Moderators: JohnV, Arron, garym
J4son wrote:Regarding the subject of the present topic, I think that nothing drastically changed before and after 2010. Even in the 1960 study concerning fasciculation it was mentioned that 20 years prior to the study, the consensus was that twitching means MND. I found many posts here from 2005, 2006 and 2007 mentioning cases and studies about twitching with no weakness being an early sign of MND. The question is what is the percentage of those twitchers with no weakness who ends up developing ALS. Scientific studies are important because they explore rare presentation of diseases, but by definition a rare presentation is rare and applies to a very minority of people. The motto: “Twitching without weakness means no ALS” still apply to the overwhelming majority of cases. And if I’m wrong so let’s put a new sticky on this board for newbies saying: Dear terrified newbie If you start twitching without weakness don’t bother seeing a doc, doing clinical tests or an EMG, because anything you do will still be questionable, unless 12 full months have passed from the onset of your symptoms. In my humble opinion a simple clinical still rules out ALS in 90% of the cases. Now a rare presentation of a very rare disease is still extremely interesting in an academic and research context but practically it remains….very rare.
dARR wrote:Seen this all before... Please remember that everything you read here and especially on complicated scientific concepts are the opinons of lay people who even with the best of intentions are not qualified to diagnose your problems. Listen to your doctors... They have been studying this stuff intensively for longer than anyone posting "scientific" opinions on this thread.
No weakness= No ALS
ALS is a rare disease if you want to spend your time worrying about a rare presentation of a rare disease then you need to reevaluate your life... Trust me Iv been there.
Darr
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