Another wave of fear of the hurly burlies

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Another wave of fear of the hurly burlies

Postby btierney11 on July 15th, 2014, 1:36 pm

Hey all,

It has been almost exactly a year since I posted last making me wonder about the cyclical nature of this condition and my responses to it. After three years I have noticed an ebb and flow of coming to terms with BFS followed by waves of angst that it is not getting better and subsequent immersions into fears that it must be more than simple twitches. The current wave of fear is that I have some sort of nasty cyst or tumor on my cervical spine that must be the cause of my arm and chest twitching. In searching the discussion forum, I have seen several folks that have visited this port of call and was wondering what collective wisdom still exists around that particular fear. I could say that I am a massage therapist and that in touching my neck there seems to be a distinct asymmetry in the tissues from side to side, but a deeper instinct is telling me that I might as well just rest in the fact that I have BFS and not get my undies in an uproar such that I go to the medical community for support. I at least wanted to bring it here first because this community seems to be doing more research into our symtom predicament than anyone else ; )
Any words of support and wisdom?
All the best,
Brian
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Re: Another wave of fear of the hurly burlies

Postby leaflea on July 15th, 2014, 9:57 pm

Hi Brian,

All I can say is that if it were a tumor, after this amount of time, you would know it! If it were ANYTHING nasty, you would not have to wonder. Many of us do seem to suspect something involving the back is causing this mess. I started having pain in my upper thoracic area about 6 months before this started. I have HUGE and OBVIOUS assymetry back there, but I can't be sure if it is new/worse or not since I also have pretty severe scoliosis, and know I've not been symmetrical since my teens . I did go to PT for this back pain, which seems it might be a "paraspinal" muscle. It didn't help. It is a deep, very focal pain. Today I looked in a mirror and there seems to be a divot in that area of the spine, like a 1.5 inch vertical crease. I'd be interested to hear from anyone else with scoliosis? anyone else who has had a back MRI that turned up anything? I plan to get an MRI. Sometimes my upper back is so sore and burns so much I have trouble keeping my posture. Brian, as a massage therapist, have you ever heard of the paraspinal muscles? I had a massage therapist tell me there is no such thing. Also, if you wouldn't mind telling me what you think "congested" muscles might mean? I've had two separate massage therapists tell me my muscles feel congested since this started and not sure what to make of that. Hope you get to feeling better again soon!

All the best --
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Another wave of fear of the hurly burlies

Postby Yuliasir on July 15th, 2014, 11:10 pm

Hi Brian,

probably therer is a certain cyclic events in your life, like, for example, less job for summer months when people are on vacations, then more anxiety, usually not consciously accepted, then a bout of twitching, thena bout of health anxiety as your mind considers this is an acceptable one.
it is just an exemplary story becasue I am not Baba Vanga (a blind Bulgarian claryvoyant lady) but you may know yourself better.

on the other side, it is highly doubtful that any of malignant cysts could just give you a twitching in a several years.

for the Leaflea,
not sure 100 %, but looks like 'congested' means badly fed with blood circulation. Bad circulation usuaally means chronic ishemia to a certain point - pains, cramps etc.
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Re: Another wave of fear of the hurly burlies

Postby btierney11 on July 16th, 2014, 9:12 am

Hey Leaflea, thanks for your reply. "Paraspinal" is a general term for the enormous amount of complex spinal musculature and is not used that much because it is imprecise. I recommend Rolfing for anyone with soliosis at the level that you have it- It is a powerful series of ten deep-tissue sessions that can get some great results. Congested muslces is just a sense that we massage therapists get when there seems to be a lack of vitality and circulation in the musculature- exercise and regular massage sessions can help with that. :D
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Re: Another wave of fear of the hurly burlies

Postby Nytviolet on July 16th, 2014, 9:35 pm

I have thoracic scoliosis and (according to recent X-rays) a seriously messed up cervical spine. It causes mid back pain and twitching and aching / feelings of weakness in my left arm -- I'm due to see an ortho on 7/25, but am researching the Bowen Technique. Oh, I've been twitching for 17 years (worse the last several months though). And ANY sort of anxiety sends it into overdrive. I take Ativan as needed and it helps a bit. When was your last film of the spine taken? Best wishes, -Nyt
2 Timothy 1:7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.
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Re: Another wave of fear of the hurly burlies

Postby leaflea on July 16th, 2014, 10:22 pm

Thanks for your reply NYT! This is SO helpful. Last specific films over 10 years ago. I am 47. I forgot the degrees exactly, but about 40 some in the thoracic area. I have made an appointment just today for seeing the spine specialist in mid August. I have had a CT and x-ray for other reasons and they always note "significant scoliosis" but they don't measure it or anything. I really want to get a back MRI instead of more radiation. Thanks for the info on Bowen. I get regular massage and will be asking about this. I also sometimes find deep tissue painful. I get twitching in the scapula area and it drives me more mad than some of the rest. Also am developing weakness just this week in the left arm and feel it may be related. Seeing you've had this for 17 years eases my mind more than you know. Did they tell you twitches could be the result of your spinal issues? Did you have EMG yet? I have and it was totally normal. I thought something would show if I had spinal issues. Thank you.
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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