Worried it's als

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Worried it's als

Postby nryanh94 on August 6th, 2014, 5:19 pm

I've been twitching for about 3 weeks now and feel as if my right leg is weaker specifically the calf and it is visibly smaller than the left.

I had a neurologist appointment today and he said that overall my exam findings were normal. It was a short exam testing reflexes strength etc.
he said it was normal yet he's ordered an emg in 3 weeks and blood work.

If there was atrophy would the neuro be able to detect weakness easily. as he would not tell me I didn't have als he just said I had a normal neuro exam

Please help.
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Re: Worried it's als

Postby leaflea on August 6th, 2014, 7:08 pm

Congratulations on the normal clinical exam! Check it out, the normal clinical is even more important then the EMG. Ordering bloodwork is absolutely standard. EMG for reassurance and also nice to bill. ALS rarely presents with twitching, and when it does, SOMETHING is out of place in the clinical exam - about 100% of the time. So, don't sweat it. Don't go down this road of second guessing every little thing that was said. Focus on three words "Normal Clinical Exam" and go celebrate already! This is a happy day in this journey. Breathe!
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Worried it's als

Postby nryanh94 on August 7th, 2014, 6:43 pm

Thank you so much for your words of encouragement I'm just worried because my right calf is visibly smaller,( mother and girlfriend noticed it) and the right calf seems to be progressively getting weaker. I'm Unable to do as many calf raises as the day before continuously the leg gets really sore to the point of exhaustion around 40-45. However, the neuro didn't find any weakness in his exam idk if it's continuously testing it or not.
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Re: Worried it's als

Postby nryanh94 on August 7th, 2014, 6:45 pm

Also I trie to play basketball the other day and noticed whenever I would jump as har as I could when I landed the right quad would twitch really badly. And the right leg is where 80-90% of my twitches occur is this typical of bfs?
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Re: Worried it's als

Postby leaflea on August 8th, 2014, 10:30 pm

I don't know... I am not a doctor and did not see you, but I know that a doctor can detect true atrophy and weakness better than me, you, your mom or your girlfriend. And an EMG can pick up the slightest abnormality.
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Re: Worried it's als

Postby nryanh94 on August 10th, 2014, 10:35 am

So is it safe to say that if I had als, since I've been twitching for a month that my dr. Or neuro would have found significant weakness on the exam. Such as foot drop, inability to stand on toes?
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Re: Worried it's als

Postby cecsix on August 12th, 2014, 6:41 am

I'm not a doctor, but most of the time, the answer is yes. Cases of als beginning with twitching make up a very rare subset of a very rare disease. How old are you? If you're under 40, you can make the odds even longer that it's anything horrible. If you're under 30, it's not impossible, but pretty *beep* close to impossible, that it's anything horrible. Nobody here can tell you 100%, hell, most of us who've seen neurologists don't even get 100%'s. Understand that many of us have been twitching for years, not a few weeks. Many of us have been through numerous neurologists and EMG's, and as far as I know, we've all wasted a lot of time and money worrying about what you're worrying about, only to find out that we have something much more minor and manageable like BFS, or some other manageable, benign issue that may or may not resolve on it's own. Worrying about it will only make it worse. Go get your EMG. I've never met you or examined you, but based on what I know, I'd bet my own good money that your EMG will be normal, and with a normal clinical exam and normal EMG, you'll be able to hopefully put your worries behind you. I know waiting a couple of weeks for that reassurance seems like a long time, but really, it's not. Go enjoy life and focus on other things - like your girlfriend.

Lastly - my own personal story in a nutshell - I have been twitching basically nonstop in every area of my body - even some really weird ones - since January of 2013, if not longer. It took two EMG's, what seemed like dozens of blood tests, a muscle biopsy, and MRI's, CT scans, a sleep study, etc, and finally at my last Neuro appointment, he said "I THINK this is BFS". My point is, this rule out process can take a while, and even a specially trained Neuro might have a hard time giving you a definitive answer (mine was a fellow at Emory in Atlanta and is a Neuromuscular disease specialist). Just hang in there, go through the process, and as long as you can walk, talk, breathe, do toe raises, etc, keep doing all of those things and enjoy doing them. Hope this is helpful.
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Re: Worried it's als

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