BFS or not, I feel better

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BFS or not, I feel better

Postby LisaW. on February 1st, 2004, 8:12 pm

I can hardly believe I've just signed up to this forum, but I have. I promised my boyfriend I would not look at another website to try and self diagnose myself but then I found this one, and I feel, whether I suffer from BFS or not, infinitely better.
I am 27 and about two months ago noticed a thumb twitch that lasted for two full days. It drove me crazy. I drove my family crazy. I drove my GP crazy. After it stopped and my irrational fear or having some strange debilitating neuromuscular disease stopped, I felt fine. Then three weeks ago I started getting a twitch in my foot, then both then my thighs and my buttocks, my knee, my calves, and my triceps and it was constant. Here there and everywhere. Little twitches at different places at different times with either 60 seconds between each one, or one right after the other constantly. When I look at the place where the twitch is, I usually can't see it. Occasionally I have seen one in my foot, or my calf. I have felt my liver or something in my stomach, twitch occasionally. I started with the medical encyclopaedia again and MedLine, and read about everything I could on the Internet. I have a fear that it could be something debilitating and terminal and my anxiety levels have shot up to near crippling levels. ALS, Parkinson’s, MS, they all have muscle twitching as symptoms. I saw my GP again and I was so wound up that I could hardly tell her what was wrong I was crying so much. I am not weak, my reflexes are fine. I had a blood test (fine also) and have an appointment with a Neurologist coming up. Meanwhile - I can't go about feeling this way. Last week I made the noble attempt to go back to the gym and stop being such a Cassandra. I have a history of hypochondria. I have gone to my GP having self-diagnosed myself with Cancer, Tubal-pregnancies, STD's, heart problems, lung-problems,etc. It almost seems silly to write all that. Imagine a young healthy person frightened of being sick? I don’t' know why I'm like that. It’s so self-centred. My GP thought I suffered from a lot of stress, which I should take into account (new challenging job, recent car accident - which I walked away from, but none the less..., boyfriend who works away for long periods of time, family who just moved to another province, etc.). I know she is right. So I made simple rules, work only 7 hours, take lunch breaks, banish negative thoughts. I noticed that the muscle twitching, although still there, was less pronounced and less frequent. I slept well for a few days. And then I woke up one yesterday morning with them again. I have a pit in my stomach and can't sleep. Its constant. Does BFS happen that frequently? But if I am moving around, I don't notice it. When I sit down, feel the twitching and think about it, it makes me VERY scared. I have freaked my mom and boyfriend out with some late night 'what's happening to me - am I going to die' sessions and I feel so selfish and self centred. So tonight I thought I would do one last look at symptoms and try and find something positive. I found this site - and if I have BFS, or something more sinister, I feel better. Many responses on this site to other people like myself who are scared and confused about how they should be feeling, are lovely. I have sat here reading for an hour, entranced by other peoples willingness to encourage others, strangers at that, to stop letting anxiety consume them and enjoy what positive things they have going on in their life. I should concentrate on the good in my life and be thankful I can sit here and write this email. I will try my best to take this negative energy and harness it for more positive things - stop making my boyfriend worry, take time to do sun salutes, visit a girlfriend, throw out the stupid medical encyclopaedia. This is lengthy, and it’s really for my own peace of mind. I know what is happening is strange. But it isn’t stopping me, and I'm not sick, and unless I learn otherwise, I will cross that bridge when I come to it. I feel stronger for having just visited this message board.
LisaW.
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Postby uber on February 1st, 2004, 8:33 pm

Hello LisaW and welcome to the forums :)

Ill be the first to say...RELAX...everybody here can relate to how you must be feeling and the worries you are going through...all I can say is that things will get better.

The other thing i wanted to say is in regards to your symptoms, I have to admitt that you dont sound like you are suffering from BFS at all and id especially say that this is definately not the story of somebody who has MS, ALS or Parkinsons. You clearly have a history of anxiety, and I think that is the problem you need to concentrate on, however id still recommend the trip to the neurologist just to put your mind at rest. Twitches are a very common symptom of Anxiety, I hope you manage to overcome them, and please keep coming back here to the forums if you need any support.
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BFS or not. i feel better

Postby COOPER on February 2nd, 2004, 8:41 am

From your description definitely BFS made worse by your heightened levels of anxiety. Remember a good percentage of people with BFS are hyperchondriacs. Anyhow if you are having fasiculations in various parts of your body, then by now you would almost certainly have experienced muscle atrophy to some degree if you had ALS/MND. My advice is to stop reading ALS/MND websites which in most circumstances only generalise the symptons and do not explain them in a broader context.
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Postby Dale on February 2nd, 2004, 3:52 pm

Hi Lisa,

I mean no disrespect but you might want to think about seeing a mental health care professional.

From your posting, it seems like you go from one health care crisis to another ie. cancer, heart problems, lung problems, etc. It's hard on you, your family and your boyfriend.

My advice: don't waste time worrying about twitches. Get a referral to a mental health care professional and work on your overall heath anxiety issues.

Sincerely,

Dale
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Postby garym on February 2nd, 2004, 4:33 pm

Lisa,

I'm glad you found the site! It is a much better option than most other sites, more uplifting. I can relate to your story, and your pain. I was there, and continue to fight not to return. I personally think your symptoms sound exactly like BFS, and it is so very common for people suffering from it to have anxiety. When i first saw my neuro., i asked if anxiety was the cause and promised to take whatever pill necessary to stop my symptoms. He smiled and said that anxiety was not the cause of my problems but rather a symptom of them. He is a nerve and muscle specialist and treats about 20-25 cases of BFS a year and said he has never seen a case of it that didn't cause patient anxiety.

Stay away from the negative sites, be sure to get plenty of sleep, and try to live as normal life as possible.

Good luck,
Gary
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Postby garym on February 2nd, 2004, 4:33 pm

Lisa,

I'm glad you found the site! It is a much better option than most other sites, more uplifting. I can relate to your story, and your pain. I was there, and continue to fight not to return. I personally think your symptoms sound exactly like BFS, and it is so very common for people suffering from it to have anxiety. When i first saw my neuro., i asked if anxiety was the cause and promised to take whatever pill necessary to stop my symptoms. He smiled and said that anxiety was not the cause of my problems but rather a symptom of them. He is a nerve and muscle specialist and treats about 20-25 cases of BFS a year and said he has never seen a case of it that didn't cause patient anxiety.

Stay away from the negative sites, be sure to get plenty of sleep, and try to live as normal life as possible.

Good luck,
Gary
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The power of the mind...

Postby LisaW. on February 3rd, 2004, 8:24 am

Normally if someone said see a health care worker, I would be crushed, but I know that there is a pattern or unfounded health fears going on. And the anxiety I have over this is certainly making things worse. Mind heal thyself! So I am certainly going to do that... Until I had read about BFS however I was obsessed with what was going on with my body. But now I feel so much more relaxed. I still get gripped by panic when I'm trying to go to sleep because I can feel the constant twitching in my legs. But then I think, relax, other people have this, I have no other symptoms of anything else, and chances are I won't die from this. But is normal for it to always happen? And does anybody have it so that it goes away, or at least you don't notice it, when moving about? Driving me batty, but remaining calm...boyfiriend even mentioned I sounded like my old self. So thanks for the support!
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Is that how it goes...

Postby Jayel on February 3rd, 2004, 4:47 pm

Lisa-

I am 4+ months into the twitching. It was wild in the beginning, settled down, now it is there but not as prominent. Last week I actually thought they were gone, but, nope, arise and thump they did. I had a few new ones in my leg joints (wierd) and my tongue was doing a dance for a few weeks then stopped. I think everyone is very individual in their experience with this and we all lean on eachother to know that it is not just us out there with these wierd unyielding symptoms. Husbands, boyfriends, wives, girlfriends etc. haven't a real clue how the fear can rip into you and stop you in your tracks. I guess it is just another lesson on how important it is to appreciate all that is going well and the health we do have. I think about people who live with a terrible dx and try to pray for them as they struggle to live out each day. We are still the lucky ones with where we are at right now! Be at peace, we all wish we knew the "whys" of this stuff but at least we can rest easy with the "why nots!"

Keep us updated :)

Jayel
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Is that how it goes...

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