefore when our immune system is under attack, due to a virus or infection, our symptoms will likely multiply and/or increase.

Focus on one thing at a time. Get the gastroenteritis under control then you can worry about the BFS. Best wishes for a speedy recovery.

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Re: Yes, swallowing problems now. Seeking support

Postby Xina535 on November 26th, 2014, 9:32 am

Thank you all!

Does anyone think that these symptoms I've written about here (throat tightening, excess saliva, strong hiccups, etc) , which have been going on for some time are a part of what's happening to me now?

If this was due to a random 24-hour stomach flu then what a coincidence that would be! Just something coming in randomly to mess me up when I've got these other things happening. Oh my hand OP to remove that ganglion cyst on Tuesday is now cancelled. I feel like I'll never get rid of this thing!
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Re: Yes, swallowing problems now. Seeking support

Postby Yuliasir on November 26th, 2014, 10:37 am

I do not think that there is "to much coincidence". Usually chronic gastritis may be accompanied with diarrhoea, may have nausea as an ongoing symptome, but violence of your symptomes (simultaneous vomiting and diarrhoea rather points to infection (and the only strange thing is that you did not had fever). Kidney pain also indicates intoxication. So maybe you really eat something wrong but not bacteria...
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Re: Yes, swallowing problems now. Seeking support

Postby mwagner on November 26th, 2014, 11:06 am

If it helps at all, I get the buzzing on my forehead, almost in the same spot, fairly frequently. Sometimes, it will last a week. It's really strange, but I chalk it up to BFS weirdness. I've had it for a long time. I don't think your doctor will care -- it's just a strange symptom of a strange syndrome.
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Re: Yes, swallowing problems now. Seeking support

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