what a horror-statement! scared as hell

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Re: what a horror-statement! scared as hell

Postby readytocheckout on June 15th, 2014, 7:24 am

German2 wrote:that really doesn't sound very reassuring to me


I have so many doubts but I have to believe the experts who tell me that I don't have anything nasty. I can fully accept that I have BFS but I'm sure that there's more than just that going on which is what keeps the doubts lingering. For example, why do my eyebrows look drooped and I have a tightness on my face, this after I had 2 non stop weeks of eye twitching. So many doubts.
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Re: what a horror-statement! scared as hell

Postby German2 on June 15th, 2014, 8:26 am

I really do understand that. They told me I have a somatic disorder for a long time. Now they see it is not like this. But maybe we have to believe that als follows certain rules for the vast majority of cases..
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Re: what a horror-statement! scared as hell

Postby leaflea on June 15th, 2014, 2:58 pm

German - check out Tobes story. There are a few others around here - who have mostly moved on - who have actually been diagnosed with als! Imagine. Only to find they are just fine! Search posts made by "Tobes"
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: what a horror-statement! scared as hell

Postby German2 on June 16th, 2014, 5:22 am

Thank you all for your supporting words! Nevertheless I was too stressed to deal with the situation and went to a further neuro today. He has experience with als clients, so I could be sure, he knows the desease (my neuro has non of those clients). He said what the physio said is absolutely not true. There would be no signs of MND. Maybe it would be all due to the hashimoto, maybe due to an infection of a certain bacteria which was indeed found in my blood. To my holes and smaller thenar left, he said "it's nothing". Again, I have to start to crawl out of the deep hole in which I have been fallen, with what the physio/ostheopat said to me..
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Re: what a horror-statement! scared as hell

Postby Yuliasir on June 16th, 2014, 6:31 am

that's what we told you: neuros know their job, ostoes know their's one. trust the neuro.
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Re: what a horror-statement! scared as hell

Postby chrissi on June 19th, 2014, 10:13 am

Increased muscle tension...lol...I don't know if you know my story, maybe you want to check out my old posts. My muscle tension as well as my reflexes were incredibly increased. Well, there's been a lot of discussions about the reasons for BFS, and I do not want to dig those out because they seem various. My story: I saw a Fibro specialist and he dxd me with an increased muscle tension and hyperreflexia and a few other things, triggered by a stress reaction to a virus and anxiety. To make it short: he cured me completely.
A few days ago, in a phase of extreme stress and sleep deprivation, I cought a virus from my eldest son and had a 2 day extreme relapse. I copuld literally feel my muscles tensing up and starting to twitch, vibrate and shake like mad, and felt the pain and stiffness creeping back.
I am glad this went over so quickly (I had already forgotten how BFS felt), but increased muscle tension is very likely found in anyone here. And PS: you physio is an idiot that completely lacks any sense of correctpsychologica handling of clients
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Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
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Re: what a horror-statement! scared as hell

Postby German2 on June 20th, 2014, 9:26 am

Dear Chrissi,
thank you for your helping words and short sum up of your symptoms. I have fasciculations now for 11 month, but my story started almost 2 years ago, with sensible sensations and twiching of my pinkies...and nerve pain..During that time my muscle behaviour changed and I also have a slightly decline of my muscles in hands and feet. They were partly reversible. But go on. A few weeks ago they've found antibodies against my nerve system. So there might be s.th. going on in my body. And I don't know how it can stop. Actually I am starting on cortisone. I've seen a few neuro muscle expert and one als expert telling me it is no neuro muscle desease. So I have to believe it is no MND. But of course anxiety is in my head. Because there IS s.th. strange going on...I am just hoping that I can believe that I'm really outdated to als...
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Re: what a horror-statement! scared as hell

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