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Re: Having a bit of a meltdown

PostPosted: November 18th, 2014, 1:28 pm
by elliottok
bobajojo wrote: So, they said they were going to administer a special test and try to induce cramps in my foot and measure the nerve response. They put the device against my Achilles and zapped me like 20x in a row and they were very strong. Stronger than the original NCS.


Dude that sounds awful. The zap part of the EMG is the worst - can only imagine how much the cramp zaps must've sucked. That right there is enough for me to never get another EMG again. I'll take a clean clinical diagnosis any day.

Re: Having a bit of a meltdown

PostPosted: November 18th, 2014, 2:24 pm
by misterjuanperalta
Did you see Devon too?

Re: Having a bit of a meltdown

PostPosted: November 18th, 2014, 5:32 pm
by Little Lost
Thanks for the info Matt. I am planning to see neurologist in new year so will mention this to them. Now you run far from here and get back some of the good times you have lost. This *beep* has taken enough from you.

Hx

Re: Having a bit of a meltdown

PostPosted: November 19th, 2014, 10:19 pm
by leaflea
Matt, were they able to induce a cramp after all of that?

Re: Having a bit of a meltdown

PostPosted: November 21st, 2014, 8:10 am
by bobajojo
Leaflea,

I didn't feel any cramps so I figured the test was negative. But I did test positive so maybe the machine was registering a lot more than I was feeling.

-Matt

Re: Having a bit of a meltdown

PostPosted: November 21st, 2014, 3:19 pm
by edado69
bobajojo wrote:Just an update. I was officially diagnosed with PNH today. This is stemming from a specialized test that they administered as part of my NCS/EMG on Friday to which I tested positive.

I'll elaborate more later but just wanted to update.

-Matt

Hello Matt,
Glad to hearing that there are no big news - I mean unexpected news...- and always very thankful for the valuable information you bring to this site. So, alike me I suspect, we are just big twitchers...Today my pec (left) is twitching very strongly, perhaps happy for you ;-) I say happy, because it seems to me that you are followed by a very caring Neuro team. Yours, Ed