Real (my own) tongue fasciculations video

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Re: Real (my own) tongue fasciculations video

Postby veryworried123 on May 5th, 2014, 12:53 pm

so what does this all mean?

tounge fasiculations are not benign and therefore a indicator of MND?
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Re: Real (my own) tongue fasciculations video

Postby Rothhaar on May 5th, 2014, 1:11 pm

veryworried123 wrote:so what does this all mean?

tounge fasiculations are not benign and therefore a indicator of MND?


No, it just means that a lot of "MND experts" don't know enough about BFS - as proven by the fact that there are tons of people with tongue fasciculations, but without MND.
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Re: Real (my own) tongue fasciculations video

Postby emmie.s on May 5th, 2014, 5:07 pm

I had to comment...I've been to three different neurologists, and two neuromuscular specialists (the ones who performed my EMG) and I live in Houston, with the nation's largest medical center...sadly they know their stuff as they have all seen their fair share of ALS diagnoses. I told all three of the neuros and one of the neuromuscular specialists about all of the different places I have twitched, including my tongue. I clearly remember about a year to the day when my neurologist cut me off after I mentioned how worried I was about the tongue twitching meaning bulbar, because she wouldn't even entertain the idea after peeking in my mouth. The same occurred in 2008, back when my tongue was twitching pretty badly, and the neurologist pretty much told me that he could visually spot bulbar, and he asked if it ran in my family and I said no, and he said that due to my age, clean clinical and lack of weakness or slurring, bulbar was out of the question. Hence, they all took it as an extension of BFS.
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Re: Real (my own) tongue fasciculations video

Postby leaflea on May 5th, 2014, 5:40 pm

Matt, Wish I could "like" this post just like on FB. Thanks for posting that.
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Real (my own) tongue fasciculations video

Postby TwitchyDoc on May 6th, 2014, 10:07 am

Rothaar: Yes, now you see my point and surely that is why I was so worried in the beginning.

The quotes I posted are from the most common neurology textbooks used in US and I could cite much more stating the same. It only means that BFS has yet to be recognized and studied more.
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Re: Real (my own) tongue fasciculations video

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