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Is bfs a progressive condition?

PostPosted: September 21st, 2014, 12:23 am
by Adamk
I have been dealing with bfs for about 17 months now and it has gotten a little better. But I recently read a survey by someone online and he said it is a progressive condition and will continue getting worse unless it was caused by stress. That made me freak out and I'm worried that I will get twitching worse and worse. I hope some of you can give me a reassuring note of your own experience so I don't spend the next few months worrying about this.

Re: Is bfs a progressive condition?

PostPosted: September 21st, 2014, 12:41 am
by RGB
No.

I probably need to do more than that don't I? :) I'm sure others will be along shortly to add their personal experiences so I'll restrict myself to the infamous Mayo Clinic study...

Sixty of the patients [followed up] indicated that their symptoms including fasciculations had improved, 40 observed no change since the time of their diagnosis, and 5 felt that the fasciculations had become more prominent.

RGB

Re: Is bfs a progressive condition?

PostPosted: September 21st, 2014, 3:23 am
by MarioMangler
In my opinion it just comes and goes. Sometimes it is better, sometimes it is worse. I wouldn't call it progressive from my experience because mine can just completely go away for months at a time. But then other times it is worse than ever. So who knows. To me it doesn't seem to follow any sort of a progression.