I am back and very scared:(

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Re: I am back and very scared:(

Postby Edina26 on June 12th, 2014, 12:46 pm

Hy and sorry for my last post :( I was in a bad place thank you so much for replying to me . The whole day I was a mess I tried to find an neurolog that does an emg in my town or the nearest town and could find one available in the next 3 months . I had an appointment today with my ortopedic doctor to see my leg bc it was in a cast and I asked him about my hand I told him about the pain fasciculations and off course the atrophy and yuliasir I think you were right ( I hope so) he said that it appears to him that the right forearm muscles have a bulge and and it just had been build different then the left hand he shoed and measured my hands and my right hand has more muscles then my left , when I contract my right hand it si bigger then the left one . He said that he dosent know wy I do have the caving near my elbow but it can be a torn muscle or a ligament that haven't recover .he said he dosent know for sure but in his opinion I should not stres about it to much bc my hand is very strong and the big muscles don't look atropyed .but then I am thinking what if my hand was indeed bigger and now it starts to cramp and atrophy? About the weaknes he said he dosent feel that my right hand is weak maybe stronger then his ( I did 12 years of handball ) but I know he was joking . About the fasciculations he told me it can be anxiety or lack of vitamins or something else:( but he cannot advice me for that bc is not his domain . And about the pain he said it can be from elbow or spine . But for now he will not send me to make any radiations bc I did enough so maybe we should wait . Off course it came home and started to analyze my hand again and I think he is right I really didn't see the whole hand only the caves . And my mind just exploded with bad thoughts . The thing is that I still have pain in hand and fingers and they still feel stiff ,maybe from the pain ? I don't know .and I still have the fasciculations I feel them everywhere now are in my hand then in my other hand then in my neck , abdomen , leg , foot ...it's nuts this is driving me crazy ...and I don't now anyone else that has them ...my family my future husband nobody . I'll try to relax a little bit maybe go back to the gym and try to stay focus on something else than google . Yuliasir you are so nice to suport me I don't know how could I thank you enough . I'll come with updates .
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Re: I am back and very scared:(

Postby Yuliasir on June 13th, 2014, 12:24 am

look if you were a handball player... you really may have torn muscle. in fact having a cave and a buldge suggests storngly that you really may had that type of trauma once. becasue it measn that your muscles are differently arranged on your right arm, and such buldges, as far as I remember, really mean that you have your muscle torn, maybe long time ago.

if you want to google, google for carpal/ulnar syndrome. you will see all symptomes you have: pain and stiffness (especially in the morning), numbness etc.

About 70 % of genenral population has fasculations, adn as for leg ones, it is almost 100 % (leg muscle neurons are longest in the body so there is a lot of electromagnetic noise in them). Look at your husband and you will see that, surely he does not give a second thoutgh to it.
my own hubby has fascics and even thumb jerks and never was concerned about that.

my dear I wish you enjoy the life and trust orthopedis and neuro who both cleared you from clinical weakness which is the best news one can expect.
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Re: I am back and very scared:(

Postby Edina26 on June 15th, 2014, 12:45 pm

Hy Yulia , thank you for your suggesting , it is very hard to relax ...I said last year when it started that if I will made it till next year I will stop worrying well this didn't happend I'll make the same promise till next year . I was browsing true my old photoes and I found 2 I will like you to take a look and tell me if you think that my cave in muscle was there in 2008 to I think it was but I would like you to check up if you have a little time .thank you again and I wait to hear form you .ps happy Father's Day :) for your father or husband :)
https://www.dropbox.com/s/mpkr8aku6pf1l ... 4%20PM.jpg
https://www.dropbox.com/s/fy58l8cdf4893 ... 3%20PM.jpg
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Re: I am back and very scared:(

Postby Edina26 on June 15th, 2014, 12:49 pm

One more think about my muscle twitches I noticed that they increase with caffeine intake ...I did had a lot of caffeine lately yesterday and today I skipped them ...horrible headake :( but just a few twitches or maybe just the feeling that I will have them . But last week I did had an exam and halve time true my foot and my arm started to twich like crazy i started to panic off course and almost left .
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Re: I am back and very scared:(

Postby Yuliasir on June 15th, 2014, 10:00 pm

Edina, at least you have the same deep "cave" near the elbow, on my point of view. So if it is here for at least 6 years, then it is not an atrophy but an old trauma (maybe even in the childhood).

Caffeine is known to increase or even cause twitches, and if you a real addict, you may need to think about this habit and slowly decrease caffeine intake. But if you need a cafeine (for exanmple for migraines), then you may just say hye i have caffeine twitching not ALS, and stay on caffeine.
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Re: I am back and very scared:(

Postby Edina26 on July 4th, 2014, 11:49 am

Hy there , I would like to come with an update for everyone that followed my posts , and for everyone that had responded . In the last 3 weeks I had a lot of anxiety a lot of panic attacks ...fasciculations ...you name it ...I was in a very bad spot ...and of course I had a lot of pain in my right hand ...so I decided to go an take an emg today ...to see and put my mind at ease ...emg was clean :) I am so happy for that ...and I've been to the best neurologist in my country so I guess the test is acurate ..he took a lot of time with me tested al my limbs he explaynd me what is concerning and what not and he told me that I am clean from his point of view . He told me that my test are all normal and clean nothing concerning ...he even tested and measured my right hand because I saw atropy wich he saied it is not atropy is just the way my right hand is build . About fasciculations he saied it's most likely stress and anxyety could be other causes but nothing like I tought . About my right hand he told me I should do some investigations because it's not pinched nerve and could be something reumatologic maybe arthritis maybe something else so I have to do some other test for that ...but I am for now at least happy and positive ...it feel releaved ...yes and he told me that if I started with this symptoms 2 years ago ...having something really bad would show on emg ...do you think he is right? It's not that I am questioning him but I would like if somebody is aproving his theory .. I hope this is helping someone :) thank you Yulia for all your positive responses . I owe you a ton!
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Re: I am back and very scared:(

Postby Yuliasir on July 4th, 2014, 11:53 am

well, his theory is not a theory in fact but a practice :) he had seen so many really ill people so he knows this from a practical side of things.
trust him

happy to hear yu are cleared from MND by one of the best specialists in your country.
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Re: I am back and very scared:(

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