by Magiga569 on October 23rd, 2014, 1:26 pm
Hi everyone,
I've posted a few times. My symptoms first started June '13 - twitching in my left arm, out of the blue. Since then my twitches have never gone away completely. Sometimes they are really bad - am having a bad episode now with twiches, pulses and flutters. In the past five days I've had them in my legs, feet, hands, side, butt, face and shoulder. They are worst when lying down, then when sitting. When I'm up and moving around, I don't feel them much (I think they're still there, but perhaps movement dulls the sensation?) I'm coming off a stretch of poor sleep (mostly because the twitches keep me awake, which makes me nervous). My legs feel tired and a little wobbly, and my left big toe feels weird.
I had a negative MRI a year ago August, as at that time I was also having numbness and tingling throughout my body. Sometimes my twitches aren't that bad and I actually feel good about things again. But this is a particularly bad spell and it makes me nervous. Sometimes I get so scared I feel sick.
I had a dr. appt. a couple weeks ago and mentioned my twitches - he asked a lot of questions - are they on just one side, what do they look like, etc? Of course at that time I was having no twitches so couldn't show him. He did mention fasiculations. I also started an SSRI at that time due to anxiety I've been having (not related to the twitches) but can find no mention of twitches as a side effect of the medication. I know EMG is the only conclusive test to rule out you know what, but am petrified to have it.
I have two kids, one of whom is disabled and one who has OCD. The thought of having this terrible disease and not being here to see them through their good and bad times devastates me. Though I know some of you may read this and think it's in my head or caused by anxiety, I assure you, I am not imagining these twitches and have had more stressful times in my life (deaths, no sleep for months, etc.) and never had this problem. I am able to type, brush my teeth, drive, eat, etc., with no problems, but when my legs feel like jelly at times or I get these new pulses that make my whole arm or other appendage twitch, I get so scared. Could it be the dreaded disease working its way up and this is only the beginning? Any help or reassurance would be much appreciated, and thank you for your support. I wish everyone reading this welll and thanks again