Anyone who has had EMG of tongue please reply

[Jayel]

yeah, yeah, this is how it is. One day, all happy, happy that the ENT said twiching happens to some people and I could go to a neuro, but it would probably be a waste of money since they cannot help the twitching; two days later I have my tongue stuck out looking in the mirror. I did not say to the ENT that I twitch like non-stop in my tongue. I wonder if that would have changed his response?? I look at it and there is a flicker about every 15 seconds. Sometimes it gets so "tired" that the center of it feels almost tense. Anyways, is this a "normal" BFS thing or is the fact that it is so continual a "worry"??? It seems to have started, at least noticeably, after I began taking antidepressants FOR the twitching!!! I was on Zoloft, now I am on Wellbutrin.

So.......is it worth a trip to the neuro for an EMG of the tongue?? If so, does it hurt terribly. Any reassurance would be tremendous. I am, like most of you, just pooped from the worry. Ahhh, to go back to life as it was; don't we all appreciate what we "had" all the more!!!!!!

Oh, and I have had 2 EMG's of limbs-one leg, one arm, but I have only really been twitching 3+ months. Last EMG in Oct.

Thanks, guys, what can I say about the safest place I know to vent about this situation. Hoping for uplifting news. Until then, I'm on the roller coaster....

Jayel

[sarahtonin]

Jayel

Everyone's tongues move when they are stuck out - mine does, and I know I don't have tongue twitches. And it is hard work for the tongue to be stuck out for ages while you examine it so no wonder it is getting tired!

I believe that a tongue EMG is done from underneath through the chin - not particularly pleasant and not particularly reliable as a test so if your doctor is saying you don't need one I would go with that.

Sarah

[Jayel]

Hey Sarah-

Actually, mine twiches in the middle whether it is stuck out or still in my mouth. I have not phoned the neuro about this, just nerveous to do so.
Thanks, though, for your response.

Jayel

[Jayel]

Sarah-

Where did you hear the EMG of the tongue is not reliable?

[Ray]

Hey Jayel, I agree with Sarah. I've never had an issue where my tongue twitched but I keep seeing other people posting with such a problem, so off to the mirror I went and stuck my tongue out, well I almost freaked but soon came to realize that trying to stick ones tongue out requires the use of muscles and of course you'll see it waver and move about hence giving the appearance of twitching. Try doing this, stick your tongue out but now relax it and let it hang out (you'll look silly) but really let it relax I bet you'll find that those movements are no longer present! Let us know.

Ray

[Jayel]

Ray-

I know exactly what you mean because I tried that before and found it was the "positioning" and, indeed, it did stop. Unfortunately, this is not the case any longer. The flickers are definite and even happen if I hold my tongue still. I can feel them when my mouth is closed sometimes, just like we feel a twitch through our clothing. Mostly, it feels kind of like a spit "bubble" popping on my tongue. The ENT confirmed this after looking at it both in and out of my mouth. I don't want to spiral downward with this one, so any support out there, please keep sending me replies. You guys "get this" when others don't.

Jayel

[sarahtonin]

Jayel

Don't know exactly, but have read on various forums about the tongue EMG being unreliable.

Anyone will tell you that tongue twitches are no more ominous than any others so don't go down that spiral, roller coaster or anything else! (I can talk - am on one about my thigh twitch today )

Sarah

[Jayel]

Sarah-

I had a few thumpers myself in the thigh the other night. My husband felt them distinctly. I hate when they come and hang around. I really have had more "buzzing" continually but twitching is random 24/7. Hang in there, next week we will bemoan some other remote location that has come to life We can all do this together if we keep the encouragment flowing.
How is Tony Blair fairing these days after the war effort?
Jayel

[osbormd]

I was at Mayo last April, and they did an exam on me and the resident doc thought my tongue "looked interesting". So the main NM specialist came in and did a strength test by taking the tongue depressor against the side of my tongue and having me press against it with my tongue -- he had some other internists in watching and said "see, this is how you test the tongue for strength; this tongue has good strength, it is a perfect tongue!".

Anyway, after all that, I had an EMG the next day. The NM specialist doing the EMG was about done and I asked if he would poke my tongue. He said if it made me feel better, he would...he kind of laughed, I guess they don't get asked often.

He went in from under the chin. It didn't hurt any worse than the other places; in fact, it was less painful than some areas of the ankle and leg where he hit some nerves accidentally.

Mike

[Jayel]

Mike-

It is real-life stories like yours that hold me back from the edge of the proverbial canyon. Of course I just did the exact (or at least I think exact test because I'm not a dr., I only play one on t.v. ) one that you had and I am pretty sure I could crush something if I had to. Again, I am early in the twitching game, but as wierd as my tongue looks and feels, maybe it is time to just keep it in my mouth and as Aaron so wisely worded it in one of his posts take a deep breath, ahhhhh....feel better.

Yes, I do. Thank you, I will rest better tonight!!!!

Jayel